Hi Gaye you are right I think but its a lot easier to live with it if you arent in pain, I do hope they come up with something soon for you . No you arent alone we have the volume up too , all adds to the atmosphere love Bridget x

Thankyou Gill its good to know somebody else has the same hobby as me !! Tee-Hee love Bridgetx

Hi Bluebird the there are quite a lot of people who had to wait months for a dignosis.In my case it was about a year , during which time 3 vertebrae were destroyed and it was only major reconstructio surgery that prevented me from being paralysed. The trouble is myeloma is a rare cancer and few doctors such as gps and junior hospital doctors will…[Read more]

i am so sorry to hear about your brother what a terrible shock which I know for you will hard to come to terms with I send you Big HUG you have every right to be angry Myeloma uk started the take 2 campagn for this reason as too many people have a late diagnosis as so many doctor ignore the symtoms which a simple blood test could solve my thoughts…[Read more]

Hi bluebird

my sympathy to all your family,My partner has mm,and it is hard to deal with,IT is rare only 3000 cases a year in Britain most doctors will only come across it once or twice in there working lives.the symptoms can be many illnesses,only bone marrow test will confirm 100% that it is mm.

Most people put it down to back…[Read more]

Hi Gill – very good!

Jean xx

Hi Bridget

Missed that one alltogether. Will try Iplayer when I get back. Sitting in sun with a large G & T and it is only3.05 here. Bad aren't?

There is anothe programe on Sky called "MEntal" He is a psychitrist ( don#t know how to spell it.) But in one episode she was explainiong to him that she had Multiple Myeloma and was in…[Read more]

I am so sorry to hear about your brothers, it must be very hard to accept they arent there. Hang onto all those good memories you have which will be with forever and just take it a day at a time love Bridget

Hi Gill

LOL needed that,eve

Hi Sarah the last episode is on bbc i-player for a bit yet The new gets good reviews too Roll on autumn love Bridget x

Dear Gaye that sounds hopeful I cant remember where Mr Malloy works but he is a specialist in myeloma fractures , I think it may be the Royal London though. Apparently when he looked at my x-ray there was a lot of head shaking .He couldnt believe how little of my spine was left!!So surgery would be too dangerous for me but I really hope they can…[Read more]

Dear Gaye it seems so unfair that you are still suffering an unbearable amount of pain despite the rt .I suppose it would be risky repeating the rt but has anyone suggested any other options ? Is surgery possible ? There must be something they can do and I hope they dont keep you hanging on too long Its a good job you are a tough old bird like…[Read more]

Hi Keith

Pleased it is going good for you 🙂 as formeav got to grips with it on Good days:-D and am not having any treatment Cept Zometa infusion:-S

and Debs as for the feet mine also but thankfully no pain some time they just feel fatter:-/ or that I have something under my toes like wool:-0

And Gill ur comment ::::::::Stephen…[Read more]

Hi Keith (Via Gill – aren't our carers wonderful!)

sorry to break into your post to reply to Debs.

Do hope your second half of Velcade plus goes more smoothly and gives you a good preparation for you eventual SCT.

All blessings to you both.

Mavis

Dear Susan

I am so sorry you lost a brother to this dreaded MM, and also give you my condolances on the loss of your elder brother, Life is so cruel.

I see you have just joined us, please stay with us am sure we can all rally round and help you in your hour of need.

Love Hugs and aslo Prayers sent to you and your Family.

Tom x

Hi Debs

Hope you have told "them" about your suspicions of nueropothy as everything i have read, especially of US site, says tell folk soon as you might need to decrease dose.

PN is something I really worry about when I have to start treatment as I alreaady have some nerve damage.

Yes, I agree with you – use of PP numbers seems very…[Read more]

I echo Debs' comments.

You must be feeling angry as well as overwhelmingly sad. Life does seem very unfair at times, and it seems so unfair that MM takes so long to diagnose.

Please be assured of my prayers too.

Mavis

I am so so sorry for the loss of your brothers. I cannot even begin to imagine how you are feeling at the moment and how hard this must be for you and your family.

I don't really know what else to say except to how much I will be thinking of you and your family. And remember, you don't have to come to terms with it quickly. Use this period to…[Read more]

Hi Keith,
So glad to hear that you have responded. Gosh it has really made me realised just how different we all are with our MM. My pp's went down from 50 to 27 on revlimid and they didn't class it as a very good response!!!

Am now on the velcade and on week 3 of my first cycle. The first two weeks were problem free bar ABSOLUTE exhaustion…[Read more]