Hi Angie
A warm welcome to you, hope all goes well with your Mum's treatment.
You will know by now anything you need to know just ask 😀

Hi Clara

The same warm welcome is sent to you this is one of the best sites around so you will feel at home in no time 🙂

Love Tom xxx

Hi Steph

Sorry you have had to join this mad Band of folk, but a warm welcome to you and yours.

I wish you and your nan all the best for this Tuesday.

love Tom "Onwards and Upwards" xxx

Thanks for the laugh David it cheers up the day
Love Jo 😎

Hello Min

Glad to hear Peter is feeling better now.Good news about your redundancy
when I was first diagnosed in the january Geoff wasa due to retire in the march his company let him go three months early with no loss of income or pension which was marvellous. I have the Myeloma diary it is really usful as you say, got it at the London…[Read more]

Hi Clara welcome to our merry band . At the moment you must be feeking so overwhelmed with it all but it does all become clearer. My advice would be not to google everything but take it one step at a time Myeloma is such an individual illness andthe descriptions of stages etc on the net are very often outdated now Newer treatments are emerging all…[Read more]

Hi everyone my diary was given to me by my specialist nurse perhaps yours may have some of their allocation love Bridget x

Hi Angie welcome from me too , you really have found the right place for answers and support .Even if your mum and dad arent up to reading up on myeloma yet they will be glad of your support As Min has said it does get easier to understand as treament gets going and the initial shock wears off. In the beginning it seems to take ages for treatment…[Read more]

Ha ha David good one to start the day !! love Bridget x

Dear Gaye how are you feeling ? Any news on your rt yet? I am now addicted to scandinavian tv police dramas on bbc 4 .Wallander got me hooked , even better than the Kenneth Branagh versionNow on Saturdays we watcg 2 hours of danish drama , The Killing I highly recommend it lots of characters that you care about and very well acted As long as…[Read more]

Hi Min I hope increasing the dose does the trick this time too In the past dex has caused water retention problems for me so I have Ferusomide at the ready Could your itching be caused by anxiety ? You have so much on your plate and the waiting for a date cant help , hopefully your lovely employers will let you go very quickly I hope you are doing…[Read more]

Dear Min thankyou thats very reassuring . I realised today I had slipped up in taking Revlimid at the same time as dex so tomorrow I will take it last thing and hope to sleep like a baby!! What dose of dex was Peter on? I am on 40mg for the first 4 days of each cycle and was told it may be possible to reduce it after a short while. Your new…[Read more]

Dear Min I was pleased to see on another post that Peter is feeling a bit better this week , long may it continue Yesterday was my first dose and it wasnt a great day ,I just felt yuk all day and very lethargic What surprised me was I didnt get a rush of energy from the 40mg of dex at all , I had hoped it would override any tiredness from the…[Read more]

Dear Jen

I'm very grateful for your answer, and so promptly. It gives me a much better prospective on things.

I feel for you having to cope on your own. I am very fortunate to have a husband who does all the cooking and fetching and carrying, as I also have chronic arthritis, which was what masked my MM in the beginning.

I do find this…[Read more]

Dear Jen

Just picked up this strand. Sorry I can't help you as I haven't had any chemo yet, but do hope you get the second dose yuou want as it agreed with you.

Can you help my learning? What was the first regime of chemo you had, which didn't agree with you? Also, what numbers of para protein jogged your Consultant into action on each…[Read more]

Hi David how very true Unfortunately politicians newly in power are like junior doctors and would have us believe they and their strategies are much better than anyone else before them Ha ha!! love Bridget x

So true David do any politicians do their homework or do most just follow the party line like sheep :-/

Regards Jo

Dear Sarah and Min you are both going to enjoy not working you will soon wonder how you ever found the time to work!! The extra time with the grandchildren alone makes it worthwhile . Min I am living on benefits now and a small work pension and my solution for the shopping is on-line The big 3 supermarkets are all pretty good and the delivery…[Read more]

HI Min

On the continent the first line of treatment is Velcade plus DEX this means if there is any kidney damage the outcomes are much better
my consultant is Polish and he told me this
Love JO :-/

Hi everyone yesterday I had a near perfect biopsy Heres how it went 9am I arrived and was met by the only nurse on the unit who inspires fear and dread in me !! Its not her fault she is a very large girl but she is brutal at putting cannulas in , on one occasion she made 6 attempts before giving But yesterday went like a dream , although she…[Read more]

Hi Min good to hear you are about to become a lady of leisure!! Haha I bet thats the last thing you will be but I am so glad you are going to get time to do all the things you want Have you got the cruise brochures yet? love Bridget x