Hi Tom hope you and Elaine have a great holiday , will recharge your batteries for the cold winter love Bridget x

A warm welcome to all that eventualy got here:-D and am sure by the time i get back from my jollie's we will have transported a lot more 😎

Have a great week and i will see you all when we get back 🙂

Iccle ole Tom xxx

Hi David and web team I had the same problem when trying to reply to Toms post Bridget

Hi Gavin I am not too sure I can help much with your decision as each of us is different . I did go for the chemo option , but in my case the damage was extensive and severe and I was stage 3 when diagnosed. If your general health is good and you havent too many related problems then you may choose to wait ,but I would discuss it further with your…[Read more]

Hi Min I am lucky as I have only been breathless a couple of times ,iy must be a bit scary.I do occasionally have nose bleeds , nothing dramatic and usually when my platelets are a bit low .Good news about the kyphoplasty ,I just wish it was suitable for me but not so My mum who is 84 frequently tells me off for lifting anything as she worries I…[Read more]

Hi Stuart a big thankyou to all of you the site is becoming even better each day!!Its great that you are taking our ideas on board too Thankyou again Bridget

Hi Michelle so pleased mum is doing well and still going to disney on ice , it will do her the world of good It does take a bit of time for the reality of mm to sink in but once you accept it you can put it to the back of your mind and get on with living Your mum sounds like a very strong minded lady which will keep her going Please pass on my…[Read more]

Hi John welcome to the crazy gang !!! I think the best thing about this site apart from the wonderful support we give each other is the humour and refusal to be ground down by this lousy illness Take care Bridget

Hi Nicki so glad to hear Sam is doing well please pass on my best wishes What a lovely photo of the two of you . Hopefully Sam wont have too many roblems , lack of appetite and and energy are fairly standard just make sure he doesnt overdo it when he gets home love Bridgetx

Hi Kevin you really have been through it this yearheres hoping that was your last hospital stay for a very long while !! Constipation is the bane of my life too but luckily it hasnt been bad enough to need to be admitted. Mst morphine is brilliant , makes life much more bearable Take it easy love Bridget

Hello John

glad you found the site have just managed to find it myself not good at adding the picture yet

Regards Jo

Hi there.
It is so hard isn't it to know whether you're getting the right treatment or not. I have been asymptomatic until recently and was worried in the same way as my paraprotein went up over 6 months or so from 32 to 45 which seemed high in comparison to lots of other people. Like Mike, I had no other end organ damage/ bone pain etc.

What…[Read more]

Hi Norman welcome to our gang sorry you find yourself here though As Min has said you will always get answers on here and all the support you need from people who understand and care . You definitely should not have to put up with pain ,I have extensive bone damage and take mst morphine and severodol for pain Pain relief is the first issue dealt…[Read more]

Well ur in And Welcome xxx

Hi ( sorry you didnt put your name ) trouble is myeloma is so individual its hard to compare treatments In my case my doctors take the whole package into account before suggesting treatment , which means scan results , bone marrow biopsy as well as paraprotein levels.If you feel comfortable with the consultant the perhaps asking the question…[Read more]

Hi Michelle great to hear mum is feeling a bit better My fingers and toes crossed for her to get to disney on ice love Bridget x

Hi Gill Iam so glad you made it !!This site wouldnt be the same without you love Bridget x

Hi Michelle and Mom 🙂

So Sorry to hear your Mum was poorly again 🙁 and am Hping your Mum is well enough to see disney on ice, so I have fingers and everything else "Crossed"

I hope and know everything will be OK

Love Tom "Onwards and Upwards" xx