hi Nettie

how brave are you but go for it girl you will be fine never mind the almost OAP
you are only as young as you feel
GOOD LUCK;-)
lOVE jO

I give you REMEMBER

Leaving BER

Love Jean

Hi Helen
Thanks for the post I agree that my body will tell me and it does..I have taken the advice about resting and agree that works.I got a little snappy on one occasion about where the Pears soap had gone from the bath room! We laugh about it now and I can tell when a Dex moment is upon me.My personality is quite laid back if not…[Read more]

REDEEM

I leave – EEM

Liz xx

Well done Ivan, am sure the count is great:-D keep it low and keep getting remission8-)

Tom

Hi Bridget

Well am pleased it is working for you 😎 am sure the dex wont/cant be masking the pain:-/ so we will put it down to the RT you have had and long may the pain free continue 😎

Love and Hugs (((()))

Tom xxx

Oh Gill

I hope your "Ankle" is soon better 😀

Just noticed Stephen is 56 (ish) we are same age 😎

Love (One Shy) "Onwards and Upwards" Tom 😛

Hey Graham

I am in on the "Under 50's" and am 56 😀 yep 56 its a place I go to to use some words that you cant use on here 😀 if you know what I mean 🙂 never known anyone not accepted good bunch of cussers in their though so be warned lol 😛

Tom (never too old for the under 50's) "Onwards and Upwards"

Honest Helen I never (never) read this post (fingers crossed he he) xx

Hi Amelie

Sorry I cant help, but am sure if you phoned the Nurse am sure He/She would be able to help?.

Good Luck and am sure John will be Ok

Tom "Onwards and Upwards" x

Hi Bridget
Just looked at my discharge sheet and lightchain Bence jones protein is what they are monitoring.I continue to provide both blood and urine samples for my consultant.(The 5 ltr urine container always seems intimidating!)Seen the consultant yesterday and now on cycle 2 from today(4 days of Dex to start with),I find out in…[Read more]

Hi Gill
Exercise does seem to help me, though it can be mentally challenging to get going.I.E I try to walk about 2 miles a day (currently off work) on the canal,it might take 5 mins for my legs to get going as such,But once moving things feel better.I have quite good muscle depth in my legs so i know my legs can do it..but i know when to…[Read more]

Hi Eve
Went to see the consultant yesterday (only 2nd apt)She seems happy with me at this stage.My October apt will tell me how I am reacting to the medication.Thanks for the "heads up" on the Dex which can mask infections/low blood pressure,i did ask my consultant that question and she did indeed say yes it does…So "thank you" for the…[Read more]

Hello Dai
Just read Bilbo's song….wow made me cry straight away,such a descriptive song and so lovely.Thanks for sharing that.
cheers Paul

Hi
I hope Min has taken a little time out,may be,she has gone to enjoy her grand children,if she has she will come back refreshed,and stronger to cope with all those inefficient people who do not know her situation and have no understanding of it.
Min will come back in her own good time.Eve

Hi Gill
My,Stephen is brave I suppose it is better recovery with local,and chemo should finish off,I suppose Gill with all they go through,its just part of the bigger picture:-/.
Do understand were you are coming from,to me it seems like waiting for the next episode,I do not think sct now,I just wait!! as cdt did not work,will velcade:-P.I…[Read more]

My word to follow that one is LAMINATED which leaves TED

Hi Paul not all doctors classify patients myeloma type to them so you will get various answers to your question When I was first diagnosed they were able to measure my paraprotein levels and therefore the level of myeloma in standard blood tests When this proved inaccurate after a couple of years, I relapsed with a large tumour and still had low…[Read more]

Hi Carol thank you for caring and I would never think you were a pest for asking ! So far so good no pain for the last few days but as I took extra Dex this could be masking it The radiographers always point out things get worse before they get better so I am being cautious for a while yet ! Still its looking very promising apart from a bit of a…[Read more]

Hi Helen your answer made me laugh That would be just the thing to happen to me too !Or I would spend a whole day out before realising it was on back to front or upside down!! Just e-mail me your address and I will knit your hat , at least it will help keep warm As for body hair Wendy I didnt have to shave my legs for over a year the first time…[Read more]