Hi Vicki and Colin
Yes I am ready for "the cure" ???? yes I am drug free but it's the same as always when it comes the the bloods,the worry and am sure the stress, but hey ho it has to be done.

Stay well you all.

Tom Onwards and Upwards x

Hi Tony and David

Spring might be late this year,but its worth waiting for after such a long time not being able to enjoy it.

Slim was in hospital for 22 days first time, I use to drive with windows open along the A2 on the way to hospital at 8am back at 9pm,so spring passed me by.the next time Slim was in Kings having SCT,good hospital,but…[Read more]

Hi Dan

That's wonderful news,give your self a pat on the back,you are doing wonderful. Please take time for your exams ,they are your future and very important,make sure the appropriate authorities know your problems,it,s important.

There is no magic formula ,the general feeling is your dad should get 1/2 the remission ,but lots of factors…[Read more]

Dai I have said that Many a time 😀 that I haven't and never did have it it was all a mix up Ha ha.

But I also feel that I am doing so well (drug free) is because I had enough Stem Cells for two transplants BUT they put them into three bags and not two :-S , so Saffy the consultant gave me the three bags, twice as much as I needed ? so do you…[Read more]

Hi Christine and Chris
Well I honestly cant add to that excellent post of Our Dai's its spot on, no rush nice and steady, you both will have to learn to change with the MM, but always always fight it.

Love tom Onwards and Upwards xx

Hi Ann

Sorry in delay in reply :-0

I think my wait was because my Dr missed me and sent another patient when it should have been me (he got told off though 😛 )then I had to wait for a bed to be free at Hull, as you know it all worked and am still kicking though not as hard 😎

God Luck with all yours.

Love Tom Onwards and upwards xx

Hi Skyblue

I am sorry to read your Grandma has been told she has MM and I hope the treatment is kind to her.
I also think this MM stuff is passed on I have told my three sons if they have bone pain go to Dr and tell them about Me and Ask for Blood tests.

Good Luck to you and your Grandma.

Love Tom Onwards and upwards x

Hi Helen

Yes its work but not hard work to be fair as I have been looked after like a long lost Son at my workplace.
As for driving yes I did and still do after my SCT in 2009 I had to go back to hospital every week for bloods and a check up and I drove to and from Hull 😀 , even after my BMB at 100 days I took a Friend with me to drive home…[Read more]

Hi Sarah
Gosh you have your hands full I can see, and am sure its stressful for you all.

I hope you take some time out for yourself?? as you will need it.
Congrats on the New baby they always bring an extra sparkle to people don't they.

Keep well and say Hi to your mom for me.

Love Tom Onwards and upwards xx

Welcome Anne
Sorry to meet you this way way-it takes a while to sink in but I hope it encourages you to know that many of us have enjoyed some success in battling this stupid cancer.I myself was diagnosed in 2005 and although I'm not as active active and sporty as I was I'm still kicking!
This is a great site with lots of nice people who are…[Read more]

Hi Ozzy, sorry you are having such a rough time, I hope they find a way forward for you soon. The one thing I have realised right from the start is how unpredictable myeloma and the treatment can be. There seem to be so many twists and turns for many people but everyone seems so strong and just take each hurdle as it comes. I may bump into you at…[Read more]

Just want to add my best wishes Geoff take it one day at aime

Love Jean x

Hi Helen

I thought I'd come back to you on this thread! I think I missed this because I haven't been on so much. I feel bad because, as I have been feeling better I didn't want to be reminded of Mm all the time. I always remember how Bridget was so faithful supporting everyone in spite of how I'll she was getting. It is a challenge isn't…[Read more]

Hi Helen

Slim had 6cycles he was much better in himself. On Velcade,hated the messing about between bloods and treatment,we did try to vary it as spent an awful lot of time just waiting round eg bloods 9am Velcade 3pm never,never on time,also once a month tablets late as usual by hours usually 6pm. Towards the end went in at 9am took slim…[Read more]

Hi Rangecroft

Welcome,I am interested in your reply as my husband is at the stage of remission ending,and going on Revidimide . We will know in the next couple of weeks.
I am not convinced about Revidimide as thalidomide treatment did not work for him, but it is the next line of treatment,so many cycles then used as maintenance until it…[Read more]

Sounds a greaT trip David

its a wonder you had the energy to complete it time for a rest now how is the velcade going well i hope:-)
Love Jo x

hi Sarah

sorry they could not get enough of those little devils so better luck next time. gave up on my hair and had it all cut off so now its just wash and go my grandson said the other day when looking at photo's i like that one you had hair then gave me a big kiss so kids are cool:-P if they love you is doesnt matter
Love Jo x

Hi SCOTT

Dont get down hearted it seems like they are not giving up on you and your body could probably do with a rest let us know how you are getting on keep in touch:-P
Love JO X

Hi Karen

A warm welcome from me as well, I am a carer for hubby.

Hubby diagnosed in February 2011 after back pain became major problem in July previous year. CDT then Velcade SCT in May 2012 ,.waiting on results to confirm out of remission .

The last couple of years have flown by and our world has got a lot smaller,but cannot complain…[Read more]