Oh Bridget and kay,

So similar!! I've gone up 1-2 dress sizes no matter what exercise I manage to fit in on the odd good days I have. And whilst I eat, I don't feel I overeat massively….occassionally yes (it is that taste thing isn't it Kay….awful!) but not loads. I am hoping some of it is water retention.

And like you Kay, everyone…[Read more]

Just a quick update for anyone who is on the Myeloma XI trial/ interested in Velcade treatment.

I've just finished the first two treatments of cycle 2, and got my cycle 1 paraprotein results back….have gone down from 27 to 15, so I am over the moon, especially as my consultant had warned me that I may well not see a decrease in the first…[Read more]

Thanks for your responses guys!

I will let her know what you have said and perhaps suggests she just checks out normal sinus remedies that DON'T have ibuprofen in them

Cheers
Debsx

Hi Debs you are certainly not alone!As for the weight I have been size 10 -12 for years even into my fifties but now I am a large 14 and so peed off with !! Its now getting to the point where I cant face going out Trouble is its so difficult to get any excercise as my back causes problems and lately I have totally lost my get up and go!! Moan over…[Read more]

Hi Dai

Did you enjoy the info day hope it did not make you too tired I hope you found it informative and relaxing and well worth going to if I am ok I will go to the London day in October

Love Jo 😛

Hi only me

I think there might be something in the hereditay link in the clinic I attend ther are two sets of brothers with MM plus a gentleman whos father had it a bit more than a fate

Love Jo

I am so glad that it is not just me!!!

I have got so fed up with the hairy top lip that I have been having electrolysis on it for the last few weeks….No offence to men, but I am fed up of having more hair than my beardless wonder of a husband!!!

Sadly, can't deal with the weight gain in quite the same way, but nevermind!

xx

Hi Dai there was a post on here regarding the sub cutaneous injections for velcade Sorry I just cant remember who it was , possibly Keith If I remember he had asked also and was told it is not being used here Hopefully Keith or whoever it was ? will see your post and answer Hope you are doing ok love Bridget x

Bridget

Peace of mind,goes a log way,it,s not just the money side of it.It is being treated if it is nothing to do with you after living together so long.The bottom line is you have no rights.
eve

Hi Sandie

Sorry cannot help with pp levels.all different,can say the x-ray the whole head,It is all put on the computer and will be there for your appointment.I know this as my partner has lesions on skull.It shows up better on ordinary x-ray.The mri scan shows better on small bones,they do not x-ray hands or feet.

Hope this gives you some…[Read more]

Hi Eve you have certaily made me think I need to think about my own situation . I was married and divorced very young but Jeff and I have been togetther for 28 years now , like you it has never bothered us and we are as married as any couple can be . I hadnt realised how difficult it could be for him when I shuffle off my mortal coil So now the…[Read more]

HI jo and gill

If truth be known I am making a honest man of him LOL.I use to tell him during are heated moments that I would marry him just so I could divorce him.

For years everybody thought we were married,just presumed,with Slims illness I have found I have had to justify myself,Having to explain are arrangements to strangers,[new laws…[Read more]

Dear Mary and Theresa it so sad to hear things havent worked out for your dad , my heart goes out to you .I am glad you felt able to ket us know and we are all here for you Your dad must be a real fighter and having such a lovely family must make it easier , you girls have been brilliant and if you were mine I would be bursting with pride But…[Read more]

Congratulations looks like its about time he made an honest woman of you Tee hEE

Love Jo8-)

hI Debs

When I was on CDT I didnt get sinus but the same as Bridget a constantly runny nose which got worse when I ate anything
but I did get a cold which left me with bad sinus pain for a while.
Love Jo

Hi Eve and Slim

Congratulations to you both. I hope the sun shines but if not you will have a fantastic day. Frank's birthday is 28th. Hope you enjoy your shopping spree – brilliant to go and spend money on yourself!!

Have a great day
Love Jean xx

Hi Debs I dont get sinus problems as such but every time I am on treatment I do get the symptoms of a cold , permanent snotty nose and constantly need to blow my nose. I suppose this could lead to sinus problems if you are prone to it Hope she can get some relief though its a horrible pain love Bridget x

Hi Kay Gills post just made me giggle cos when I am on bloody dex I do get a beard ( only a teent one !!) Just thought of an sct advantage of sct thought —- you dont need to deal with hairty legs or anything for months, its brilliant love Bridget x

Gill
Engagement rings were easy,every time he got a tax rebate,we had a renewal of are engagement.I know what you mean about France,the property is given to the children you have no say in who ,gets it if you are not married,We looked into it one time.
In this country you are not considered next of kin to claim a body if your not married,also a…[Read more]