Hi Sylvia sorry to hear you had a down spell but very glad to hear you are feeling more positive . I usually find myself feeling down for a few days after hearing disappointing news or results but to be honest after a couple of days I think what the heck and carry on, because what choice do we have There are so many new things coming through and…[Read more]

No excuse FLATULENCE LOL

NCE
Is there a smell round here.

Hi Sylvia

So sorry to hear that after responding so well to the intial tratments of Velcade, and having so little side effects,that you have plateaued. As your PP is only 11 is there any chance of them leaving off further treatment for the time being till your numbers start to rise? I am sorry they are saying your MM is agressive although…[Read more]

Hi Sylvia

Sorry to hear its not that good for you on the "Velcade" but dont give up more can and will be done, I know it will get you down knowing that the response is not the one you wanted and hoped.

You are correct this site is for the Support just as much the Information.

Good Luck Sylvia hope your next lot works better.

Love and…[Read more]

Take good care of YOURSELF

ELF

Hi Gina

Pleased your Mum has started the treatment, I hope it runs smooth for her and the side effects are down to a minimum.

Love
Tom "Onwards and Upwards" xx

Eve it feels like a well worn pair of shoes comfortable, but you young Ladies are more than welcome to pop in and throw in some gossip 😀 am sure Ted and I would love it 😎

Just taking a break from the New Kitchen I am fitting some Lino 😉 am sure I will regret it :-/ one slip of the knife and £70 has gone up the swanny :-S he he. then I…[Read more]

Is this becoming a men,s meeting point!!!!8-) 😀 🙂
Short and sweet no gossiping!!!!
What are you men like. LOL
Eve

Thanks Sharon

Will look out for that,has his MRI scan on Sunday,With Slim its very hard to tell how much pain he is in,never one to admit to pain just the fact he takes Oxycodone hydrochloride and cannot do without it,and still is in pain is enough for me.Never touched a pain kill in all his life,even when he had a hip replacement,,broken ribs…[Read more]

Dear Min

I wish your family a safe trip home, I also am very pleased to read that Peters Story went so well, save the good parts that you went through with Peter's Illness and throw the bad bits in the bin.

You know where we are for the support that we can give you please keep in touch and If you feel I need a telling off then please give me…[Read more]

Hi Amelie

I understand John's and every one out their who has MM for wanting to have a goal so as to get better faster.

I also had the goal to get back to work BUT My Consultant and the Cancer Nurse (who's husband used to work with me) told me I should not go back to my Job, its heavy Work and would mean stress on my back arms and shoulders…[Read more]

Hi Min
I posted on side effect when it should be here,loosing my mind that,s my excuse:-)
This has all been a wake up call for Slim,he is listening to me,and has said how it all bring s every thing home,Promises me in the future,he will do as i ask if he is ill,:-/ I know him well enough.i will still have a fight on my hands to get him,in to…[Read more]

Hi Min

I know you will get through this,Luck or some one looking over you having your son by your side!!:-)
Sarah was lucky to be able to bring her husband home to die,Peter was lucky in the fact that he new nothing about his death,you had to carry that burden,
We all know how stubborn men can be,and often that,s why we love them so much,It…[Read more]

Dear Min
Thank you so much for sharing your loss with us – I look at my darling husband who cares for me and now understand better why he is at times fussy and overprotective (in my grumpy independent eyes anyway).
Having lost my first husband of 21 years to cancer I have been where you are. Two things – keep breathing and keep taking that…[Read more]

Dear Min

You are so brave and generous in sharing the aweful last journey with Peter. It will no doubt help others fo us to ahve this extra knowledge.

Hope the white tablets continue to work as you build up your strength.

Very best wishes.

Mavis

Dear Bridget

Roll on next Wednesday. I can't imagine how just one dose of RT can zap the pain. I wonder how it works? Mind you, it doesn't matter how as long as it does. It is so good you are so very positive – I'm sure this helps.

Am still thinking and praying for you lots.

Love Mavis xx

I think we should all grow old TERRIBLY disgracefully

BLY

Trying my best Eve

hi Gill
Thank you for bringing the video to are attention,it is exactly what is needed,It is making that call is the hard one,sometimes as in Slims case there was no temperture,and his insistence that I was fussing,even having a doctor out,who looking back had know idea,!!!!

Staff told me later what we went through should not have happened.
I…[Read more]

Hi Sharon,
Thank you for all that information,have asked about pet scan today,nurse said she would inform consultant,thought it was a good idea,the consultant is very much a bloods man,I get the impression he works purely on results.
Slim has tumour on spine,plus lesions on shoulder blades and skull,they have a pet scan at the hospital !!! so…[Read more]

How's about KILOBYTE

So YTE next

Jean x