Hi Tony well you certainly didnt have to rush into treatment which can only be good ! I was on the Myeloma X Trial last year and on the Cyclo arm It was ok , the usual side-effects but manageable However within 3 months I had relapsed again so needed more aggressive treatment and came off it Have you checked out the Myeloma XI Trial , there are a…[Read more]

Hi Liz

It sounds like its looking good and on the way up now, still one step at a time though, give my best regards to Kev and tell him its an "Onwards and Upwards" that he will now be having.

Good Luck and hugs to you Both

Tom xx

Hi sarah

Kate Humbel hasnt got anything on you she mostly watches and make silly comments:-D
Bridget I always am doing silly things I do wonder at tImes

Love Jo xxx:-S

Hi eve

its good to get these things off your chest when I go to see my consultant he is always an hour over time as they double book him we waited four and a half hours once and then when i needed Thalidamide I had to wait two hours every time for the drugs we used to go and have lunch in the cafe in the hospital also the blood test clinic can…[Read more]

Hi Min
Hope Peter is ok now and you can get away for a few days it will do you both good lets hope the infections stay away

Love Jo

Good luck dia I hope your next appointment is a positive one we are all cheering for you :-0
Love Jo

Hi Min thankyou for the info and I hope it keeps those bugs at bay love

Hi Keith good to hear things are still going well for you. As for the sct well at least it wont be as scary as last time! It does seem as if people are not having to spend so lo long in hospital post transplant these days so thats a bonus!!Keep on keeping on Keith ! love Bridget x

Hello min, thanx for your kind words this forum has been a godsend just spoke to kev and he's now having
Platelets & bloods so fingers crossed! As for the retail therapy already done it! Bought the new ipad2 told kev
But not sunk in yet! 2 months down the line when he says how long have you had that? ( well I'll say no more)
This old thing!!…[Read more]

Hi Sarah crikey 230 lambs!That sounds exhausting, I am so impressed .It must be very rewarding though How long have you been farming? I have always admired the hard work it takes to look after livestock but could never see myself managing even before mm , too lazy! I hope Gordon feels better soon love Bridget x

Hi Min sorry I cant help but I have never heard of it ,what is it for? love Bridgetx

Hi Mark hang in there and hopefully they will pump lots of anti-biotics into your dad to get rid of his chest infection. I really hope you get some good news soon As Min said try and stay positive and dont forget we are all here for you Bridget

Hi Liz and Kev

I also had to have platlets too, two lots but it made me beter faster :-).
When I had my SCT I also slept that much in the last 6 days that I misse who came to visit ha ha, sleep is what Kev needs at the moment (and for a feww weeks after) it will all fall into place 😎 I would say about three months and Kev will be saying Wot…[Read more]

hi all thankyou so much for your kind words, been with kevin all afternoon
he's having quite bad nose bleeds and they are talking of giving plalets
so just waiting to hear how things are.
hope it's something & nothing. still sleeping alot but that cant be bad,
ringing him first thing hoping to hear a stronger voice and as tom says onwards and…[Read more]

hi Mark

Hang in there Mark,Is it a tumour on the skull or lesions? try to be positive,It is hard,and no matter what anyone says you and your family are the ones going through this,Wish you well mark

Hi Liz and Kev

So sorry you had to join this site, but it is one of the best.

I had my SCT december 2009 so it is 16 months post transplant and honest I have never looked back, up hill for a few months then WALLA better 😀

Since I had SCT I and my young bride (Elaine) have just got back from Great Yarmouth, and had two fly away holls…[Read more]

Hi Bridget and Min

Thanks for confirming it,s not me going mad ,just tired.At the stage Slim ,s going hot and cold both awake all night then hospital for consultant.He had not been given zometa into 6 week of treatment,told tuesday when taking blood,no zometa,told thursday phoned lunch time to make sure not forgotten phoned back come in 1 hour…[Read more]

hello bridget, thankyou for your reply was just going to close down when i saw your msg: gonna do my cleaning and get ready to visit kev one thing is they let me go in anytime within reason, it's been a long night for us both
when your never really apart so this is all new.
i will keep coming back and let you know how kevs getting on.

kind…[Read more]