Hi all

This is good. Hope I have the rules right. My word is HIERARCHY
Love Jean x

Hi Sharon

I have seen it and I asked one of the Nurses about it when I went in for my Zometa and she says she will look into it and see what its all about 😀 so if I dont forget I will ask in about 4 weeks time 😎 Thanks for the link

Love
Tom "Onwards and Upwards" xx

Hi Bridget

Well we are nawty aren't we :-0 its a bit like that program "Deal or No Deal" give good advise in the wings but when out front they just become a mess, you know in the wings you would say "Get off to the Hospice it will help" 😀 so get yourself off I have been (just for a visit and to hand in Money) they are great places and honest…[Read more]

And what a wonderful post Amelie 😀

You both should be very proud to have done it.

Am sure Bridget would be great on the triangle 😀 and if you have spare room on stage I could do?? erm well?? erm Oh I know sweep it 😎 I cant even whistle in tune ha ha

Well done again

Tom xxx

My Dear Min

I am so sorry your Peter has lost his brave fight against this Effin MM.

I send you our Love and Condolences at this sad sad time, please take care of yourself, Love and Hugs from Elaine and I ((())))) xxxx

Tom and Elaine xxxx

Ted you cant beat Grandkids we have 5 but all young un's lol.

Tom "Onwards and Upwards"

Hello Bridget
Sorry to hear you are having such a bad time hope the pain subsides quickly!
When kev had radiotherapy after breaking his sternum it was a great help in releaving
The pain, so I hope it works for you and also I know the thought of the hospice worries you
But they are the best when it comes to pain relieve for the individual and…[Read more]

Dear min
I am so sorry to hear Peter has passed away I've not been on the forum for a couple of days so to read of your sad news has shocked me! Like everyone else I want to send love and hugs to you and your family.

Thinking of you love liz & kev xx

Hi Paul

This is an "oldy" of 66yrs answering a post on the fifties strand! Having just picked up your posting i also wanted to welcome you, sadly as it were (!) to this great site.

It's good you have been given Revlimid as part of the Trial as it is supposed to be very good for a front line therepy. I read lots of stuff on the Myeloma…[Read more]

Dear bridget

Just thought to say – do dose ourself up well with painkillers before the radiotherepy or it will kill your back. I didn't find my radiotherepists very symathetic. I hope yours are more so and that it works quickly for you.

Love.

Mavis x

Ted you should know – you look just like him. Surely you have been told before! Grand kids are great – aren't they?
Love Jean x

Hi Debs I hope you get a quick refferal to Macmillan , it wikk be such a relief for you My nurse came round this week and the first thing she arranged was for the District nurses to come out to give me a painkilling injection of morphine if my usual doses fail to ease the pain Tat in itself was such a godsend as this week I have been desperate ,…[Read more]

Hi Bridget

I'm so gutted that you are having such an aweful time. I can understand tears – with so much pain you feel so out of control. I remember being there a year ago. I am so glad that the McMillan Nurses have made some useful suggestions and help is at hand.

I feel very wild, I listened to an Amnerican Webcast about Pain, a few…[Read more]

Hi Ameloe what a wonderful achievement for both of you You are right to feel proud of yourselves!! I am sure it helped Johns recovery enormously!! Treasure those memories of your wonderful acheievement Shame you couldnt have recorded it for us to hear Which instruments do you play? I have always envied people with musical talent , I could just…[Read more]

Hi Paul

Welcome to the site….it's a great place for support etc.

I am 36 and was diagnosed at 34 with smouldering MM. It developed and I started on revlamid on the Myeloma XI trial. Plateau'd quite early and went onto velcade and am now 44 days post SCT. Just for a bit of history!

Take it easy, fit the drugs round you as much as you…[Read more]

Hi Amelie

So pleased to hear that John got his dream because you worked so hard for it. Keep dreaming and making dreams come true.

Best wishes to you both. May you have much time together.

Mavis

Oh Gill,
How awful to have that put on you too…I hope so much that they've got it wrong and that you don't have to deal with anything more than what you're already coping with.
Love
Debs x

Hi Dai
Funny you say that oramorph doesn't work at all, as when my neuropathy first got bad, it really worked! In fact it turned my life round for the week before my SCT. But ever since, it hasn't seemed to work in the same way. It does work a little, I think, and I tend to take it to help at bedtime – not sure whether it just helps me sleep…[Read more]

Hi Amelie
It is nice to hear something positive,it was something he dreamed of and you made it come true,I like to think some good comes out of bad things even if it is only a learning curve.

I hope both of you have a long wish list and you make every day count.
When my husband was first diagnosed my thoughts were we are so lucky,we have done…[Read more]

Bridget,

Hope you're doing ok and that the pain is coming under some sort of control – when is your radiotherapy? Make sure you let them help you if that doesn't help. Pain is horrid and if they're offering alternatives you should take them….I'm going to try to get hold of our local macmillan re my neuropathy after your…[Read more]