Hi Gina glad to hear your mum finally got started on her treatment you must be so relieved! Hopefully she will gradually get her appetite back and be able to tolerate food ok Gina your mum must be very proud of all of you and I am sure it must be a huge relief for her knowing you are fighting her corner!! lots of love to you both Bridget x

Dear Sarah if only I could do more than send you my love and a big hug I will be thinking of you.You and Gordon have been so strong together, I am sure your strength and positivity have kept him going as it will now Sarah Hang in there Sarah hopefully that slight improvement today will be an even bigger one tomorrow Love to you both Bridget x

Dear Sarah

My thoughts and prayers are with you and Gordon I do hope things will improve for him soon it must seem that tears are never ending chin up

Love Jo x

Hi Sharon I am so pleased your consultant was more willing to listen to you. It sounds as if the other doctor was sticking rigidly to the trial protocols rather than adjusting doses for your benefit In my experience of trials the overiding factor is what is best for you as a patient and although the protocols are there there is room for changes…[Read more]

So sorry to hear of you disappointing news. Dex is horrible isn´t? As if you both didn´t have enough to contend with. We live in Yorkshire so if we hear any thunderclaps we will understand perfectly.
Thinking of you and pray that your luck changes soon. Love Carol xxx

Hi Loraine
So pleased to read of you lovely, if unexpected news. How lovely for you and thank you for telling us as we all know that any good news spurs us on. Hope everything continues to go well. Carol xxxx

Hi,
Wow, I am so pleased for you, what a fantastic result. You have really encouraged me as I am at present on Revlimid (without dex)25mg and not feeling very well with it but if it works it´s worth it. Do you think they might reduce my dose – does the paraprotien have to be at 0 do you think?
Hope everything continues to go well and that you…[Read more]

Hi
Hope everything is going ok and you are getting on top of the routine – I found it very confusing to start with. Yours sounds very similar to my protocol and althought the steroids did make me feel quite upset and grumpy it has been worth it as I have come through the transplant well.
Very best of luck – if you feel grumpy you can always…[Read more]

Hi, only just read about your situation and was horrified. So glad you seem to be getting the right attention now but sorry that you have all been through so much just to get to this point.
Congratulations on your wedding – who needs money if your together?
My very best wishes to you all and prayers for your Mum that her strengh improves a bit…[Read more]

Hi, I had my transplant in February of this year and have not had "achey legs" (but still have a lot of back ache etc.) However, I too am very tired but suppose this will improve when I finish my current round of chemo. Has anyone retuned to their "normal" energy after transplant? – Suppose its asking too much but it would be lovely to think we…[Read more]

Hi Dai

Do hope you got some satisfaction today. So frustrating that your treatment is going well, but that it is your leg that is setting you back.

All the best.

Mavis

Hi Ozzy

Well I also went back to work Light duties after 6 months post stem cell transplant, yep i was tired but no probs with the legs, but have to admit I still get tired but am sure I will have to cope with it 🙂

I would see the Dr re your discomfort and am sure some one else will pop in and might have an answr for you

Good…[Read more]

Hello Eve

I was dissapointed to hear about Slims result do you think they have given you the correct information as it seemed he was doing so well it really cheers you up doesn't it! when some consultants say such callous things what Slim needs is positive things not negative I think you have drawn the short straw in what they call the post…[Read more]

Hello Gill
I really glad Stephen is a bit better and home again it nice when someone looks after you and cooks tempting dinners I hope he enjoys them
As for the Thalidamide my consultant told me of the costs when I started which I thought was a huge cost as it has been around for the last fifty years but I was grateful to have it the funny thing…[Read more]

Hello Ivan

I think some times alternatives are as good for the mind as the body I see no reason why you could not take some cumin along with the regular chemo as long as they dont fight I have also seen that cinnamon is another good spice that might help fight cancer if it helps do it the medical proffesion guess it half the time anyway as you…[Read more]

So sorry to meet you like this – we all understand how shocked you and your family must feel. I don´t know if this helps but I was diagnosed in 2005 in my early 50´s and remained very well until last year. Even when they decided we had to start treatment I was still working full time although I did feel very tired by then. Anyway, here I am, j…[Read more]

Hi Jet good luck for this week I m sure you will be home in record time just hang in there !! Remember not to try and rush things too much , your body needs time to get over it so rest when you need to !! love Bridget x

Hi Dai like Sarah I am blooming well gobsmacked at the date you have been given for a minor procedure that could save your life!! Good luck tomorrow , give them what for! Well at least my local has got a good system for DVTs and when it was thought I had one the scan was immediate even though I was brought in late at night !!Mind you they fall…[Read more]

Hello Jet

i also cannot give you any info about SCT as i havn't had one either but I will be thinking about you with fingers crossed for monday

GOOD LUCK and a big (((((hug))))

Love Jo xx;-) 😉