Hi Ted

Yep we have more men on here 😎
Sorry to hear you had to join this group 🙁 but its one of the best on line 🙂 as you already know we have a lot of folk in your position and in front so can answer you Q's .

As for me I am a (Young) 56 and am no 18 months post Stem Cell Transplant and doing good 😎

Dont worry about not having…[Read more]

Hi Carol

Just wanted to add my happy respose to your good news especially as it comes just after i had read the sad news about Gaye and shed a tear for her.

Like everyone else, I do hope the 0PP lasts and lasts and that the revlamid maintenance works well for you.

Get out there and forget MM for a while.

Love Mavis

Like everyone else, I feel so sad at Gaye's passing even though she had prepared us for it. She certainly fought the brave fight and endured so much pain with fortitude. An example and a friend to us all.

I just take comfort that Gaye had prepared herself for her end; and because I do not believe death has the last word.

Gaye may you rest…[Read more]

Hi Sue really good to hear Michael is home at last and they have got that infection under control You must be sp pleased to have him home but I bet you are exhausted , no wonder you feel low after having the worry of Michael being ill and hospital visiting him. I hope that you can both relax a little now and please try and make some time for…[Read more]

Hi Carol
You are allowed a copy of all results,you do have to ask for them,I have most of Slims results,but some take a couple of weeks to get back as test are done in London,Leeds and Birmingham.
Any department in hospital can only give you result they deal with,computer does not allow them into anything not connected with there dept.
What…[Read more]

I simply don´t understand why adults who are fighting a life threatening condition are now allowed a record of their treatment progress.
Whilst I was undergoing my conditioning chemo prior to sct I asked my specialist for a photocopy of my prescription which included my monthly blood results including neutrophils etc. etc. I was on such a…[Read more]

Hello Everyone

Just a lne to thank you all for your lovely messages following my good news – a zero paraprotien level. You have all been so encouraging and just wanted to say that the last year has been made so much easier having such a support network to turn to. Nice to know that we are all welcome whatever our news is – good or bad.
I…[Read more]

For Gaye ; This morning when I read that you had left us I cried . As the day has gone on I have been thinking of your wonderful warm nature and how your posts written with such warmth showed us what a caring person you were .When I first found this site I was unsure as to whether the forum was something I wanted to take part in , but the warm…[Read more]

Hi Ivan I am glad you were seen on the ward it really does make sense for them to see you as they know all the relevant details of your illness and treatment . I can understand you being disappointed having to take time off work but sometimes its the best thing rather than struggling on and making things worse. We have all had these minor blips…[Read more]

Congrats Carol great news keep on letting us know how you are getting on
A lady in my support group was one of the first to get revlimid our MP fought to get it for her, she has been on it for nearly four years and now she has a dose of 15mgs every other day and no Dex she is well and her Para are stil 0 so plenty of hope there

Keep well…[Read more]

I do know what you mean I always feel good after a walk and knowing that I can do it I will do it it does give you small sense of I am in charge.
I also am not allowed to run so it just as well I have never liked it anyway always a tortoise never the Hare

Keep well Love Jo

It is sad news,but not unexpected it was so nice of Gaye to think about us,and to make sure we new that she has passed away.
That is consideration beyond the grave,such a thoughtful woman,putting her house in order,she will be remembered with big smiles on this site:-)Eve

I am so sorry to hear of the death of Gaye, a very brave woman and friend to us all. She will be greatly missed. Thank you Ellen for letting us know.
Jean

Hi Ivan
I can understand you not wanting to spend time off work,but at least you are being looked at,have you got a good boss?.
Do not let it get you down,You will find in time,that you become more accustomed to these little hiccups,best that it is dealt with early,
MRI scann will show any bone damage on spine,if you look at some of the other…[Read more]

Thankyou Ellen for letting us know Gaye was a very big asset to this forum and she will be missed by a lot of people . I will remember her for her compassion and wonderful sense of humour even when she was going through very tough times Bridget

Hi Russell
Welcome to a club nobody wants to be in!! but we are and it is not only informative,but some times funny,but you will have more fun,in the under fifties ,they are allowed to swear when you get angry ,older ones swear in spaces h-e-l-l.!!:-P
I see it was 4 am when you posted,we have all been there at that time,its when the demons come…[Read more]

Hi Russell you must be reeling from the shock of hearing you have myeloma .The internet does throw up some scary facts , be careful about searching on there as information is often incorrect or out of date The average age is much lower than 70 now and although you are very young at 28 there are quite a few under 50s and several under30s , so…[Read more]

Hi David

I have exercised since I finished CDT it always makes me feel better my husband Geoff and I usually walk about three miles every day it takes us about an hour not rushing then! we swim some times but I am a bit worried about infections from the public pool any way Mc Millian have said just this last week all cancer suffers should do…[Read more]