Hi
thought you all might like to know,low blood pressure,indication of infection,it was not picked up on at a&e on Saturday,as dexi managed to hide the infection.Sent home what happened to this extra care for taking part in trials !!!!IF I had not phoned for ambulance Slim I dread to think what position we would be in,I would never have forgiven…[Read more]

Dear Mary thankyou for your post you really are an amazing woman , full of compassion for others I am so sorry your dad has gone but reading your post helped me understand how important it is to be with loved ones and to hear he was pain free and comfortable and able to talk to you all made me think thats about as good as it gets Sending lots of…[Read more]

Hi Kay yes I think you are right about a new name , that will keep me amused for awhile !!Perhaps others would like to add their suggestions . Kay I am really sorry I havent posted your hat yet , I have the memory of a goldfish , I will post it on Tuesday promise How are you feeling ? Hope you are enjoying the mini summer love Bridget x

Hi Min good to hear Peter is feeling better and great that his back pain has eased up too Theres a lot to be said for sunshine, recently I read about a couple who moved to Italy just to get the relief the warmth gave them from their bone pain Not sure I would do so though , far better to take lots of holidays in the sun, I am not so tired all the…[Read more]

Hi Chris I am so glad to hear you have got the all clear at last!! Bet it was driving you crazy especially with the weather being so nice My chest infection did go but I think there may be another on the way , possibly something to do with loads of mucus and I blame Revlimid Still I dont feel too bad adter the first week of the course now and…[Read more]

Hi I am not sure I can offer any useful advice really but a count of 12 pp is not too high .I am sure your mil doctors will be looking at the right time to offer more treatment, they were probably waiting till after the radiotherapy As far as I know radiotherapy does not affect the paraprotein levels . It might put your minds at rest if you ring…[Read more]

Hi Dai good luck with the velcade issue , if we all ask about the sub-cu then maybe they will hurry it through here ! love Bridget x

hello Dia

Good luck for your next appointment hopefully you might not be at that stage yet:'-( I had a clinic appointment today and saw a nice new registrar He was Italian and we discussussed various things they are more advanced in Italy and have been giving velcade as a first line treatment for ages he said they also have had success with…[Read more]

Good luck from me too Dai…hope you manage to persuade him….I'm wondering about asking Prof Morgans team when I go in next week as I already have PN from velcade…mildly I think (numb feet, and now slightly painful calves and arm muscles!), but I'm only on cycle 2 and you don't normally get anything till cycle 3 plus.

But I think I know the…[Read more]

Joe let us know how you get on.
Jean

Hi Shirley happy easter to you too love Bridget x

Hi Joe I am so sorry you are having to deal with all this but thank goodness your mums tests were negative As for your own tests I agree with Jean and Gina , tell your mum and dad they probably sense something is wrong anyway. Dont bear the worry all on your own share it with them , they will wnt to be there for you just as you have been for them…[Read more]

Joe I am so sorry to hear of the situation you find yourself in. I can understand
how you feel about worrying your parents especially your dad. I can only give you
my feelings on it as a mum of four sons. I would be very hurt if one of my boys was
going through what you are on their own. Maybe you can tell your mum and let her
decide if your…[Read more]

Thanks Min
Will try 7up,,does not like flavoured water,a little bit better today although still not eating drinking small amounts.

Hospital tomorrow for bloods,the unit will open tomorrow,so I am going to ring first thing,see if doctor will see him,needs fluids inside him.
not so confused today,energy levels zero.
The problem with him,is he…[Read more]

How many ciders?,you enjoy them and have one for me

hi Eve

Men are so bl**dy difficult you must be out of your mind worrying dont they know its for there own good
Hope you have a better day tomorrow

Love Jo 😎

thanks Jo
Have managed to get rehydration powders and some energy drinks which I am mixing with drinks,that he likes.Also find straw is helping ,every 10 min I make him have a few sips,seems to be working,plus the threat of hospital,
First time Slim has not got out of bed,

Thanks again jo,it brings it home how this mm reacts so different on people

Thanks for reply
Hard to get fluid in Slim,has been so good about it for last 6weeks,has a sore throat,as drugs attack soft tissue,I know this is going to be a hard time,but the low bp is it normal ,
My daughter has found a chemist open and managed to get rehydration powder,plus energy drinks,having to put them in other mixers to make them…[Read more]

Hello Dia

Poms Poms and bells we have to fight to live which is what us friends on this site are doing it would be great to meet everyone I think we may all be a bit spead out we need a central point, keep up the fight Dia how about another poem I used to look forward to them

Love Jo8-)