Hi Shirl

Am pleased you Like our (bridgets and my posts) cos I feel if you can smile nay Laugh in the face of adversay you have it half beat 😀

Hope the Robin gets (sorry thrush anm not that good with birds?) better.

Hope it is soon better

Love and Hugs

Tom "Onwards and Upwards" xxx

Aww Thanks Jo 😀 but you know as I am the "Onwards and Upwards" Guy you dont have to worry for at least 10 years 🙂 and that should take me top one year off retirement (thanks to the goverment)

And hope I aint takinf this post over :-/ how are you doing Jo?

I can also be contacted on Face Book "tom lappin"

Hi Renee and Ada

I am not on any treatment at the moment (so that should make you feel better) but some one that is on the same stuff as your Mum will drop by and give tou some advice 😀

Please dont read Chrissie's post and think the same is for your Mum as we are all on differant treatment and react in differant ways..

Love to your Mum…[Read more]

Hello chrissie, just been reading your post sorry to hear your news but like everybody on this forum find it a great comfort with good advice and a bit of humor aswell, these first few months of treatment are hard and also wondered is it worth what they have to go through, in our case in the beginning I would have said the same as you but now…[Read more]

Thanks for that Jet
our you ok and ready for your SCT been looking at your blog Good luck
lOVE jO X

Mavis

I didnt get to much bother with CDT a bit of DEX moods (ask my husband) and a bit of constipation last months bloods were paraprotien in a band to fient to measure so I expect than means 0 at the moment lets hope fingers crossed it lasts
Love JO X

hello Dia

I am not on any drugs for mm at the moment just sodium bicarbonate and alphacalcidol plus a 4mg steriod all for my kidneys. I had 2 pulses of DEX on their own then 4 pulses of CDT which put me into plateau this was from jan 2009 to april 2009 then i took a small dose of thalidamide for a further year no problems until PN set in…[Read more]

Hi Jo and all

I'm interested that your MM has plateaued. What numbers are your Para protein on? I haven't started treatment yet and I'm very committed to the theory of "as little as possible and as late as possible" so i found Patrick's blog encouraging.

I do worry about the different stories I hear about CDT. I'd love to know what…[Read more]

Hi Jollyroger and Chrissie

If its any help to you,I will tell you,I will tell you about my husband,
66 years of age fit and young looking,6ft 1 and 14 stone,4 cycle of ctd.now 5ft 8 and weights 9st 8lb.looks 20 years older.Had septic pnuemonia not pretty,but he is alive and improving every day although slowly.

It hard to cope with,I thought…[Read more]

Dia
I agree about the dosing I have been reading a lot of stuff from America and the conclusions they come to are most people are over dosed just because it is the recommended dose. I go to UCH once every four months and they are doing a lot of work with people just giving weekly doses of Velcade and coming up with good results they also said to…[Read more]

Dia

big mac mmmmh sounds more like a safari than lunch lucky there wasnt any seagulls they might have mugged you they seem keen on MCD'S 😎 Janet must love your small suprises what will you think of next

Love Jo;-) x

Hello Chrissie

I think the treatment which is chemo is very agressive and can leave some people really down, ill and depressed once it starts to work you feel a whole lot better but it is a struggle at first as for the shakes i had terrible ones due to kidney damaged cause mainly by to much calcium in the blood they gave me chemicals to get it…[Read more]

Thats alright then you had me worried for a while

Love Jo;-)

Hi Chrissie I can understand how hard it must be for you to watch your husband having to go through treatment and there is a time where yhings seem worse But this is usually because they need to hit the caner cells hard to get rid if as many as possible as quickly as possible If he is now going to have Velcade I would think they must be reasonably…[Read more]

Hi Dai

Oh boy sounds such a lot of work. I wish you the very best. I AM WITH TOM!!

Love Jean

Babysteps, cant wait for the real thing 🙂 I can make tea 🙂 and offer crisps for sale cos MY voice is well dont ask he he.

Good Luck Dai

Tom "onwards and upwards"

Hi Dai

Well its not far from Nottingham, click here :::::::: http://www.danbrit.co.uk/pdfs/flixboroughwharfbrochire.pdf

and take a look, my job was in the Steel Terminal, before I got MM and went on Light Dutie's, it will do me for 10 years the retire (if they allow me to continue on light duties)

Our Company run about 6 wharfs (own 3 and…[Read more]

Hi Jollyroger

So sorry to hear about your Mum's MM 🙁 but you have picked the best site going, for up to date news, advice from great people that are going through have gone through what you and your Mum are.

Yes your Mum is going to need help as she goes through her treatment (the more the better)

At this early stage the best advice I…[Read more]

I'm so sorry to hear about your mum. As the other have already said, you probably won't know for a while how this is going to affect her life and yours. I can't offer much advice on treatments and stuff cause I'm lucky enough to asymptomatic still. But I do have a mum (!) and I am the only one for her. She used to live very far away and I used to…[Read more]