Hello Kathline

Sorry you have not been so well hope you are feeling better now I have missed you I agree about this web I also do not find it as user friendly as as the old one it was better seeing all the new posts at once

Keep well love JO X 😎

Hi Wolf? my experience with velcade were somewhat similiar the first time I managed about 4 doses but was taken off it because of constipation ,I did have PN but not till 2 weeks after I stopped velcade and it went after a couple of months . I was under the impression that PN due to velcade is likely to go eventually but PN due to Thalidomide is…[Read more]

Hi Kay glad its all sorted now but what really impressed me is the speed you were in and out of hospital!! No wonder you have such faith in them Heres hoping there are no more dramatic happenings As for work it will still be there you are far more important love Bridget x

Hello Andy

welcome to the site it must have come as a big shock to you to be diagnosed with MM as it was with most of us I have never heard of it before you will find all the help and encouragement you need hear, and do look for a support group in your area they are a great help also

Kind regards Jo x 😎

Hi Keith

Hang in there! Isn't it difficult trying to drink so much liquid. I don't like the tast of water so am becoming quite an expert on low cal squashes! Isn't it odd when we find ourselves monitoring ourselves by the colour of our wee!!!!
Do hope you settle down on the Velcade and that it helps your numbers.

Very best…[Read more]

Dear Em

Can I also welcome you to the site. Sorry your father is having it so rough, but one thing about being in hospital, hateful as it is, it does mean you are right under their noses and they will want to get things going.

One thong about this site is that you can be honest about how you feel.

All best wishes to you and your father.…[Read more]

Oh Sorry to hear that Em 🙁 but am sure they will sort Dad out Ok.
Its a case of working out what works and what isn't working with us lot 🙁
Your Dad might just need his meds tweeking a little bit 🙂

I also dont like a fuss caused over me so think I know how your Dad will feel.

We have to take it one day at a time 😀 and it will…[Read more]

Hi Emma welcome to the crazy gang. I am glad to hear your dad is starting to pick up now he is on treatment. Th,ink of us as your second family and ask away, there are so many lovely people on here to support best wishes Bridget

Hi Em

Well I am sorry to welcome you to this site 🙁 but that said you will find it One of the best around, we have great folk that have got good advice to help you and your Dad through this one step at a time 🙂

Humour you cant beat it at a time like this and never lose it as I know it has perked me up no end over these last couple of…[Read more]

Dear Gaye I think you may well be right and the dex effect may be when it is used in combination with others like Rev and Pom Botheration and a double pox to myeloma!! I am certainly glad to have a friend like you to share the journey with, if only they hurry up and relieve your pain We can be 2 cantankerous outrageous old biddies( not really old…[Read more]

Hi Shirley lovely to hear from you and brilliant to hear you are doing so well! Seems like you have a way to go yet but I am sure you will get your puppy before the summers over Take care love Bridget x

Dear Gaye

Have just caught up with these posts. So sorry you are having such a rotten time. I'm sure that in an earlier post you said you were awe of folk. I am certainly in awe of you.

Do hope the RT works well for you.

Love.

Mavis x

Hi Angie and Clara

Sorry for the need to welcome you to this site.

It does seem that things are moving very quickly for your parents. I do hope they feel happy with the pace of things.

All best wishes to all of you.

Mavis

Hi Tanya

Welocme to this Web site, sorry it has to be. So sorry about yoour Dad.
My only daughter has two small children and lives in London, I am in Yorkshire. I know that she can't do much apart from keeping in touch and visiting about every couple of months. Fortunately i do have a husband, but he hasn't brilliant health himself. I thnk…[Read more]

Oh Gaye I think?? no I know we all have the "Onwards and Upwards" streak running through us 😀 , we just need to look at the Positive Posts that are on here 😎

And Many great Posts are from yourgood self Gaye and for that I thank you 😀

You make me smile you make me laugh and in this cold weather that a good thing :-S

Once again…[Read more]

Just nipped in to say Hi and Good Luck

Tom xxx

Hello Tanya

Sorry to hear about your Dad 🙁

But you know your Dad and am sure you know he will cope with what this darned MM throws at him.

Bridget is correct can your Half sister help out, have you tied the Social Service to see how they can help.

Good Luck and not forgeting yourself as it is too easy to forget about you and your…[Read more]

Hi Clara
Well you have had some great advice on here 😀
And that only leaves me to say
Good Luck to you and your Dad with his forthcoming treatment:-)

Am sure it will run smooth

Love
Tom "Onwards and Upwards" xxx

Your More than Welcome Sylvia, and I also am waiting to have some proper sun on the back of my fat neck 😀

Not be long before we can all sit outside 🙂

Love Tom xx

Hi only me glad to hear your mum has got started, it does get easier You could ask the specialist nurse if they do a drug chart to help manage all the tablets , I usually do my own so that I can tick off when I haave taken something I hope things go smoothly and please give my best wishes to your mum and dad love Bridget