Hello Jean

How is northern irland this sunny day I hope you are not feeling so worried now and looking forward to your holiday in Spain we have just come back from Grand Canary had a good time I know where Frank is coming from we just hope it will go way hard to admit we are ill fingers crossed he will be fine.

Enjoy Your Holiday

Love Jo x :-S

I also needed that John. Thanks
Jean x

Brilliant just what I needed on a Monday morning thankyou for making me laugh out loud Bridget

Hi meeuu

i needed that joke at five this morning still lol,have you any more ?

How are you doing today Nigel?

Hope things are ok. I'm a bit rough, but think I'm still trying to get my head round not sleeping, and the whole emotional side of velcade that I didn't have with revlimid. Still, hopefully it will work for me more than the revlimid did!!

Debs x

You are so right Eve. Slim and Frank sounds like clones!!! Frank was a late baby ~(although has brother and sister) but his family doted on him and he always got his own way, and still expects to get his way. He really does not understand what is going on my head. I also think that his "on mindedness" (is there such a word) will help him with…[Read more]

Hi Jean

Frank is so like Slim!!!!!,If Slim new about me talking on this web site he would,go off on one.He was a commando marine for 22 years,use to being obeyed the only good thing about him being so stubborn is it just might be the one thing that helps him on this journey.He is a fighter with the believe he can do it and in my own way admire…[Read more]

Hi all
Thank you all for your responses. I can relate to points on all of your posts. Last week when Frank was in so much pain, I could not take any more and I told him that I was going to phone the Myeloma nurse or the doctor. He went ballistic. Kept on about it not being in his ribs and as you say Min ?I know my own body, and this is…[Read more]

Hi Jean

Is a holiday going to make any difference to treatment?

I have one of those men,who would not listen to me,So he has stage three MM. he has all ways been like this,you are not going to change him End of the day his body his choice.
You must make your choice,do you go to Spain,and have a holiday may be the last for sometime or phone…[Read more]

Oh Nigel
I'm with you there- day 6 here too. Up at 6am for a christening this morning (and didn't sleep well because of the drugs and the clock change anyway). Did really well for the whole day, kept smiling and then fell asleep for two hours in the car and crawled into bed when we got home….think kids were v confused that mummy was in bed…[Read more]

Hi Jean please dont apologise for letting off steam we all need to do it at some point. I am glad Frank is going to get his pain checked out , if there is one thing I have learnt in the last 4 years its not to ignore a persistent pain Could you phone his pecialist nurse about it or would that upset Frank? My husband is equally stubborn where his…[Read more]

Oh Gaye
You have just made an old (ish) man very happy, you put a smile on my face that before reading your post didn't know I could smile that wide Ha ha.

As for My Dr well he is normal and I have met him while out shopping and he pats my shoulder and asks if its all going Ok, he once put both his hands on my fat belly and shook it saying…[Read more]

Pain is no easier today. I have convinced myself that this sh**ty disease has kicked in. He is going to see doctor again on Tuesday but I want to phone consultant and he wont. We are supposed to be going to Spain on Friday and I dont want to go. Frank says that he is going. Why dont blo**dy men ever listen. Sorry to all you men out there -…[Read more]

Hi Nigel you have just got to go with the flow! Have a nice day chilling on the sofa tomorrow is another day love Bridget

Dear Gaye I had to smile when I read your post as I have done something very similiar. Unfortunately mine was a complaint e-mail!! It didnt do any good either. I hope you are having a nice weekend , the sun is trying to shine here yippee love Bridget x

Thank you all for your replies. I managed to persuade Frank to go and see doctor. The doctor said that it was a pulled muscle but I am not happy about it. I want him to contact the Myeloma nurse but he wont. He gets quite angry when I talk about it. It does not hurt when he is still but when he moves it is really painful. I askd if it was…[Read more]

Hello Gill

I wasn't told what my paraprotien levels were on diagnoses only my Bench Jones figures which were 22% after my CDT treatment my para's were in a band to fient to measure and still are I stayed on 100mgs of thalidomide for twelve months stopped because of PN not had any treatment for a year now except a monthly infusion of…[Read more]

hI gaye

I think consultants are human to you may have cheered up her day She will be thinking you really appreciate her
Love Jo x 😎

Jean,
I think Mari is right. You are better to try to get Frank to have it checked….even if he does it to keep you quiet…men like thinking that's why they are doing things sometimes!!! Hopefully it is nothing and he can turn round and tell you 'I told you so' but if it is anything that needs looking at, it is SO much better to get the…[Read more]

Hi Jen,
Yes they've warned me about the numbness esp in the feet – and said it's not worth carrying on and risking long term pain for the sake of lowering the pp…..sounds like you did the right thing.

Shame the revlimid not working in making you sleepy at night….took me a couple of days for it to kick in doing it in the evenings. Last…[Read more]