Hi Nicki its a bit spooky seeing your post as I was wondering this morning how you and Sam were!!!Glad to hear he is home now and nothing like your own home to feel better love Bridget x

Hi Roz you are a strong person Roz , you must be to have got through it all so far !!!!Tears dont mean you are weak they are a good way of relieving stress so please dont give yourself a hard time We all want to help and words are our only way of doing that unfortunately but there are a lot of us on here that really care about you and Michael and…[Read more]

Good morning David,

Hope you all still a happy 10 on the happiness scale 🙂

Sorry I haven't posted to wish you luck before now, been a busy few days with Sam coming home so haven't been on.

Best of luck and hopefully before you know it you will be recovering at home as Sam now is (thank god!).

Will be following your daily blog with…[Read more]

Hi guys,

Yes Sarah I think our husbands are roughly at the same stage, how is yours doing?

Pleased to report that Sam came home on Wednesday, 16 days after being admitted, and is doing well, he is still pretty exhausted but apart from that he is making a good recovery.

The day before discharge his White Blood Cell count was above 2.5 and…[Read more]

Hi Judy,

How's things?

My husband Sam was discharged from Fletcher Ward on wednesday after his SCT. He is doing well.

The staff are very nice on the ward and looked after Sam well.

Take care and keep us updated.

Nicki x

hi and welcome!

I'm also asymptomatic/smouldering (though at first they labelled me MGUS). I did consider curcumin, but the thought of that many pills extra was a bit much – I've got RA too and there are plenty of pills a day for that. Though at the moment my pp has dropped significantly and I think it is because of Humira (anti-TNF drug…[Read more]

Good Morning David heres to another good day for you . Gaye hit the nail on the head you are a naturally positive and happy person so if anyone can get through it and be cheerful its you If your visitors turn up wearing pegs on their noses you will know for sure its sweetcorn day !!I am not snowed in yet but it is blooming cold out here !!love Bridgetx

Dear Roz how strong you are and Michael too , hang in there and keep fighting it . If it were me I would be insisting on that meeting today , otherwise you wont see anyone but registrars till Monday .But at least Michael is in the best place to get treatment for the infections. Never give up Roz love Bridget x

Hi Lynne what an awful time for you both no wonder you are frightened but dont give up hope It sounds as if they are beginning to get things under control, Dex is an amazing drig and very useful in myeloma as it reduces inflamation and helps other drugs to work There are a couple of people who post who have had acute kidney problems and needed…[Read more]

Hi Gill nice to see you on here I agree wth Gaye you need more info , if I were you I woulld ring Dr Rabin he is very good at ringing back Please keep us posted love Bridget x

Hi Sue a lot of us do have bone pain most of the time and it could be just that You should make an appointment with the doctor or specialist nurse to review the pain medication it may just need adjusting or even changing the type Try not to worry too much I am sure if your doctor has any doubts they will do scans and x-rays to be sure Either way…[Read more]

Hi Michelle wonderful news !!! I am so pleased for your mum and you it must be a weight off your mind and now mum can get better much more quickly at home love Bridget x

Hi Kathleen

A warm Welcome to the New Gathering (gosh i sound like an American Evangelist lol)

And as for "Normal" I aint a clue what that is it certainly aint iccle ole me Ha ha, I know folk at work tell me they are "Normal"????!!! well looking at them am pleased I aint he he.

And yep this site is also Slow for me??

Love to all us…[Read more]

Hi Roz

Pleased you like the "Hugs" 🙂

As long as you get a bit of rest and spend some time for yourself you will be fine, I hope your Day goes Ok 😎

Cyber Hug" here

Love Tom xxx

Morning David good to hear you are still feeling ok .I have had a few occasions in hospital where mistakes with drugs etc and I must admit I usually do my own check , I cant imagine anyone getting away with it with you either !!In saying that its the last thing you need to worry about when you are feeling lousy but we are so vulnerable when we are…[Read more]

Hi Kathleen glad you got here and who wants to be normal , not me !!! I find it slow to get into services and the discussion forum perhaps it needs a tweak or two Glad you levels are on the up love Bridget x

Hello Kathleen

so glad you made to this new site as for normal who is normal here
not many of us
Keep well Jo 😎

Hi Roz and Michael

Am so pleased to read your last post Roz cos one thing comes through the words is that Michael's Nurse is now in MORE contact with you and that alone tells me through your post that you are a lot happier and I see you are getting your sense of humor back 😛 and that did make me laugh 😀 .

Lots of best wishes to you…[Read more]

Hi Norman I have been having these infusions for the last years Initially I was on Parmidronate once a month, fairly simple takes about 2 hours Usually ache for a couple of days afterwards , a bit like flu , bit after that no problem Having changed to Zometa recently , just had my second dose I have had no side-effects as yet .I do find it helps…[Read more]