Hi

I agree with Dia sorry your post got lost dont be a stranger you will find this site so valuable Try the myeloma uk help line they will be able to talk through a lot of your problems
Love Jo

Hi Min
I have acid reflux it can be awful i take a small dose of omisaprol daily which seem to hold it in check if i do get it srange as it will seem all i want to eat when i get it is heinz tomato soup i seem to be able to tolerate that.
As for hair loss my husband lost his naturally he hated at first but now he is ok with it his brother who is…[Read more]

Hi Min

He will not let me stick anything up his bottom LOL he must be getting better his dignity is coming back,!!!!;-)
Seriously Min its a bit of a fight with Slim,he takes so much,just does not want to try any more,looks if its starting to work,should do drinks it out of bottle>:-(
As for weight gained some then had v&d and lost it.Sorry…[Read more]

Hi Pat and Jane
Min and jo ,s advice is good,just want to add it is important to drink a lot of fluid as you need to clear kidneys,to be honest your mum seems to be doing ever so well,it must be hard living on her own,if i am correct the nurse on this site can put your mum in touch with some one with same condition,ask Ellain ?

Might be worth…[Read more]

Dai
I have thought about it Dai,do you remember my old post[can I have a moan]that other eve ranted and raved,had high blood pressure,needed a g&t to calm down,everything was so inefficient,time wasted,and do not get me wrong Dai it still is,but it has become the norm,and I have got use to it,we still wait hours for tablets,we have appointments…[Read more]

Hello Min

How you can think to write so much in one go is marvellous I am glad to see it looks like the thalid is starting to work for Peter lets hope he gets a good long term result this time 🙂
Love Jo x

Hello Eve

How is slim doing now is he feeling any better and putting on weigh and back on the treatment it a shame we have had such bad weather because a drop of sunshine would probably do him good
Love Jo x

Hello Jane

I took thalidomide as part of the CDT regime I found that if I took it last thing at night and the steriods first thing in the morning I managed to sleep most nights I am afraid constipation seems to be a common theme with any of the treatments I found prunes and figs helped but some times had to resort to movicol which can be given…[Read more]

Angelinax

Nice to hear from you I am glad John is feeling much better perhaps you will be able to get him home soon and back on track

Lots of love Jo 🙂 😉

Thank you Dia and Eve

for my birthday wishes. Dia i Will look forward to a happy birthday song

Love from Jo xxx

Dai I know exactly what Eve means. I have not quite reached that point and after reading your post, I hope not to. Once again your words have hit home.

Thanks
Love Jea xx

Dai

Love the song ,it,s lovely,glad to here your feeling better after your poo problems:-) ,Its nice to wake up in the morning and read your post brings a smile to my face
Angelina.have been wondering what was happening with you and John,not a good time for you,glad things are improving,Slim and I laugh about him seeing long legs in riding…[Read more]

hi Gina
Hope you mums out and is on the mend,:-)

MOnday,Tuesday and Wednesday at doctors,no infection,but blood counts done,changed doctor in practice,feel someone is listening to me at last,
Slims gone from one extreme to another from D&V and general feeling ill and BP low.Now feels much better,but no bowel movements since Sunday,been dosing…[Read more]

Dia

what a nice song for my birthday on the 14th the bealtes wrote a good one about my age 64

Love Jo x:-) 🙂 😉

Hi Willywinkie (great name Lol)

Am very pleased your Dad is home and you are all geting used to the words chemo through to stemcell transplant, we all have got used to them though am sure that they still scare us at times 🙁

As for the words that you read on here being an Inspiration:-D its story's like your Dad's that inspire people what…[Read more]

Hello norman

I use MIA can be found on the internet phone no 01268 783383 they covered my husband and myself
for Gran canary for £120.00 that was for both of us I have mm and chronic renal failure and we are both type 2 diabetics covered us for everything as long as we had docs permission to travel
Regards Jo

Hi Norman

Over the past few years we have used many insurance co but the last 4 trips we have used Columbus. They have cut our policies by half. The even insured a young friend of ours for america and she has just finished some pioneering treatment for heart complaint. Might as well ring around to see what you get. Number is 0800 953 3660.…[Read more]

Good job you didnt explode we might have found bits of you in hertfordshire
lesson well learn if they prescribe something they think you just might need it so glad you are home and feeling empty;-):-)

Love Jo x

Haha Long Live Movicol !! It is a lesson I learnt fairly early on Dai as I am on large doses of morphine as well But oh the joy of success is a wonderful feeling and to have working taste buds too!! You must be in seventh heaven long may it last!!! love Bridget x

Hi Gina

Consultants often have brains but no common sense,sad but true.:-P

Glad to here your mums on the mend,and I hope the treatment goes well.
Been to doctors this morning,looks if Slim has infection,just waiting on results.should know by 5 this evening.
best wishes eve