brocho replied to the topic Radiotherapy in the forum Treatment 15 years, 5 months ago
Hi Jo lovely to see you at last !!! Doesnt it feel great when you conquer technology? Dont worry about the moon face it irons out the wrinkles !! love Bridget x
brocho replied to the topic Radiotherapy in the forum Treatment 15 years, 5 months ago
Hi everyone well thats my radiotherapy finished !! I have been zapped for five days and it was only on the third that I found a button-through dress to spare my dignity !! As some of you warned I am exhausted , this morning was the hardest I just sat still for hours when I should have been getting ready , so tomorrow morning is a pj one !!In a…[Read more]
brocho replied to the topic Revlamid starts and what happened next. in the forum Treatment 15 years, 5 months ago
Hi Min hope Peter does well on Revlimid and will be watching out for your posts as I start mine in a couple of weeks too It would be nice if they only send me to sleep at night my little power naps are taking over my days as it is so if Revlimid makes me any more dozy I might not even manage to drink a cuppa!! Lucky Peter I am going to be on 20…[Read more]
brocho replied to the topic Pomalidomide in the forum General 15 years, 5 months ago
Dear Gaye I am glad you got week one out of the way without any problems apart from those pesky dex!! The foot massage sounds wonderful too a bit of pampering is just the thing when you feel lousy . I hope they get that back pain sorted very soon and you can dance the night away or run the marathon if you want !! love Bridget x
brocho replied to the topic Denial – My thought for the day. in the forum General 15 years, 5 months ago
Dear Gaye how beautifully put Thankyou for sharing with us To a certain extent I am still in denial for a lot of the time too . It was over a year before I even looked at this site In the beginning , like you , I coped by dealing with it on a daily basis and trying to organise everyone else in the family ,as usual. As time has gone on I have…[Read more]
jmsmyth replied to the topic Denial – My thought for the day. in the forum General 15 years, 5 months ago
Dear Gaye
I echo what Min and Sarah has written. I think you are very brave and I know your posts have helped many. Sarah, I was like you when Frank was diagnosed – how am I going to cope – and what will I do without him. To a certain extent, I think I am still in denial. Frank was diagnosed with SMM in Sept 2006 – no treatment – but I…[Read more]
BADGER replied to the topic Keep your fingers crossed for me please. in the forum Carers 15 years, 5 months ago
Hi Min
glad peters kidneys are ok mine are good and stable at the moment but i do get swollen ankles in the evening but they are ok in the morning I think it is to do with fact I have to drink at least two litres a day which is really hard for me at the start it was three litres i felt like I was drowning, I really hope Peter responds to…[Read more]
BADGER replied to the topic Keep your fingers crossed for me please. in the forum Carers 15 years, 5 months ago
Hello Min
Managed to do it took a picture from my lap top camera hadn't thought of that, its not very good but you can now at least see my moon face caused by the steriods I am on at the moment to help my damaged kidneys, are Peters kidneys ok now mine are working at about 40% I luckily managed to avoid dialysis but only by the skin of my teeth…[Read more]
BADGER replied to the topic ANTICIPATING THE NEWS in the forum General 15 years, 5 months ago
Good Morning Kay
ouch another painful bone marrow I have had three all painful because I did not realise you could have some sort of sedative will ask next time
any way your consultant may not be right life is full of supprises lets hope its one of those times
Good luck regards Jo 🙂
brocho replied to the topic ANTICIPATING THE NEWS in the forum General 15 years, 5 months ago
Hi Kay ouch!! there is nothing worse than a painful bmb.Do you have sedation? I would never have a biopsy done without sedation and it should be available to you Good luck with your results love Bridget
BADGER replied to the topic the human clock in the forum Off topic 15 years, 5 months ago
This is realyy clever where do you find these little snippets to amuse us
Love Jo 🙂
BADGER replied to the topic Introduction in the forum Newcomers 15 years, 5 months ago
Hello John
welcome to this site I dont expect anybody really wants to join but now you are here you will find much help and support and you will learn much about the condition more than most clinics will tell you.
Good luck with any future treatment
Regards Jo 😎
brocho replied to the topic Catch Up in the forum General 15 years, 5 months ago
Hi Kathleen thank you lovely to have you back I hope you are keeping well love Bridget x
brocho replied to the topic how to help as a younger carer? in the forum Carers 15 years, 5 months ago
Hi Laura sorry you and your mum are having to go through this but joining this forum was the right thing to do , there are lots of lovely people who can support and advise you There are quite a few of us who were diagnosed around the same age as your mum and a growing number of people under 50 as well It does take time to get over the shock when…[Read more]
jmsmyth replied to the topic the human clock in the forum Off topic 15 years, 5 months ago
Very good. My grand daughters were facinated. Took me some time to close it down!!
Jean
brocho replied to the topic Velcade+Dex Update in the forum General 15 years, 5 months ago
Hi Keith great to hear everything is going well . Dex is a monster but it generally does the trick and its wonderful when the pain goes away . Fingers crossed your remaining cycles go as smoothly . love Bridget
BADGER replied to the topic Keep your fingers crossed for me please. in the forum Carers 15 years, 5 months ago
hi i tried to do that but it didnt work i think i need to use another image
but i cannot remember how to do it
Best wishes jo
BADGER replied to the topic Keep your fingers crossed for me please. in the forum Carers 15 years, 5 months ago
hi Min
tried that it didn't work I shall just have to get another image if I can remember how to do it i am not very good with technology.
I have had sciatica for the last six weeks( agony )I have had some relief I went to an accupunture clinic it really helped with the pain thanks for trying to help me hope you feel better soon
Love Jo x
brocho replied to the topic Back Pain in the forum General 15 years, 5 months ago
Dear Gaye I really feel for you , there is nothing worse. At the moment I take Severodol for breakthrough pain , although morphine based it doesnt knock you out . I also use the heated pads which do help. Hopefully your rt will happen quickly once they have seen your mri results love Bridget x
tom replied to the topic Ron Cantrill and everyone else 🙂 in the forum General 15 years, 5 months ago
Morning John
And I am pleased other folk lose not the plot but the posts they send he he am pleased it aint just me 🙂 Sock in dryer :-0 do you not know the price of electric Ha ha :-S
And Ron
Well Nawty Email's do cause a flurry 😎
Yes am sure we could all do with Our/your good news posted, I know what you mean about shouting it from…[Read more]