Hi Jo and Jean
I have been thinking the same,Min Angelina Bridget Dai even Tom .May be they have taken a holiday,May be no news is good news!!!!!.Enjoying the summer weather while it is still here.
Nice to hear from you Jean,and you Jo.best Wishes Eve

Jo I was wondering the same thing. Hope all is well with you Bridget.

Jean xx

Hi Gillian aka Gill C 😀

Good Luck with it all and you seem to be doing ok with it as for the sickness I was on antisickness tabs for months after my SCT, and the bowels am pleased its a distant memory 😎 yep Control never in your life I dare not go far from a loo after anything to eat or drink as it didn't stop long, Lord knows how I got…[Read more]

Hi Gill
I have to say as a carer I have mellowed,may be it is my age rather than Slims condition,to me this mm just puts things into perspective,life to short.So i have learnt to count to 10 before I speak.
Slims a different kettle of fish,has never suffered fools,when he comes off dex,it is highlighted a lot more ,not nice i find myself…[Read more]

Hi Shirls

sorry you are not feeling so good at the moment I hope it passes soon
how are your aches and pains from the fall, i know its good to be positive but I try but do have some down days
Keep well
love JO 🙂

Hello Scott
I see you may be taking the same route as me I chose not to have SCT as the full strength chemo could have finished my kidneys off completly. When I was diagnosed Jan 2009 I had really bad kidney failure due to MM my creatinine was 485 and I was on the verge of dialysis it is now (last reading 239 ) after CDT which I finished april…[Read more]

Hi Everybody

Sarah you seem to be going through the mill at the moment,were will you be going from here,is dex to build Gordon up for next round of drugs?.
Keith you sound if the whole lot is getting you down,but as you say there is always someone worse off than you,its just trying to put everything in perspective,Do we build are hopes up,to…[Read more]

HI Jeapal 23
Thanks for info on insurance,cheapest that I have seen,have been looking for awhile.
Hope to book something when we know results end of July also thinking of trying to make nz to see daughter so insurance is very welcome
it gives you so much to look forward too.
Hope you have a wonderful holiday. eve

Hi

Thank you for this. Just the information I needed.

Mavis

Hi Helen

Pleased you are finding the info Good for you all:-D and its great to hear about others that are raising money for the dreaded MM:-(

As for the Stem Cell transplant:: oh what can I say?? well to be honest I feel that is has been well worth the off days that I had during my "Recovery" and to be fair it was (cept the growth…[Read more]

Hi Claire

Min has explained it spot on. My hubby was diagnosed 5 years ago with smouldering myeloma and the only treatment he has received is Zometa. That was right at beginning of Diagnoses. He sees his consultant every 2 months and is monitored very closely. He gets what he calls "power failures" and just goes to sleep. I think we are very…[Read more]

Hello Peggy
So sorry that you have joined us – but at least you know what your dealing with now and this site is a big help – just about the only place you can have a "little rant" as everyone understands completely – were all in that place at times. It´s difficult to let off steam with loved ones as you don´t want to upset them any more than t…[Read more]

Hi Sarah

Sorry to hear Gordons second sct didn't work! although kevs on his 1st it's always a worry, they are doing great things with all the drugs and I'm a big reader of the forum and take note of all the good things you all write and take comfort from it all, hope it come right keep positive and I'll be thinking…[Read more]

Hello Peggy

Rant away we all feel like that especially when first diagnosed and on steriods! and yes there will be people who dont want to know you now but they are not worth worrying about just appreciate true friends. SCT is stem cell transplant
my kidneys were too bad and I didnt want to risk the agressive chemo which you have to have with…[Read more]

Hi All

Just to let you know I only eat Cucumbers in our Cyber greenhouse, I cant stand the things ha ha.

But the Red wine now thats another story oh and the Vodka I was given a bottle of Vodka with lime, just tasting it tonight and its very nice and refreshing (and i aint in my Cyber greenhouse)

Hope you all have a great Week End :-D…[Read more]

Hi christin

Looks like your Dad's team are doing a great Job for your Dad 🙂 as for your Dad not being able to concentrate I was same after some of my first lot of treatment and when i told my Nurse that "The Brain's Gone" she laughed and told me I had Chemo Brain see this Link…[Read more]

Hi Sarah and Mum

Sorry you had to join but am pleased you found us, we have great people on here that can and will help you and your Mum through all this MM stuff, sorry am not in sam area, am in Scunthorpe North Lincs.

Good Luck with your Mum's treatment and I hope all goes well.

Tom "Onwards and Upwards" xx

Hello Sarah

so sorry Gordons SCT didn,t work it must have been a hammer blow on the positive side new drugs are coming on line all the time, look at Mins post good old CDT is working for Peter second time around so don't lose hope
Love Jo