Hi Chris,

Glad to hear from you, Phil had his SCT shortly after you in December and Thursday this week was the first day almost pill free for Phil as he was finally able to stop taking the acyclovir, the only pill left is adcal once a day and then Zometa once a month. Phil will have his first childhood vaccination on December 23rd.

Megan

Hi Chris

Glad that things are going good for you. Frank had SCT In March and like you he’s going through th re-vacation. He’s had second lot and brought a lot of material to read about the vacations. We did laugh as all the points started “if your child shows ..,,..” He’s 70 so we don’t know what a 70 year old would experience!!!!!!

Hope…[Read more]

Dear San,

I am sorry your Mum is having a rough time but I am glad her pain is being managed. It must be frustrating for you to not be able to visit but take care of yourself so you are better soon and able to go and see her.

I am thinking of you, your Mum and your family.

Megan

Hi Andy,

Just trying to catch up with posts as I’ve not been onto the forum for awhile a lot of changes and my iPad doesn’t like the new look site? But hopefully the web team will sort it.
I was interested to see you are on cycle 22 here’s hoping it carries on doing good and you get to 24! Kevs only half way but hopefully settled into it now…[Read more]

Hi Maureen

I have been taking Manuku honey for about 5 years and haven’t had as much as a cold. Hope I Hevesy spoke too soon. Frank won’t take it as he says it’s too sweet. Hope Ian is improving

Jean

Hi Harmony

Happy Christmas. Do hope it is a very special year. One thing about a diagnosis of MM is it does make you value each day. Perhaps in this way, it is one of its gifts!

As Andy says ” each day is a gift, use it well.”

Blessings to you and your family.

Mavis xx

Hi Tracy,

Welcome. Your response to the diagnosis and the treatment is quite normal. MM is hard to come to terms with and an ongoing battle. I do hope that the chemotherapy does its magic for you and that you progress steadily to a very successful SCT. Do be kind to yourself and find ways to make “being at home” more pleasant. I imagine you…[Read more]

Hi Nick

Just wanted to pop in and welcome you to the a Forum – sorry you have had to join us! Sorry you progressed to MM so quickly. How did you get diagnosed?

I just hope you do as well on CDT as I did. After six regimes I have now been in remission since summer 2012. Of my own choice I have not gone down the route of SCT. I am 68 years.…[Read more]

Hi, If you type in google you might be interested in (margaret’s corner) shes dealing with smouldering myeloma and has loads of information on diet and references to studys that have been done on her blog. She is also on facebook under (Margaret’s Corner. Living with smoldering myeloma). She doing very well so far and is just one of the people…[Read more]

Hi just thought I’d let you know I have a iPad 2 and finding it very frustrating scrolling down it seems to be sticking! If you know what I mean?

Regards liz

Hi David,

Just getting my head around this new site and catching up with all the posts as I have not been posting for a while. I’m glad to see revlimid is working for you kev is on cycle 12 and doing well, he has been getting quite a lot of chest infections but we think they have now got on top of things and he’s taking antibiotics until…[Read more]

Hi Luciano

Sorry you have been diagnosed with smouldering MM. My husband was diagnosed with smouldering in 2006. He had STC In March this year. He is improving a little every day and in September we went on a 16 day cruise round the Med. When he was smouldering we made the best of things and went travelling quite a lot. When Frank was…[Read more]

Hello Tom,

Sorry to hear your news,am certain your positivety will help you through this again,
I will keep my fingers crossed you get another four years! I know I’ve not been posting for some time (been poorly ) kevs not doing to bad he’s on cycle 12 of revlimid and at the moment he’s stable, hopefully I will now continue to pop in to the forum…[Read more]

Thanks Andy for passing on the post. I too was emembering Dai yesterday and thinking Bout his family. He kept popping into my head the oddest of times. His sister Angie posted a link to song on Facebook that was composed by a friend of Dai. If you get a chance listen to,it it is beautiful. He will be sorely missed but his memory and spirit will…[Read more]

Hello Stuart and Andy,

You are not alone Andy :-). On the iPad the forum has slowed for me as well and I often get an Internal Server error when I try and read a post. I have also found that it is now not really possible to view or post things using my blackberry unless I am very patient, the old forum worked fine on my phone but I thought maybe…[Read more]

Hi Andy and of course the family and extended family of Our Dai.

Yes I spent a lot of Today thinking about Our Dai and the strength,wisdom and knowledge he passed onto to us all even when he wasn’t so well himself.

That and all you others that helped and are still helping is a great strength to us going through our treatment.

Our Dai will be up…[Read more]

Hi Angela
Well you ought to tell my young bride to listen to cos she dunt ha ha.
Well am sure you have seen my post telling you I am going back on treatment, but I have had a great four years and am well rested for the next road to remission am just taking a bit of a detour

Hi Eve:: well am sure he said pet scan?? but we will see lol, yes i know it should give me another two ish years and am happy with that as we never know what will come next (that cure sounds good though) I have a good sprint on Eve dont worry about that and when it gets too close I will turn round and hit it head on and trust me the Myeloma aint…[Read more]

Hi Gill

I’m so glad you have called in to see us. I do hope your plan for how to cope with Christmas works for you. You are the important one in all this. I am glad though, that there will be family around over the Christmas season. They will all be feeling a gap at the table too, as it were.

Do hope you and your best friend can spent some…[Read more]