eve replied to the topic That subject no one wants to talk about in the forum Carers 14 years, 10 months ago
Hi min
I can help you on bank accounts,joint names is now considered to be your money do not worry about paying in cheques
in Peters name,Any accounts not in your name will have to go to probate as Peter has not made a Will, find a solicitor who does not charge the earth,do not be afraid to ask price and if your not happy,walk.
You can…[Read more]
mhnevill replied to the topic Velcade induced Neuropathy in the forum Side-effects 14 years, 10 months ago
Dear Debs
So frustrated for you about the cancellation. I sometimes wonder if they realise what it does to get a letter like that.
Hope the Tens machine does some good.
Love
Mavis x
mhnevill replied to the topic Radiotherapy Appointment Tomorrow!! Yippee!! in the forum Treatment 14 years, 10 months ago
Dear Bridget,
So sorry the pain is still so bad. Hang in there, It's nearly Wednesday with high hopes for the RT from us all.
Love and blessings.
Mavis x
mhnevill replied to the topic Halfway point in the forum Newcomers 14 years, 10 months ago
Hi Keith
Good to hear news from you. Sorry about the infection, but hope you make steady progress now.
All best wishes.
Mavis
mhnevill replied to the topic Got on the forum at last!!! in the forum Newcomers 14 years, 10 months ago
Welcome Sandy
All the best for the SCT.
Mavis
mhnevill replied to the topic New to the forum in the forum Newcomers 14 years, 10 months ago
Hi Barbara
Welcome to the site although I'm sorry that your diagnosis means you need to. Good that you don't need treatment yet – I hope this phase lasts for a very long time for you. How was your MM diagnosed? I'm interested what you para protein level is now. Having had a tumour removed from my spine and radiotherepy I am not currently…[Read more]
mhnevill replied to the topic Advice Please! in the forum Newcomers 14 years, 10 months ago
Hi Nadine
I'm sorry to have to welcome you to this site on behalf of your Mum. I am sorry for all the shock you and your Mum must be suffering from.
As someone a bit nearer your Mum's age, I'm 66yrs, may I put a slightly different perspective on things.
I gather that there are indications from tests that show whether results of SCT…[Read more]
Debs replied to the topic Velcade induced Neuropathy in the forum Side-effects 14 years, 10 months ago
Oh Tina
They've postponed it till next tuesday- I cried when I got the letter! I feel like my toes are broken tonight…worse than they've been in ages. It's partly my fault as I've overdone it today and not had a sleep but it's depressing to know it could have been looked at tomorrow and now I ve got another week to wait.
Enough moaning!! Down…[Read more]
Debs replied to the topic Advice Please! in the forum Newcomers 14 years, 10 months ago
Hi nadine.
Ask away on the question front. I was on the myeloma xi trial and had rcd ( revlimid, cyclo & dex). I plateaud quite early and went onto velcade. I don't regret the Sct yet although if I'm honest there were times in hospital and when I got home when I wished I hadnt done it as life seemed so hard. But now there is a light at the end…[Read more]
tom replied to the topic Advice Please! in the forum Newcomers 14 years, 10 months ago
Hi Nadine
Your more than welcome, and if it made you smile:-D half of my job has been done today
Yes I also was on CDT :-S all those pills :-/ but hey ho it made me better.
Love to your Mum
Tom "Onwards and Upwards" xx
tom replied to the topic Got on the forum at last!!! in the forum Newcomers 14 years, 10 months ago
Hi Sandra
Just to wish you good luck 😀 dont know about the hospital (yours) I had mine done At Castle Hill in Hull8-)
And I was allowed out on day 16 🙂
Tom "Onwards and Upwards" xxx
tom replied to the topic Work – when is it enough? in the forum General 14 years, 10 months ago
Hi Ozzy
I know how you feel with the tiredness I am 56 and work mon to friday 6/2 and have to admit come weds am ready for a day off :-/
I also feel too young to retire and tell my young bride (elaine) that am sure the time will come when I have to take time off?? but not now 😀
Work is tiring but hey its supposed to be lol.
Keep fit…[Read more]
brocho replied to the topic That subject no one wants to talk about in the forum Carers 14 years, 10 months ago
Hi Min sorry I cant help about bank accounts but when Jeffs dad died we were amazed at how many phone calls , forms and visits it took just to get his mums life back on track In Olives case she is a very lively 82 but she would have found it too hard As you said about not being able to motivate yourself was exactly how she felt too On a spooky…[Read more]
brocho replied to the topic Got on the forum at last!!! in the forum Newcomers 14 years, 10 months ago
Hi Sandra I would say its worth asking about your pillow Bridget
brocho replied to the topic That subject no one wants to talk about in the forum Carers 14 years, 10 months ago
Dear Min with a lovely family like yours you will get through this awful time If you do stop and have a weep dont beat yourself up about it though Mind you I think painting is great when you are upset I once decorated the whole house in a fortnight at one horrible time Keep on keeping on Min love Bridget xx
brocho replied to the topic That subject no one wants to talk about in the forum Carers 14 years, 10 months ago
Hi Eve happy birthday ! Go out there and have the best birthday ever It seems so wrong not to celebrate life whenever we can and yes if your smiling makes it easier for the rest of us Have a great day love Bridgetxx
brocho replied to the topic Got on the forum at last!!! in the forum Newcomers 14 years, 10 months ago
Hi Sandra welcome and well done getting on site! Sorry I cant help with the forum either as I live in Bedfordshire. Good luck with your sct, take your own mug with ( tea always tastes better than in plastic) Bridget
Debs replied to the topic Advice Please! in the forum Newcomers 14 years, 10 months ago
Hi Nadine,
Welcome to the site although I'm sorry that your mum has MM.
Why are you finding it hard to discuss it with your mum? Because of how you feel, or because of how she is? I think if you can talk about it with her, all the better for both of you….you can support her better if you understand how she feels and also, my personal view is…[Read more]
tom replied to the topic Advice Please! in the forum Newcomers 14 years, 10 months ago
Hi Nadine
A warm Welcome to tis great site, but am sorry you had to join.
I hope your Mum is doing well on her treatment?, As for the SCT I had one in December 2009 and am still in remission and doing well (am 56 now)
Please dont ask me what my para/bloods red or white marks are cos I just dont know (av bin told its a man thing:-0 )
But…[Read more]
eve replied to the topic That subject no one wants to talk about in the forum Carers 14 years, 10 months ago
Hi Everybody and specially you Min,
It might not be the subject we want to talk about but it all helps,and gives us time to grieve.
Its my birthday today and since 9/11 I have felt guilty of enjoying it,then 5 years ago one of my sister-in-laws got cremated on my birthday it was such a sad day,and today i am in similar position another sister…[Read more]