Hi David,

So pleased to hear that your results so far are very good, and disappointed for you that you are only on cloud 8 amd cloud 9 🙂

Sam will be 16 weeks post transplant on wednesday and time has flown, his Myeloma wasnt the paraprotein type (if you know what I mean!) but he was told by his consultant last time that he was in a virtual…[Read more]

Hi Eve I really feel for you , it sounds as if you both have a lot on your plate at the moment The trouble with dex is that as a patient its very hard to admit it is the dex making you behave badly As hard as it will be try and ignore your husbands bad temper if you can , if you say to yourself its not him its the dexAbove all though make some…[Read more]

hy everbody

When does this kick in my partner is only 3 days into dex,this morning he went off in a mood,because i did not want him changing bedroom round,complaining I should have had fitted wardrobes by now,

Aa well as coping with illness,I have had kitchen fitted,next bathroom ,double glazing planning consent to sought out,and when i told…[Read more]

my partners the same,stabbing pain right side,On oramorph 10mg a day plus paracetamolbetween oramorph.As he feels better he is doing more.

He has only just started first round of chemo,and have been told there will be no pain!!!!!!! he is a lot better than he has been for months.the pain at the moment seems under control. it is early days,we…[Read more]

Hi Ann wwelcome although I am sorry you are having to join us . I agree with Michelles advice and hopefully you wont wait too long Rrecently I was going to be referred to an orthapaedic surgeon to see if they could help with the pain in my back Apparently there are minute fractures in myeloma that can be the cause of pain but they are hard to…[Read more]

Hi Annie

And a warm Welcome from Iccle ole me 😀
Am sorry you had to join this forum but am sure you will find out its the best their is 😎 ,the help and support you get from these great folk is second to none 😎

Good Luck in your treatment.

Love

Tom "Onwards and Upwards" xxx

I can only tell you when my partner had his problems it showed up on ordinary x-rays.the skull and shoulder blades,the reason they do mri scann on spine is because there are so many little bones its hard to see on ordinary x rays.

my partner was admitted within 10 min of first appointment.48 hours later he was like a new man,all test were…[Read more]

To gill and also dave.

Thanks for info on publishers calender I will try that.
The pills are something 10 cyclo 1st 8th 15 day 20 dex run for 4dayd thalid 2 everday,plus sickness pills.that is just from hospital the rest comes from doctor.We have been told that they have put him on the intensive pathway.This is from a man that never took a…[Read more]

Hello David

great news it all looks positive your consultant must be please if he is only going to see you in two months keep up the good work

Love Jo x 😎

Hi Min what a nuisance for Peter to get the trots on his drug free week , just doesnt seem fair. I hope his neutrophils get themselves in order soon It beggars belief that they wouldnt do the serum free light chain test because of cost !!!Grrrr!! It makes me so cross In my case they are the only chance I have of getting an indication of whats…[Read more]

Hi David great to hear your results , you must be on cloud nine !!Lucky you a whole 2 months before your next clinic , heaven. I hope your x-rays can put your mind at rest so that you can have some fun and normality after all you have been through in the last few months love Bridget x

Hi Sandie its good to hear your mum is feeling well and doesnt need treatment at the moment , long may it last Fingers crossed your scan wont show anything nasty .Work does have its good points keeping your mind busy though , hope you dont have to wait long love Bridget

Hi David I make a chart when I begin a new course of meds Just straightforward boxes but I leave room so I can tick off when I have taken them , the charts the pharmacy gave me didnt have space for this .I keep meaning to get a pill organiser but havent so far The other day I was told that these organisers are not safe to use with toxic chemo…[Read more]

Hi Keith it is blooming awful when your veins just cant be accessed and its even worse when you know the situation isnt going to improve. I agree with you wholeheartedly that licensing the sub-cutaneous injections needs to be a priority . It is infuriating that there isnt a short cut for situations like this Hope you arent feeling too battered love Bridget

hi david

Have two boxes for pills,My partner insist on doing his own pills,but there are so many,some days its 45 pills other days as little as25.Plus pills from our own doctor.We have agreed that I check them as sometimes he can be confused becuase of condition.there has to be an easy way of doing this.

I hope someone can tell me of an…[Read more]

Hello Kath

Jolly good too, I agree we all have bad days so its all right then to feel like that you have a lot to contend with

Keep well Love Jo x

Hello Sandie

I think it will be ok for your mum as she doesn't need treatment yet and fingers crossed for you lets hope its just a false alarm

Regards Jo 🙂

Thankyou David what a great picture Bridget x

Hi Min

good one it got me too I thought what!!! is she doing

Love Jo x

hello Eve

I had CDT so I can relate to the problems also had kidney damage so have had to take drugs for that I found that taking the DEX in the morning and the thalidamide at night I was not awake all night which seems to happen with DEX if witha glass of milk helps the dex down I know some people take it with yogurt I took all my other…[Read more]