Hi Dai glad to hear your Eeyore moment is passing , you really would be superhuman if you never felt down and I know what you mean about pain v sickness give me pain everytime too!! Heres to a better day tomorrow but if you do still feel lousy ring your docs it really isnt worth suffering in silence and perhaps a small adjustment to the dose…[Read more]

Hi Sarah sounds like the perfect sunday morning to me !! 2 year olds are the best company ever arent they Did you hoist her over the fence to scrump the beans> haha Whatever happened to scrumping ? I bet its likely you would be arrested now but when we were kids everybody did it and most owners were glad to get rid of a bit of fruit off their…[Read more]

Hi Marian I think you are wise to get as much info for your dad re trials to help him make his decision The trouble is there is so much info it can be difficult to take it all in beforehand but as your dad starts his treatment it will all fall into place if you know what I meanWhether or not your dad is on a trial there will always be someone to…[Read more]

Hi Marian

The myeloma x1 trials are for patients who have not had chemo.
You do not get choice of branch you go on name fed into computer my husband got ctd side other side is rcd'

1 one or two possible chemo potions

2 one or two consolidation options

3 one or two possible maintenance treatment options.

You can come off the trials…[Read more]

Hi shirls

i think you must have nine lives dont use up toooo !!!many at once, glad you are recovering well it must have been a great relief it didnt trigger the MM again

Love Jo 😉

Hi Marian

Well its been said before "Vent away" Girl

Now what to say about your problems?

What would I choose if I was 72 to be honest (and i have read this many a time) I would go for the standard treatment, as I feel that it works and I would want a Quality of life whilst going through my treatment (well as best it can be) and its a…[Read more]

Hi Gina sorry mum is feeling rotten and it must be very worrying for you At least at UCH they are very good at getting a plan pf treatment together quickly But if the breathlessness continues I would ring them on Monday , they may be able to ease it before she sees the consultant Please give mum my best wishes love Bridget x

Dear Shirley you poor thing !! But I must say you certainly know how to have a dramatic mishap, beats me falling down the manhole by a mile !! Seriously though make sure you take it easy let everybody else look after you lots of love Bridget xx

Dai

What wonderful words and beautifully sung. Had a little cry.

Keep up the good work.

Love Jean xx

Hi Gina

You rant all you like,I have done alot of ranting on this Forum,it does feel better once you get it off your chest,and it gives the people on here a chance to support you,it must be a worrying time for both of you.
I can only speak for myself but so many people have helped me,and I am so grateful.[ it is my husband with mm ]

At…[Read more]

Hi Eve yes you are making sense!! Thats exactly the sort of thing that happens to me usually Put us out of our misery Sarah and tell us your good news !!love Bridget x

Hi Bridget

I am curios too,Sarah posted on Off Topic,subject happy days,I replied,but got mixed up I thought Sarah was Gill,so reply did not make sense.I cancelled within a minute when I realised my mistake,went back to post,in left hand corner it says edit/delete so i did delete my post.then received post from Sarah looked and whole thing has…[Read more]

Dia

dont give up, never has a truer song been written 😉
Lots of love Jo

Now I am consumed by curiosity!! Sarah what is your happy happy day please tell? The gremlins are buggers arent they Eve , I am surprised it hasnt happened to me !! love Bridget x

Hi Sarah

Ido not know!!!!!!!I realised I was posting on happy happy days,got mixed up between you and gill with that thoughtful grandchild,so I deleted my bit.Just caught your reply,looked at it and it has gone,did not think I could do that,so so so sorry.
I only deleted on my bit were it says amend or delete may be I have a and error in the…[Read more]

Hi Min

Just to let you know my thoughts are with you,wish I could offer more. Hope you find sometime in your mind to stop thinking about it all.Planning that kitchen might just help you hold thing together,Its not a nice place to be in at the moment.As you have helped and told me so many times, we do get past these awful times,Peter must be in…[Read more]

Beautiful words Dai we all need a friend like that at some point. I count myself very lucky to have people in my life who would always be there for me and I for them love Bridget x

Dia
please keep going I love the songs I dont think anyone would mind
Love Jo;-) x

hello Gaye

I hope you are ok and got on well at the hospital thinking of you

Love and hugs JO xx

Hi Eve great idea bother the housework and have a lovely relaxing day!! I think that although you arent the one with myeloma you have the hardest job, I do think my other half has to put up with a lot of stress all I have to do is be a patient !! I encourage Jeff to go out and do things that are nothing to do with me or my illness for his sanity…[Read more]