Hi Helen I am glad your mum phoned the ward , I used to hesitate about phoning for advice but then I quickly realised there is no point suffering when there is usually a solution to be had . I was diagnosed 5 years ago after a year of awful back pain. Eventually I was diagnosed and by that time 3 vertebrae were destroyed, I then had a spinal…[Read more]

Thanks Bridget, but am sure all my bits will mbe of an advisery role these days Lol, the kids just might let me use the sdrill once or twice 🙂

Love Tom "Onwards and Upwards" xxx

Hi Sarah
Thinking of you today,as every one on this sight is,many because we know some were down the line it is going to be one of us,so sad that it has come around so fast.we all know what a roller coast of a ride this is and i do not think anyone is ever prepared for the future.
On the plus side you are getting Gordon home,and that in it,s…[Read more]

Hi Helen sorry to hear your mum is having a tough time , hopefully things will improve soon , it can take a few weeks on Revlimid before things get easier You are probably right about Dex causing the shakes , it might be worth talking to the doctor about spreading the dose out , I now take mine every Monday for 4 weeks rather than for 4…[Read more]

Dear Sarah
Min and Bridget have said it all. I am so sorry what you are going through. I know Gordon Is surrounded by love. My thoughts and prayers are with you both. As Bridget says "hang in there". I pray that there will be some improvement. Sarah I can only offer my prayers and love.

God bless Jean xx

Dear Sarah my heart is breaking for you , life is just s–t sometimes. Gordon must be pleased to going home and spending time with you all , he must be sick of hospital. You will find the strength you need Sarah you are an amazing woman Sending hugs and love but I wish there was something more to send love Bridget x

Oooh Dai thats so exciting I cant wait to hear how you get on !! I have looked at those ads longingly before but I couldnt find out if they were suitable for people with varicose veins ? I hope it gives you some relief soon , its worth every penny if it does Looking forward to the next instalment love Bridget x

Thank you all for lovely replies .Min if I could send Peter a bit of my weight I would gladly do so but I am sure with you in charge he will get his stregth back before too long!! Sarah I hope Gordon has had another good day , still got fingers crossed for you . Mavis I have to confess I did have a peek at a couple of my favourite dresses tonight…[Read more]

Hi Ozzy just to add to Jos point about being careful re any persistent leg or hip pain and high doses of steroids In my case I had to have a hip replacement a few months after my sct as the steroids had completely destroyed the joint in just a few months So if your hips or legs get worse make sure your doctor knows about it and they can check with…[Read more]

Hi Bridget

I am so glad something is going your way after such a rotten few months.
Long may your improvement last. Who knows, those size 12s may get another airing eventually.

I always appreciate your obvious concerna and support of others.

Love

Mavis

Hi Jo

I must say I am not that good?? we are having a new Kitchen but am having a great deal of help from Craig (our next door neighbor)

Good to hear you and Geoff (ur old husband? ur words not mine ha ha) go for your daily walk and I tell you three miles is a bloody good walk (unless a pint is at the end of it he he )

And its great to…[Read more]

Hi Carol
Yep My Boys nay men all over 25and kids of their own Lol, have taken most of my tools and my "Fishing gear" saying "you dont need to cut the hedges we will do it, you dont want to go fishing and carry all this gear?" and as it happens I dont 🙁 whan hedge needs cuting My wee Cragie (ok he is over 6 foot tall) nips round and cuts it…[Read more]

Oh Tom

you are good putting in a new kitchen you must be very handy we put one in a couple of years ago got rid of loads of stuff now I wish we hadn't I love the sun but have to be a bit careful Geoff and I (my old husband!!):-P go for a walk each day in the evening at the moment we do 3 miles most nights I am doing well at the moment keeping…[Read more]

Hi Sharon

just caught up with your post I had the same symptoms with thalidpmide
so I stayed on a 100mgs which I managed quite well I went into remmission after four months april 2009 but I kept on with the thalidomide for a further year as after the intial treatment I seemed to cope with it until I got pn so had to stop . I shook at lot at…[Read more]

Hi Amelia
Your posting was near midnight,and I can sympathise how shocked and worried you must have felt,it is very hard when things start to go wrong,and by nature you must worry about it all starting over again.make sure you keep posting ,i often wish Slim was one of the lucky ones who sail through to SCT.

I cannot answer your questions,but…[Read more]

Hi Helen
I had my SCT in February then we had to wait 100 recovery days at which point they started me on Revlimid again. I am now in month three at 25mg and although tired and in some pain etc. not too bad considering what it is doing for me. As you will see above in my reply to Colin my paraprotien is at 0 at present – we just can´t quite…[Read more]

hello Dia

my husband has problems with his feet and legs due to diabeties so we bought one of these machines it has proved invaluable there is also a tens attachment for pain which you also might find beneficial

Love Jo x

Hi Bridget

great news to get your ankles back from that I take it your legs are much better my legs swelled up a lot on DEX that drug has a lot answer for one way or another I do hope you can get a holiday from it you will feel much better for a break, as for the weight as long as you feel well what does it matter

Love and (((hugs))));-)
jO X

Hi Colin
Just heard that my paraprotien is at 0 !! Can´t quite believe it and am hoping it´s not a "fluke". Glad the dex takes away the back pain – I have had that before the SCT (it made me think I had superhuman powers and was cleaning kitchens etc at 3 am in the morning) but not since – perhaps I could do with some now to perk me up!
It r…[Read more]