Hi Ali and Guy

Well am pleased Guy's problems are on the way to being resolved, the bone thing am not sure what if anything Guy is having to help with that? as Bridget says two drugs are used (that i know off) and the one I am having is the Zometa, and that in itself gives me no problems or side effects 😀

Please dont worry about throwing…[Read more]

Hi Gina the fact that there is no sign of anything in your mums bm is great , I think this is a more important marker than pp levels which can fluctuate Chest infections can leave you exhausted for ages and I think the power failures is very apt, I can now fall asleep at the drop of a hat during the day!! If the docs arent too worried at this…[Read more]

Hi Gina

My husband diagnosed sept 2006. He is not on any treatment. His protein went up to 31 and then dropped to 24 started to rise again and now is 28. Dr said that would not start treatment as other bloods were within range and kidney function was good. She sent him for MRI scan three weeks ago but have heard nothing yet. We also go back in…[Read more]

Hi Ali sorry to hear Guy is having such a tough time but hang in there There are various treatments to help with the bone damage, I have extensive bone damage everywhere except my left arm and left thigh They may give uy a drug called Parmidronate or Zometa which helps strengthen the bones and relieve pain , this can have an amazing effect quite…[Read more]

Hi Dai

So glad to hear the frightening tumour has taken flight. It gives me great encouragement to know that these drugs actually do work in spite of all the side effects which terrify me. It will help me when my time to take them comes.

Do hope things continue to improve for you and that our "bard" continues to be inspired!!!

All best…[Read more]

Well Dai

What can I say :-/ Lord knows I wanted to say something but couldn't:-( I am so pleased that you Dai helped the likes of me in putting it across with feelings from our hearts, Lord how the tears seem to come easy 🙁

Love and many hugs

Tom xxx

Welcome Ali and Guy from me too. Have just picked up your post.

It is all such a shock at the beginning and most of us had never heard of MM before diagnosis, and as you say, all the jargon is mind blowing. I still ahven't got my head round it all.

However, I do commend this site and urge you to ask whatever you like, or say whatever you…[Read more]

Oh Dia

such beatiful words you can give a voice to what others think

Love Jo x

Welcome Ali and Guy

SO sorry you had to join this club it has been a great comfort to me as I am sure it will be to you when you are in the darkest places there is always someone with advise and comforting words I now its hared to find anyone in the big wide world that has heard of Myeloma that is why this site is so important

Be strong love jO 🙂

Hi Annika

Am pleased your Husband has coped ok with his line of treatment and just go with the flow, both of you rest when you need to and dont do too much, as for the steroid's My young bride Elaine says that I was OK with the effects 😎 or was she just too kind :-/

Good Luck on the treatment, mine went smooth (ish) and Like Kathleen's…[Read more]

hello annika

I had cdt treatment I was 61 I tolerated it pretty well except the emotional bits with the hated DEX I have had MM for 2.5 years now or that was when it was diagnosed I am sure I had it for quite a bit before that there are people in my clinic about your husbands age who are doing very well on the medication so hopefully he will be…[Read more]

Hi Mike,
Do you know what….it is probably quite good that you aren't caught up with figures….they're the bain of my life…lol!!! But that's great news that your team are all really pleased with the progress.

I wish I got the dex effect sometimes…could do with the energy rush…but then again, I don't get the 'devil' dex effect either so…[Read more]

Dai as always you have found the beautiful words to say what so many of us would like to . I hereby nominate you as our resident wordsmith, I would have said poet laureate but I think someone else got that gig love Bridget x

Hi Dai
I loved the lyrics ,now we need the music,so enjoyed your last piece,we are not going to let you slip off with any angels Stay with the angels on this site,we need you.:-)

dear Ali
Sorry you have had to start this journey,As time goes by the medical side gets easier to understand,and you will find this site helps with a lot of the general stuff that comes up with mm.,there will be someone ahead of you in this journey,who knows what you are going through,and no matter how good family and friends are,its the person…[Read more]

Hi Marian

Your welcome.

I hope when you read these post to your Parents it helped them at this difficult time.
Stick to this site its the best honest and true with few scary bits.

I take no notice of the "life Expectancy" as we have new drugs popping up these days 😎

Catch you Lata

Tom "Onwards and Upwards" xx

Great news Dai 😀

And for those that are or might go onto that drug regime am sure it will put them at ease 😎

Once again Dai Well done:-D

Tom trying to sing:-/

Hi Eve brilliant news I am so glad Slim is home where he belongs . Now he can start to get better and you can relax knowing he is safe with you looking after him Dont wear yourself out though , make time for you as well love Bridget x

Wonderful news Eve

so glad slim is home you can build him up now you can feed him on all the things he likes, you really do find out true friends in times of trouble dont you, sounds as if you have some really good ones
Keep us posted

Love Jo 😎

Hi Eve

Wonderful news that Slim is now home with you where he belongs. I hope he goes from strength to strength. Glad that you haave such good friends that are able to help you, just make sure you look after yourself.

Love to you both
Jean xx