Thanks I am so excited anyone would think it was my first!!

Jean

Great news to hear that you're home. Hope it all goes swimmingly and that you are able to recouperate with no problems.

🙂

Take care
Debs

H Michelle,

I'm on zometa too…..was fine for the first 24 hours, had flu symptoms and aches like i've never known for the next 24 hours, and was then fine. And when I had my second infusion last month I didn't get any side effects at all.

I hope that your mum avoids the side effects, but from what I know (not v much!!) zometa has had a…[Read more]

Hi guys,

I got this too. I don't believe it's a bogus email, but it is one from the Myeloma forums site….i seem to have totally deleted the email off my system (as I don't use the site anyway now), but I know that Andy once wrote on this site trying to encourage people to take a look at his too.

I don't think anyone needs to worry about…[Read more]

Hi Ron

i really appreciate your quick reply. I was imagining all sorts of things – hacking into my bank account etc.

My mind is easy thanks again.

Regards Jean

Hi All

I gpt this email but I have been stupid – I replied to it, asking Andy what it was all about. Does anyone know or have an idea what happens -or is there anything I should do seeing that I answered. I am in the process of running a scan

Ta
Jean

Dear Gill now you have given me a massive fit of the giggles at the thought of your poor dog waddling back in !!Those evil Wills have a lot to answer for !!The real test for me will be tomorrow when my grandson is here as we normally cook lots of very fattenig goodies it will be a miracle if I can stop myself eating them , but not my fault if Will…[Read more]

Hi Lorraine blimey I will never moan about how long it takes for our benefits to go through again after reading your post Thank goodness you were granted it at the higher rate. Is the form more specific do you think ? Here the DLA questions stick to a limited criteria and dont always allow for illnesses that dont fit them My daughter has cystic…[Read more]

Dear Gaye and Sharon thankyou for putting my mind at rest Gaye I will have everything crossed for you to get your rt very soon . I was lucky in that I had a recent mri for them to go on which speeded things up Mind you I have always found UCH to be excellent at organising vital treatment It occured to me tonight that I am prepared to put up with…[Read more]

Hi I got one too and also assumed it was a site I joined ages ago .I havent responded nor will I Blooming nuisance why cant these people get a life!! Michelle I do hope your sons problem gets sorted very soon it must be so stressful for all of you love Bridget x

Hi Michelle

I am on Zometa infusion every four weeks to help my iccle bones 🙂

Side effects? dont hink I have any Lol, but did feel like flu symptoms at the start but now nothing;-)

Honest all through this i wonder if i am getting real stuff as i seem to sail through it all:-D

(hope i aint speaking too soon lol)

My next one is…[Read more]

Hi Hils

Never ever feel guilty. Everyone of this forum knows what your are going through. The only other thing that I can say – whicy was said to me when I joined the forum – Don' search the internet as a lot of the information is outdated and would scare the life out anyone. I get my info here and on the Myeloma Beacon. Your brother will…[Read more]

Dear Min thankyou I must admit to being a little nervous for no good reason . I think your point about the tumour throwing out myeloma cells is spot on especially as they areon our spine. Unfortunately I will have to travel to London each day , although its only 30 miles it can be a pain on the motorway, but I would rather come home each day than…[Read more]

Hi Michelle I am surprised this has not been offered to your mum before given that she has a lot of bone damage .I was on Parmidronate for over 3 years and it certainly helped with bone pain , I always knew when it was due The infusion is ok just means spending a couple of hours on a drip once a month , sometimes it can be a little painful for…[Read more]

Hi sorry you are having to go through this its an awful time but things do get easier as you all learn to cope with myeloma and its treatment. There were times in the beginning when I refused to give in to tiredness etc and pushed myself to the limit I was trying to hang on to old life , as perhaps your brother is too , but eventually you learn to…[Read more]

Hi Keith I was on velcade recently and my platelets did drop quite significantly Its monitored via the pre-chemo blood test and if its too low you will need to be given platelets through your line It is normally given on the ward with dex on the day of treatment and the day after . I was recently changed to Zometa after having Prmidronate for over…[Read more]

Sorry Gaye but now you have set me off giggling too !! The thought of prancing sylph like through the fields ( in Luton ???) is just too much to bear I will give up all thoughts of Wills as he is so fickle as to marry a young , beautiful ,rich girl ( cant think what he sees in her ) I now have a new plan to feed Jeff all the goodies then I can…[Read more]

Hi Tina so sorry to hear Patrick has had to come off Bendamustine .Heres hoping Pomalidomide does the trick for him and Gaye too , they are the trailblazers Love to you both and heres hoping this will be a good year for you both Bridget x