Hello Meike and Christin

Glad to see your dad at least got out on his good day,Nhs supplied me with wheelchair for Slim,but I bought a light weight one from Halfords much easier getting into car.I know men are not keen on using it,but we would not be with out it now,and Slim has got use to it.yesterday we went out for 5 hours just packed the…[Read more]

Hi

Hope everything goes well – thinking of you.

You are so pretty I think you will look good with or without hair – lovely bone structure!

Best Wishes

Carol xxx

Hi Kay

You must be so disappointed ,its not easy when you build yourself up mentally to have the treatment,i know you started treatment in January,many of the others who started treatment about the same time, are now approaching sct.
Slim started in February sct has not even been suggested!!! will be end of July before we see…[Read more]

Hi Min I am so glad you are enjoying your gardening , if anyone deserves a break you do!Perhaps Peter needs a kick up the backide , I bet he doesnt even realise he is being a brat!!So let him fend for himself a bit , even if its only a few hours and I am sure he will realise how lucky he is to have you looking after him. You said you think us…[Read more]

Hi Dai like youI have not had a full nights sleep since being diagnosed 5 years ago!! Apart from the fact that I have to sleep in a semi sitting position I rarely manage more than 2 or 3 hours a night! Mind you I can cat-nap with the best of them ,and Jeff watches me like a hawk sometimes ( I have been known to drop off despite having a cup of…[Read more]

Hi Colpot

Am sure your story will give us al hope that the light is at the back of the tunnel, well done and good luck

Tom "Onwards and UpwardsW

Lol its a good un Gill, nor can I cee whi they av bloked it ether ha ha.

Tom xx

Hi Carol

Well a well done you for getting more back that you felt you had lost 😀 its something that would have come natuarly to kick downon the horse to let it kknow who is the boss, well done you.
Good to hear you are back into taking not just your own but Hubbie's horse out, its anothe step forward:-) to as normal as we get with MM :-S…[Read more]

Hi
No wonder your emotional – after the ups and downs you have had just lately I think your allowed!
My lead up to transplant didn´t always go quite to plan either and I feel for you having to take the dex again – bad enough that your hyperactive (I was rather aggresive too which is really out of character for me) but it was knowing that when…[Read more]

Hi Debs
I wonder if we are both on the same trial Myeloma 11? I have had my transplant and am back on Revlimid now (looking back I think I tolerate this better than I did the Velcade that I had for a couple of cycles prior to the transplant.
Anyway, hope the side effects are wearing off – I do get tingly feet and hands but not as badly as…[Read more]

Hi
I had Velcade to get my nasty boy count down for a couple of cycles before my transplant. I coped quite well on it – expect your mum is on it by now and you are finding out for yourselves.

Anyway, good luck to you and your mum – I´m so pleased you have each other.

Very best wishes to you

Carol xxx

Hi Tom

Hope you are keeping well and enjoying your remission – we are lucky to be here arn´t we?

Thanks for a lovely, cheerful and positive note – so very welcome! Just to let you know that I rode my husband´s horse yesterday who hasn´t been out of the field for a year and didn´t really see why she should have to leave her buddy (my hor…[Read more]

Hello Peter
This method is widely used in America it sounds a much better system
I have a friend who attends a local clinic with me in Stevenage she is on velcade at the moment she asked the consultant she sees who is the head heamotogist about having this method she said that she had never heard of it!!! thats a big worry,as it happens we are…[Read more]

Min

You are brilliant dont know how you cope especially with not much sleep you must feel you are going up the wall at times I know what you mean about 4.30 in the morning if I wake up then my mind goes barmy well perhaps I am barmy!

Love Jo 😛 xx

Dia

what is a good night sleep since I have been diagnosed with renal failure I have to get up twice some times three times a night can get off again some nights but others its tossing and turning for hours I get three hours good sleep then it all goes to pot but at least I am not on dialysis, keep drinking "THE WATER!"
lOVE jO 🙁 😉 X

Hi Vicky

Well as for the CDT I was on that and got weaker and weaker as the cycles moved on so much so I had to pack in work:-( but hey its not all bad newa a year later after a succesfull Stem Cell Transplant I am back at work (still on light dutie.s) but hey its work and Money 😀

I got better with the CDT as my cycles went along and was…[Read more]

Hi Carol

Great to read about your remission:-D I have ben in remission for some time now, but it never made me want to get on a horse? yep am over 5'10 and the scare me to death ha ha, gosh they are so big and scary.

Am also with you Carol if you love it this MM cant stop you doing it and as you say its just at a differant pace :-D…[Read more]

Hi claire

Sorry I cant add to your post cept to say

Good Luck to your Mum in her treatment regime, and am sure some one will know a bit mmore about it.

Godd Luck

Tom "Onwards and Upwards" xx

Hi Meika,Christin and of course David

Like all the others above I also welcome you to this wonderful site.

You all have had some great advice fromthe others that at the moment all I can add is:::; take it one step at a time, and when David want to rest let him and not forgeting you two Mum and daughter you both also need to look after…[Read more]

Hi David
That is wonderful news,you must be feeling so high,and its great for us to see someone turning that corner,Champagne is the order of the day,I can see you now cruising up the Rhine sun setting sitting in the stern with a glass of champagne with your lovely wife,thinking isn,t life great,just wish it was me in my moterhome on the bank…[Read more]