Hi Gaye
when I went to the myeloma open day in London there was a lecture from a visiting proffesser from America, who spoke about varius treatment and Pomalidomide was one of them he said that the results were very positive sometimes on their own and some times combined with a steriod he seem to think it was going to be one of the next best…[Read more]

Dear Gaye sorry you have been having a horrible time , like you I had forgotten how bad the back pain can be , I hope you get your RT soon Great news about the Pomalidomide hers hoping it will blast the lousy mm to smithereens so you wont have to worry about treatment for a long time Happy new year Gaye love Bridget x

Hi Ron thats really interesting and I wonder if others have been warned of possible risk , it was never mentioned to me.Sorry to hear Pauline has been having a hard time and I hope she continues to feel better so you can both get back to your golf when the weather improves . I feel better than I did but I must admit the pain in my back is…[Read more]

Hi Keith thankyou that really helps to get a picture of the process I would have been expecting immediate pain relief too , at least now I wont be impatient.I am sure it wont be too long before a more specific therapy emerges.I have just read a piece on cancer treatment origins and I amazed that the first treatment wasnt till 1942 and came about…[Read more]

H Sharon I hope you are back home now and all went well .I have my appointment with radiologist this week and cant wait for my radiotherapy . Although I know a lot about it I am still a bit nervous about having radiotherapy so I would love to hear how you found the experience When will you find out about having velcade? Keep smiling your beautiful…[Read more]

Hi Gill I agree with Sarah , there must be something in the sct process which makes the desire for a dog a necessity !! In my case I dream of a little dachsund but I reall cant expect Jeff to do the walking etc so I am stuck with the furry grandson Looking forward to seeing pics of the puppy when it arrives love Bridget x ps maybe the…[Read more]

Hi Sarah your comment about feeliong selfish for working jumped out at me You are most definitely not being selfish and I am sure Gordon doesnt think so either !!In some ways its reassuring when my other haif goes off and does his own thing , it makes life seem more normal if that makes sense On the other hand if you feel the time is right to stop…[Read more]

Hi Gill sorry but as others have already said dex was a part of my recent velcade treatment Mind you it was a fairly low dose taken only 2 days a week so not as bad Stock up on ear plugs , buy yourself an i-pod even and pretend you cant hear for those dex days !!Heres hoping your peace loving hubby wont suffer from too much dexatude though love Bridget x

Hi Amelie great news about Johns remission ,long may it last The only advice I can add regarding infections is to have the pneumonia vaccine which lasts ten years .I had this vaccine 2 years ago and although I did have pneumonia last year it is likely to have been more severe if I hadnt been vaccinated love Bridget x

Dear Roz I am sure it must be very tough for you at the moment .Try and take it one day at a time . What a brilliant amount of money for myeloma uk , you should feel very proud that people who knew Michael felt able to donate love Bridget x

Hi John I would like to add my welcome too , this lovely group of people are the best support you can get . Best wishes Bridget x

Hi Jenny I am sorry to have missed your post until now but you have been given lots of good advice already Would it be possible to take your step mum for lunch or something and try and talk to her on neutral ground. her fears are probably so overwhelming she cant see how you all can help .I hope your dad is continuing to improve , as lots of us…[Read more]

Hi Min I have crossed my fingers and toes too and really hope you get accepted You certainly deserve to do the things you have always wanted too love Bridget x

Hi Keith

Well thats a Bugger aint it.

Am sure you will cope with round two Better than you did with round one as they say it gets easier:-/

All the best for Monday and hope the treatment you decide on will have little or no side effects 😀

Tom "Onwards and Upwards"

Hi Jenny

Am very pleased you find this site comforting, as at times like these its good to know folk are there to help and advice:-D

As for the Booklets, as Min says they can be downloaded or if you nip to your Dr's or Hospital you can get what you want.

Its a shame your Stepmum is not allowing you all to be more active in your Dads care…[Read more]

Hi Michelle I wont tell on you I promise !!! love Bridget x Its the sort of thing my girls would do so now I am off to check their fb just in case there are pics of me in the land of nod ! love Bridget x

Hi Keith I am sorry that you are now relapsed , its a real pig when you hear those wordsBut having heard them myself a few times now take strenghth from the fact that active treatment can get cracking and knock it back again love Bridget x

Dear Lindsey

Although my experiences are not like your Mum's she has my extreme sympathy because I don't think that Drs always do take pain seriously enough.

I think you should ask to see an Orthopeadic Specialist, or a Pain Specialist as morphine probably isn't the answer, or if it is, maybe she need patches. Is your Mum on steroids as…[Read more]

Dear Gavin

I was interested to hear how your diagnosis was reached. It's not boring, because that is the benefit of this site that we can learn by comparing other's experiences.

Hopefully, like me your mobility will gradually improve and I know, from previous nerve damage to my foot following hip surgery, that eventually it does begin to…[Read more]

Hi Roz

I hope all our best wishes helped you get through today,and I like all the others are sending you Hugs for tonight to help you in this difficult time.

God Bless

Love and Hugs

Tom xxx