Hi Wendy so glad you are home and feeling better There really is no place like home is there Stay well love Bridget x

Thankyou everyone for your support as always it makes the world of difference My lovely and very wise Macmillan nurse came today and has suggested increasing the Oxycontin to 70mgs morning and night plus increasing Severadol to30mgs Fingers crossed it works She was rather annoyed with the doctor for ignoring her other reccomendations for patches…[Read more]

Hi Bridget

Sorry to hear bout your pain:-( bit of a Begger this MM, hope you get sorted out 😀 and the pain is reduced.

Love and Hugs

Tom xxxx

Hi Michelle

Sorry to hear about your Mum and the setback she is having.

I also am chuffed the Dr is on the ball and sorting your Mum out 😀
Catcha Lata

Love and Hugs sent to your Mum (oh and one for you Michelle 😀 )

Tom "Onwards and Upwards" xxxx

Hi Jess
And sorry I cant help on this one? just wanted to wish you well, and add you could poss phone the Nurse and ask them am sure they could help on this one.

Hugs

Tom xx

Hi Wendy

Welcome Home (as they say) am pleased it was only a holls bug 😀 (am sure i said that Ok:-/ )

Good Luck

Tom "Onwards and Upwards" xx

Oh Roz

your suffering as much as the rest of us I do wish I had a magic wand to make ir all go away you must miss micheal so much you was with him such along time my prayers are with
Love Jo:-)

Another good one Dia:-)
love Jo 😉

Roz

glad to hear from you I hope it is not too much of a struggle on your own
what sort of disability do you have can you get more care in your home for your needs please keep in touch
Love and prayers Jo x

Hello Jess

I am not sure about coming off dialysis they told me it could be possible when I was diagnosed I had a GFR of 10 nearly went on to dialysis but had a slight improvement possibly due to the high dose of steriod I now have about 20-25% kidney use so your mums kidney could improve enough to avoid it i was 61 when diagnosed

Love Jo x

Hi Michelle sorry to hear mum has had setback but it sounds like her doctors are on the ball!! I am also on Revlimid and I have been told Cyclo may be added if Revlimid beomes ineffective on its own Could the P drug be Polpomanide( not sure of spelling ) if it is Gaye is on this one I believe. Good luck but with your positivity and your mums…[Read more]

Hi Sue just want to wish you luck for Friday I hope they come up with a good treatment plan . Crossing fingers toes and anything else for you love Bridget x

Hi Roz
I feel like a naughty school girl,the first time i thought what an earth have I said,because I do not swear normally,I was upset by the whole thing,and thought,have i offended someone.
The second one ,was saying H-e-l-l.Tom told me how to get round it,but you have to question ,who would find it offensive
Glad you seem more upbeat…[Read more]

Wonderful news HURRAH what a day, you must be so relieved even with a bit PN as for the 8.3 I have not been above 10 since I was diagnosed I have sort of got used to it although 10 o'clock at night is my witching hour had it by then, went to the renal clinic today kidneys still stable so that was one worry over for another month i always get…[Read more]

Well Done that Dai and Janet "the gun jumper" as for playing the guitar later trust me Dai I aint got PN and I still cant play a note he he.

Keep it up and Good Luck and well done to you all

Tom

Hi Colpot

Thats good news 😀 and am sure you are very happy with the reduction.

Its great when it all falls into place 🙂

Tom "Onwards and Upwards"

Hi Wendy

Hope you are getting better as a few days have passed, and find out its just a holiday bug 🙂

Tom xx

Hi Onlyme

Good Luck to your Mum on the next course, I cant add anything to this one so far as i had SCT after CTD

Good Luck

Tom "Onwards and Upwards" xx

Aww Angelina

Lol no need to say sorry bout the name change he he (it cost more by deed ha ha)

Hope (scroll up and check?) John is doing Ok 🙂 and you should look at John and see if he looks like a "Steve" he he.

Dont you worry about having a Laugh at My and "Steves" expence thats what we are here for Ha ha.

Hope you soon start the…[Read more]