Hi Ellen
I have just been diagnosed with Lightchains Myeloma and I am 50% through my first cycle on Myeloma 11 trial RCD pathway.Is there any info out there on Lightchains,my consultant says its in the "early stage" I am 39 and male quite physically fit..except for the Myeloma!
thanks Paul

Tom
We are lost with out you. eve

Hi
How about

DOMINATRIX

Is that a swear word or a sex word,better watch my knuckles
Slim tells me its a bossy word,

RIX

Hi Eve

And that I am 😀 not only at the hospital but at home in the club I drink in at work 😎 but to be honest I had all the later well looked after before I became an MM statistic :-P.

You and Slim seem to have had busy days 🙁 and he is correct they will phone him if bloods are dodgy 😉

As for the Smile its just looks like am…[Read more]

Hi Bridget
What surprises me Bridget is the turn round of what we were told when we saw consultant,I checked about bone marrow every cycle twice,then yesterday same nurse,said in a few months,that,s why i want it checked out.8cycles,3weeks cycle equals 6 months of treatment,Slims just done 6 months on CDT.
I need to know is this the same for…[Read more]

Min

Just to let you Know We will be thinking of you and your Family, May God Look after you and your Family to keep you strong.

Love

Tom and Elaine xx

Hi Eve regarding the results following treatment as in Slims case and doctors wanting to wait until the end before doing bone marrow or is it a scan they are going to do? Often the results from these drugs take time to settle so rather than testing several times they prefer to give it time to level out As it is only a few weeks its unlikely to do…[Read more]

Hi Sharon
Slim seems to be in the same situation as you,blood and urine are showing him going in to plateau ,but showing 80% in bones,on 2 cycle of Velcade,went to hospital yesterday,things have changed again,nurse now says will not do bone marrow until near end of cycle!!!.I asked how are they going to check how disease is progressing???? as it…[Read more]

Hi Sarah

It doesn,t just rain it pours as the saying goes,and its raining on you,put that brolly up and protect yourself,you don,t want to catch anything,!!!!

Ask yourself why your MIL is phoning you and not Gordon,s siblings the reason being she feels she can relate to you,and because she see,s you as a strong person who is coping so…[Read more]

Sarah

I am so sorry that you have this extra burden on top of loosing your lovely Gordon. People as you know grieve in many ways. When my mum died I was so angry at everyone and every thing. I could not understand why these people were walking around and my mum wasn't. I am not making excuses for your MIL but maybe she is shouting for help as…[Read more]

This time KINGDOM

DOM is next

Jean xx

Dear Sarah it really doesnt seem fair for you to go through so much I think I understand what you mean when you say your father gave up on hearing of Gordon passing ,when I was first diagnosed and very ill my lovely strong mum changed into a frail old lady instantly Its like she wont put any energy into caring for herself instead she frets over…[Read more]

Min My thoughts and prayers will be with you and your family today. You will have the love of your family and friends (and your cyber friends) with you as you celebrate Peter's life. Mavis is right – death does not have the final say.

My love and prayers are with you.
God bless and comfort and look after you and your family today.

Love…[Read more]

Dear Alison

Welcome to the site from me too, but sorry you have to join this elite club!! Good to hear that the dialysis and drugs have worked to get you to a plateau. I wouldn't worry too much about not being advised to have a SCT at the present time. There are in fact Trials going on in America at the moment to compare SCT against other…[Read more]

Dear Mavis thankyou for your kind words, you always seem to say just the right thing If I do the jig I will get a pic on here Be warned it would not be pretty though!! love Bridget x

Dear Min my thoughts too will be with you today love and hugs Bridget x

Dear Bridget

I do hope they arrnge the RT for very soon and that it really does the trick. I am glad you are so positive about it. I just feel so cross you are in so much pain – it seems indecent in 2011 that we can't get on top of it.

You are one special lady! Hold in there and look forward to the dancing!!

Much love.

Mavis x

Hi Min

Just to let you know that I too will be thinking of you and praying for you and the family later today. I do hope that Peter's service will bring you some comfort and the hope that this world is not all there is and that death does not have the final word.

Much love.

Mavis x

Hi Sarah thankyou Imust admit I am near the end of my tether with it and usually I am pretty tough!! Luckily the Prof is very good and the RT worked well last time and I didnt have to wait too long either This time in a fortnight I will be dancing a jig on my front lawn !! Haha as if Take care Sarah love Bridget x

Hi Tom
Must admit you do seem well looked after:-)I think Slims consultant takes one look at me,and thinks she,s going to start asking questions:-P
Went to hospital today,bloods and treatment ,arrived 9 oclock bloods,1 0clock for treatment Slim had treatment at 3.30,left 4 oclock.in all treatment is 30 min top.with travelling 9 hours…[Read more]