Hi Helen I am not sure I am going to be much help on this one What I do know though is that the very toxic medicines we take as treatment can be harmful to liver and kidneys as they try to flush it out It may be your mum needs a short break to give her liver time to recover , I would imagine they are being very cautious and doing a scan will…[Read more]

Dear Sarah

I am so sorry to hear about gordon you and your family have my heartfelt sympathy God Bless you all

Love JO

Hi everybody
i went through all his work,the arsenic and vitamin C one,impressed me,the patient concerned was given 2 weeks,and he was still alive 6 years later,he summed it up,he was keeping him on top of the grass LOL.
he seems to trying lots of different combinations with different drugs,
Anyway Jo Off to hospital today for bloods,and made…[Read more]

Dear Sarah there are no words to express how sad I am to hear Gordon has lost the battle against this bloody awful illness . Both of you faced myeloma with such positivity , strength and humour it just doesnt seem fair .I am sure you will use those qualities to get through the dark days ahead . I hope you will feel able to post from time to time…[Read more]

Sarah
What can i say,my heart goes out to you,it does seem so unfair ,you must be heart broken.I thought you might have had a little bit more time together,to adjust to the situation and reflect together on all you have shared,but time ran out.I am so sorry Sarah.
Take comfort,in your grandchildren, life goes on,you will look at them and see the…[Read more]

Oh Sarah I am so very very sorry to hear your sad news. My heartfelt sympathy to you and your family. I have followed Gordon's and your journey through this horrible disease. You both have been inspirations to me and am sure a lot of your friends on the forum. My thoughts and prayers are with you and your family.

My deepest sympathy and…[Read more]

Hello Sarah,
Not posted for a while so sorry to hear Gordons not doing to well, but it must a comfort to have him home,
Me and kev send our love and hugs to you both.

Love liz xx

Hi
I think James berenson have a lot of very intering things to say I have been following his post closely as I have not had an SCT, what he says encourages me a lot
Regards Jo;-)

hi Scott
glad to hear you are ok I felt quite tired when I finished CDT and had reguler blood transfusions for at least eighteen months after I was first diagnosed I believe a lot of this is to do with the lack of kidney function
but the good news is I havn't had one for nearly a year now so things do get better i still have a bit of PN in my…[Read more]

Hello Eve

I chose not have an SCT as my kidneys were also very damaged apart from the higher mortality rate the chances of the chemo destroying my kidneys so havineg to go on dialysis three times a week for the rest of my life I decided to take a chance and just go with maintenance upto now i have been ok Hope Slim is ok give him my regards

Love Jo

Hi Peter and Scott
Very interesting from Dr Berenson,Trying to find all the information i can,to try to understand the going down sct or not.!!!!
My husband Slim has just finished 6cycle of ctd,it looks if they will not be recommending sct,because of his lungs,when he had septic pneumonia,the cat scan showed mass blood clots plus wedge shape…[Read more]

Hi Peggy
Do not know how you managed it but you have two post in General with same title one very up beat,other one not so,!!!! just found this one,as i was looking to see how you were managing:-)
I do not know if anybody has mentioned it,but drinking water is so important for your kidneys,if you find it hard drink anything you like,you may find…[Read more]

Hi Dai it still shocks me just how long you have been kept waiting for a potentially life-saving procedure that takes minutes to do !! I think Eve may have a point about publicity if only to highlight a very serious problem in the dire lack of resources in this area On the other hand as you said until now you have not had any complaints about…[Read more]

Hi there Dai
You have a large leg but still keeping your sense of humour.:-P
May I say Dai your a man who is very good with words,so why not use this gift,you must have a local paper!!!!,copies to executives plus,to paper,hate to say it,but works wonders,like a pain in there side.
Other option is to pay privately it should not cost very much…[Read more]

Hi Jet good to hear things are going well , I never doubted your positivity would get you through it without too many problems!! Debs is home , feeling rough but at least she is with her family which helps a lot . Remember to try not to overdo it and give in when your body needs a rest love Bridget

Dear Sarah and Gordon thinking of you both love Bridget x

Hi Peggy good to hear things are going well , long may it continue ! love Bridget

Hi peggy
glad you are feeling a bit better let us now how you get on with the rest of the treatment
Love Jo

Hi Gill
I know what you mean when you say privileged ,I am not religious ,but i do thinkwe learn so much about life in times like these.
No one wants to go on this journey,but in many ways it is not only a learning curve but it puts life in perspective,and in turn enriches it.

Fifteen years ago i started another journey.My grandsons,again a…[Read more]

Hi Sarah
Keeping up with your post just so you know you are never far away from my thoughts. Eve