Just to add my bit, I've been on the Myeloma XI trial for 6 weeks now. Like people have said, I think different drugs affect different people in totally different ways. I haven't had any major side effects from the revlimid, but have been tired and get quite breathless. I also had the rash for a few days, but found that it calmed down with piriton…[Read more]

Hello David

We went to Ibiza last sept and insured throught a company called MIA throught the agent J D Travel its a company that specialises in insurance for very ill people even if they dont feel very ill just the related illness that people have.We went throught the terms and conditions and they seemed very fair you must hold an EHIC card…[Read more]

Hi Roz,Rachael and Lauren

Thinking of you all Today, and hope it goes as smooth as it can.

And not forgeting you Roz you must look after yourself in the comming days.

Love and Hugs to you all

Tom xxxx

Hi Keith
Sorry to hear bout your pain 🙁

Its a bit of a bugger really, me am not sure what bone pain is? do I have it? have I had it?or will I get it?

Me I think I have had pain most of my adult life what with pulling back bruised ribs pulled muscle's, and they tell me it Arthur-Rightus he he

Good Luck Keith 🙂

Tom

Hi Sarah good luck with your sct and I hope you get a very long remission too .I am also under UCH London and they are brilliant especially Dr Yong who is a very formidable woman but boy does she get things done !!love Bridget x

Dear Roz,

I am so sorry to hear about Michael. All my best wishes, thoughts and prayers are with you, your daughter and granddaughter at this such difficult time.

Debs x

Hello Bridget

So glad you are feeling better never pleasant in hospital your heart must have sunk when they said the velcade didnt work but you need to get rid rid of that tumer first and be rid of pain then on to the next step Revlimid seems successful for most people but I am afraid it will probably be with DEX again but if it works which it…[Read more]

Thankyou so much Vicky and Georgina , it really helps a lot to have the support of my on-line friends. I have an appointment to meet Prof Tobias on the 12th Jan to discuss radiotherapy , at UCH, hopefully it wont be too long after that as it is very painful, Georgina please give your mum my best wishesand Vicky I hope you are taking it easy and…[Read more]

Dear Roz I am so glad you you and your daughter and grandaughter have each other , it will help each of you get tjrogh the next few days love Bridget x

Dear Jayne

I hope that by the time you read this you will have got through to the hospital and got an earlier appointment.

I know how you are feeling I went through all that you are going through (and I am sure that other carers did). At first I could not let Frank out of sight. For about 2 years I would not leave him to go out with…[Read more]

Morning Gina and your Mum

Yes thank you had a great Poitive Christmas this year as last one was a tad low key as i had just had my SCT start of December.

And it worked so this year the Boat nay Boat's have been pushed out, av ate and drunk for England Lol,Lord knows what my Consultant will say when i get on the scales in Jan lol.

Hope…[Read more]

Dear Amelie

As has been said this horrible disease is so individual. 4 years ago my husband was not feeling well. Run down – no back pain but doc thought might have infection in kidneys. After battery of blood tests Frank was sent to haematologist and after a marrow biopsy myeloma was diagnosed. A bolt out of he**. He has smouldering…[Read more]

Hi Mari and Steve
Wonderfull News for you all, and it is the best Present any of us can have.

Last year I was not on top form what with having my SCT 3rd December so xmas for us was low key:-( BUT this year I am on top form and just to prove it I am posting two photo's one of last year and one this year to prove that the SCT works a treat 8-)…[Read more]

Dear Mari what winderful news I am so pleased for you both Heres to a very good new year love Bridget x

Hi Nettie thankyou I have really enjoyed this christmas , my eldest grandsons face on christmas morning is so awestruck it makes it all worthwhile!! How is Chloe doing, did you get to see them during the holiday?( If I have got her name wrong please forgive me) We still have quite a bit of snow and its very cold ,are you snowed under? It must…[Read more]

Thankyou Eva I am not really worrying about it at the minute , I tend to take things as they come after an initial panic As you say there are new combinations coming up all the time .I hope you had a good christmas , my children and grandchildren have just gone home and the quiet is lovely love Bridget x

Hi Amelie

Yes that is correct, and I aplaud you for using your musical skills to highlight our plight with MM.

Yes it is a Cancer that is well behind all the others at the moment but with people like your goodself am sure it will soon be brought to the forefront 😀

Once again Well Done and Thank you

Tom "Onwards and Upwards" xxx

Ros
so sorry to hear micheal has passed away my thoughts are with you

Jo

Dear Roz

I am truly sorry to hear that Michael has passed away.

Roz you did a wonderfull job looking after michael's welfare and fighting his corner when he himself couldn't fight.

my Condolences to you all and please take care of yourself more so in these next few months.
A Little one of Tom's "Cyber Huhs" to keep you strong and healthy…[Read more]

Hi Amelia

Good Luck on the speech, such a daunting thing to do am sure.

As Vicky says its an Individual illness and a difficult one to spot even the Dr's struggle:-S

So I wish you Luck on your Speech Day 😎 it will be terrific

Tom xxx