Hi Nettie I havent experienced this but I can understand it as certain smells takeme right back !!Hope it doesnt last too long and hope you dont get too many problems with the snow either love Bridget x

Hi Scott,

Interesting to hear about your figures, though obviously I'm sorry to hear they've progressed a bit. But if it helps, I had a couple of blips like that and then things went back to normal again, before I started to show a steady deterioration in figures. So it's definitely worth watching for a month or so before you make any bg…[Read more]

Hi Roz and you all 😀

To check out Scams? to see if they are true I use Snopes, its free and up to date, here is the link :::::::::
http://www.snopes.com/info/whatsnew.asp just add what you need to know in the "Search" Bar and it will bring it up, tell you where and when it was started and if its a real threat.

And for those Telephone…[Read more]

Lolol

An same for iccle ole me lol 😀

Oh Gaye
You little devil:-D
and here I am with bloomin Chapped Lips:-S and you my Young lady have made them bleed ha ha, Good one and yes the last few lines caught me out also Ha ha

Broken skin Tom 😎

Aww Min what a view 😀

I would get nowt done I would just sit and look out the window Ha ha

Here is one of Charlie and I, after a walk tonight, No probs re his paws as I put him in warm water to get the snow off he he.

Tom an Charlie xxx

Dear Roz I can only imagine how bleak the future must seem to you right now but please dont give up hope When Michael comes home he will have his own care plan and package which will include plans for blood transfusions and fluid intake Both you and Michael have the right to insist you are included in all the planning so you will be able to voice…[Read more]

Hi Min it really does look lovely but I would be fed up as well !!Like Gaye I am definitely a southern softie Heres hoping it wont last too much longer love Bridget x

Hi Lynnie so sorry the news about Johns kidneys wasnt good It must be very hard to accept no wonder he was down I am sure you said just the right things and will get him through it , he is a lucky man to have you with him all the way Hope he feels brighter tomorrow love Bridget x

Hi Arlene its understandable you should all be anxious about your dads sct , I certainly was ! Doctors have to warn us of the worst possible outcome , but as Eva has said the majority of us cope with an auto sct remarkably well Get your mum and dad to talk to the specialist nurse about their fears , she or he will be the best person to reassure…[Read more]

Hi Georgina I hadnt realised your mum went to UCH too Whats her name I shall look out for her on Wednesday love Bridget x

Hi Lindsey,
I feel very much the same as you about the trial….don't think it can be a bad thing at all, and hopefully I'll avoid the velcade option as I'd rather go straight to transplant and just get on with it all.

Like your mum, I'm having limited side effects and am just really tired (but I always am with 2 little kids!). It was great to…[Read more]

And a "Well Done" That Kath 🙂 what great news to see on our site another one that proves the Dr wrong 🙂 and long may it continue

Tom xx

Good Morning Roz I am so glad the nurse is keeping you informed and I hope she gets that meeting arranged quickly Have they checked Michaels calcium levels ? If it is too high it leads to confusion , which could be sorted easily I am crossing fingers and toes the weather doesnt stop you going to see Michael , its a nuisance for us all !!love Bridget x

Hi Debs so glad it hasnt been too awful for you The taste thing is my worst side-effect I can just about tolerate everything else but I love my coffee!!Keep an eye on those bruises and mention them when you go as you could be getting low on platelets Take care love Bridget x

Hi Donna

So sorry for the delay in posting but have just found your posts.

So Sorry that they said nothing else can be done for your Dad, its a bugger of a illness is this MM, and I hope your dad proves them wrong.

Love and Best Wishes

Tom xxx

Well, I thought I'd do a quick update in case anyone else is going on the Myeloma XI trial.
I'm now on day 5, so have had 4 days on dex and 1 day off, and still seem to be doing pretty well! I know it is early days….as Nick keeps telling me, we've got over 100 to go, but you have to take what you're given don't you!
I think I can sum up so…[Read more]

Dear Donna I am so sorry to hear the doctors think your dad is untreatable and I really hope he can prove them all wrong love Bridget

Hi Scott welcome to the crazy gang !!Sorry being flippant but you will find lots of support here from smoulderers and those of us who have mm Look forward to reading your posts Bridget

Hi Donna it does sound as if calcium could be causing your dads confusion , my father-in-law had similiar earlier this year Once they got his calcium lowered he got back to normal fairly quickly. You are wise to get a second opinion hope you get some answers Best wishes Bridget