Hi Liz

No dont know what treatment will be as yet just guessing at the moment but am sure he will tell me what on Thursday as thats when I go and get my BMB results.

And Jean Elaine and I just might do Belfast this year 🙂

Catcha all Lata (now lets see if ths post goes lol)

Tom Onwards and Upwards xx
Ps photo of the young bride and I on our Holls xx

Hi Liz

I am not advocating going to Spain WITHOUT insurance BUT we have been to Costa del Sol many times and we did not have insurance. I remember Gills husband Stephen, when they went to France, saying that he was not going to break out in a severe case of Myeloma. Kev, like Frank knows his own body. We had been looking into going to Tenerife,…[Read more]

Hi Tom,
Welcome back glad you had a nice break, as I’ve told jean we only want to go to mainland Spain (two hours away) so we’re thinking the same as you? It’s me that’s worrying kev would go tomorrow if he could, I’m going to try a couple that jeans suggested.

Love liz & kev xx

Ps Tom has your new treatment been sorted?

Hi jean,

Thanx for that I will certainly look into the two you’ve mentioned,
When I tried to get insurance for kev last year as soon as I put that he was on strong pain relieve they refused him, I’m wondering weather to mention it next time?
I always feel its best to be honest in these matters, but then kev says we’re only going to mainland…[Read more]

Hi Deborah

Good luck with the Trial. Hope you find some other fellow travellers out there!

Best wishes.

Mavis

Hi Andy

Happy New Year!

I do hope the new treatment works for you. It has very good write ups which is why NICE has agreed to fund it. I think it is related to Thalidomide, but I might be wrong. You are another front runner for us all.

All blessings.

Mavis

Hi Jeff

I can imagine how you feel not knowing the answer as to why you were taken off the Trial. I have learnt to be more assertive and ask “why?” I also always take a written list of the questions I want answering so I don’t forget. I nearly always see someone different, but I find having my “list” helps them to see I want to understand…[Read more]

Hi Sarah

Welcome from me. I have been having trouble getting on site lately and am only just catching up.

I came into MM the same way as M, but fortunately with no break to complicate things -only the caging in my back. I had a further trauma a year later when I again lost mobility. That’s when I starter on chemotherapy, CDT. Fortunately I…[Read more]

Hi Tina

Also so sorry you have been in hospital. I’ve had a bad cough, but fortunately although I still haven’t got rid of the cough I have been OK apart from that.

Do hope that this apart life is going well for you.

Love.

Mavis x

Liz that should be Kev. New site at the moment doesn’t alllow you to correct mistakes

Jean

Hi Liz

Before Frank starts treatment we insured with Columbus and after treatment we took out a yearly policy with All Clear. I hope you can get sorted as we feel Bret when we get away

Best to you and Kecia
Love Jean x

Hi Andy and Steph
Well you both know how i feel for you two but am sure it wont be long before you are coasting alone and waving to me as you pass Sunny Scunny on many of your jaunts away, I also know you both will stay strong and fight this reroute that has been thrown your way.

Love to you both

Tom Onwards and Upwards xx

Hi Liz and Kev
Its a bugger this ins thing but am sure their is loads on here that use it but for me I only go on normal ins to be honest but i dont go far, I am not saying others should but I only go when am fine, had a great time for the last week and I hope i can get another couple in this year.

And Harmony the moment has been seized with both…[Read more]

Stuart

I’m sure you are tired hearing from me but the spammers have hit new comers section

Jean

Stuart same with this post. Last line missing

Sorry Stuart but site mis-behaving again. I posted to Sarah on newcomers. When I posted I went into post to fix errors. Only half post was there and when I clicked on it – it highlighted itself and disappeared. When I reopened it half the post was back. Tried a few times with the same result

Sorry Sarah site playing up again or my IPad is. Part of the post was missing and wouldn’t let me correct my mistakes. But anyway I wish you and M the very best
Love Jean x

Hi Sarah

Frank had his SRCT in Belfast City Hospital in March. He was also told of all the same things not to eat. Just like a pregnant woman’s diet. I was not allowed to bring him packaged sandwich from the hospital shop. The thing he missed the most was farmhouse pate. Like Megan I used bacterial wipes on every surface. I drove my grand…[Read more]

Hi Andy

Well do you feel,you have had your hand slapped!! Lol

Andy after all these years on this site and your countless experiences of so many,many different chemo,and people with different opinions and approaches!!!

Hope you intend to go out for Sunday lunch and enjoy a pint of real ale,treat it the same way as the BT .lol.

As for…[Read more]