Gill

What a terrible thing to be going through. I so agree with Min, although it takes a lot of energy to deal with these 'jobs worth'- kick up as much fuss and as you can I really can't understnad how they can get away with this. As Min says put it to watch dog – write an email to them – write to everyone that you think will listen and…[Read more]

Dearest Roz

It has all been said. I hav also followed your posts and my thoughts and love have been with you Michael and your daughter. You all have been through so much and I so agree with Susan. Talk to Michael about all the fantastic times that you have had as a family and through your life together. I am sure that all that have been…[Read more]

Hi MIchelle,

Great news about the protein levels! Really pleased to hear that. Revlimid sounds like such a successful drug….my levels 'look' like they're dropping on it too!

Does she struggle sleeping? I know I do, and don't know if it's the revlimid or the other drugs. But I wake every hour most weeks since I started on the revlimid.…[Read more]

Hi Michelle

Am pleased to hear your Mums proteins have dropped after a short time 😀

And the tired thing? well I got tired before I knew I had MM and still get tired easy? that just might be because am not as active as i used to be ?? ah well as long as am healthy evry one will wait till I catch up lol

Love to you and your Mum

Tom xxxx

Oh My Dear Roz

I am so sorry to read this, and its hard to know even when you know its going to happen sooner than later its still a wrench.

I have to send you both a "Cyber Hug" cos I know they do you good WwwwwoooooSsssHHhhhhh that one Dear Roz is for all of you at this dreadful time.

Please please take care of yourself also at this…[Read more]

Hi Kay

No problems at all, what treatment will you be starting In Feb, I started mine in Feb 2009 CTD then Stem Transplant, never looked back since 😀

Today 16th December was the day I came home from Castle hill after my transplant 😎

Dont forget if you need to know anything just ask

Tom xxx "Onwards and Upwards"

ps did you send…[Read more]

Oh Roz,
I am so sorry. Like Michelle, it made me very sad as I have followed your journey on this site and feel like you guys have been through so much…it doesn't seem fair.

I hope that they are able to give you some reassurances on Monday and that it doesn't go the way you are imagining.

With lots of love
Debs x

Hi Kay,
Sorry to hear that you've joined all of us on here, but happy that you found us as it's a great site and you'll get loads of support.

I am 36 and was diagnosed, like you, by a random blood test, in July 09. Also like you, my hb kept dropping low while my paraprotein kept rising. Over the summer, the topic of treatment started to…[Read more]

Dear Gaye well if anyone deserves a bit of cheer its you and even better if the dreaded taxman is sending you money Eunice sounds delightful and very talented , she is a very lucky girl too having found a sponsor like you .It must give you so much joy to see her grasp the new opportunities with both hands .I really hope that you are able to go and…[Read more]

Hi Kay

Just wanted to say Scotty will be along soon as she is cavorting around the world doing work things, and or sorting out the forthcomming wedding:-D

So stick with it and before long you will be in the Under 50's8-) cool or what 🙂

Hi David
I hope you are now well and truly HOME gosh the feeling of being at home is great.

Now take it easy and No rush

Its now "Onwards and Upwards"

Regards
Tom

Hi Kay

Sorry you have to join this group 🙁

BUT its a great Group 😀 for us that have to join.

No probs Re you Emailing, and as for advice and help plenty on here its a new site so we are all in the learning curve so to speak.

Not sure what advice/help you need at the moment, what treatment are you on? do you know what is planned for…[Read more]

Hi David yipppee home !! Wow you have done well just dont forget to pace yourself no marathons for you yet !! love Bridget x

Hi David
Glad to get clarifiaction about your postings. Even glader to hear that you are going home today. Go well and enjoy your escape. Just nice timing to regain some strength before Chrsitmas.
Warmest of best wishes.

Mavis

Hi David
You may not be posting but we will all continue to be remembering you.
Love.
Mavis

Oh Dear Roz

So So Sorry, its a shame that all the meetings get cancelled as it only puts more stress on everyone.

As you Know Our thoughts are with you all.
And a very big special "Cyber hug" WwwwwWwwwwoooooOOOoooSSsssshhhhhHHH sent to you all

Keep writing as and when you can Roz

Lots Of Love
Tom xxx

Another pop in from iccle ole me to see how you are doing david, and by the looks of it you have it cracked 🙂

Have a safe trip home on Thursday (you cant beat your own chair/bed or even your own cups 🙂

Good un 🙂

Bridget

I am really thinking of buying shares in Lemsip and Manuka honey! Have to admit Franks form appears to have improved. Maybe it's because Man United won! Little pleases the innocent. He has had no temp = so that is good. He is sitting with the lemsip and honey – me – a gin and tonic. Don't know if the lempsip is doing him any good…[Read more]

Hi Jean thankyou I love xmas too so come xmas eve I will be in the swing of it Hope you and Frank feel better soon love Bridget x