tom replied to the topic Anti Biotics in the forum General 11 years, 7 months ago
Hey Babs
Thanks for that but am a lot better thanks to the Anti B's and am now back at work.
Yes I wish I could have Just the good old fashioned Cold Lol.
Get one of those Onseie's bought they are very warm and that's what I want.
Hope your Soon Better Babs
Love Tom Onwards and Upwards xxxx
tom replied to the topic dental treatment post SCT in the forum General 11 years, 7 months ago
Hi Terry
I was told same all work is Ok bar an extraction, but am sure your dentist will know this make sure he knows what you are taking and what you have had done and leave it up to him to say Ok.
Happy Filling
Tom Onwards and Upwards
tom replied to the topic Feet in the forum General 11 years, 7 months ago
Slim
I have to say you are well and truly Spoilt well done you.
And Eve am not sure if I should tell Slim or just leave him to his own Imagination Lol.
Love from one Tender and cold footed MM sufferer awaiting massage 😉
Tom xx
tom replied to the topic Zometa 'flu' in the forum Side-effects 11 years, 7 months ago
Hi Dai
Am Sorry you have the Flu symptoms with your Zometa and no one made you aware of it, I can say that I was told what Might happen whn I was going to get my first one and was given a Sheet to take home and study with what migh or might not happen after Zometa inf.
Hope its not proper flu you have and don't know Dai.
Tom Onwards and…
CarolBradley1 replied to the topic yet another relapse in the forum General 11 years, 7 months ago
Hi Terry
I have only just seen your post because I have been "out of things" for a while – chemo etc. getting ready for the second transplant having had the same rotten news as yourself. I don't blame you for being bitter but at least they found it early – mine seems to have becomr non secreter (not sure if that's exactly right)so the urine…[Read more]
jmsmyth replied to the topic Wife's life on hold? in the forum General 11 years, 7 months ago
Hi Terry
My husband has had MM for nearly 7 years. He has just had his SCT. I couldn't care less if I never have another holiday in my life. As long as I have Frank I will be happy. I do not know your wife but I am certain that she "is not waiting around until the end before she can move on with her life". As Andy says – every days a gift.…[Read more]
tom replied to the topic Wife's life on hold? in the forum General 11 years, 7 months ago
Been their and done that Terry my old friend 😀
BUT Turned my sorry little ass round and now face it head on (not always with a smile though).
I get asked how I cope with the prospect of Dying ?? I say the same way I cope with Living, one day at a time, yes I was given "Notice" that I have a terminal illness, but that's just warning me…[Read more]
tom replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen
Well well done on the good bits 😀 and am sure the bad bits will get better 😉 .
It is that Roller coaster that we all dread aint it.
As me ole Aunt used to say "Get some more Veg in ya itll mek ye better (as bloody if lolol)
Love Tom Onwards and Upwards xxx
tom replied to the topic One year on (A long year) in the forum Newcomers 11 years, 7 months ago
Hi Paul
Welcome and well done, I also am 57 but I had all mine done in 2009.
You have done well with it am pleased to read, keep it up
Tom Onwards and Upwards
eve replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen
Lets hope you find the key
Slims bloods are good,even kappa light chains showing rise,but on the 7 May it will be 3 months from the last BMB he will have another ,then the wait until 24 May for results. 10 percent three months ago.i wonder what it will be in 3months and 3 weeks.??? It is hard to just have BMB as marker,.
They…[Read more]
mhnevill replied to the topic 2 weeks in hospital in the forum General 11 years, 7 months ago
Hi Jo
You are always such an encouragement to everyone here. So sorry to here things haven't been going so well. Glad you are improving. Do hope things go well with Velcade, but sorry you have to have it. Hope your kidneys cope OK.
Lots of love.
Mavis xx
jmsmyth replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Vicki
Frank is doing ok – I think :-S He is getting his appetite back. Eating small amounts but few times a day. He has had a G& T, Guiness atnd beer. Hasn't got the taste for wine back and vegetables, he won't touch them. Doesn't appear to be putting on any weigh. Going tomorrow to see consultant
How is Colin now?
Best to you…[Read more]
eve started the topic Feet. in the forum General 11 years, 7 months ago
Hi Everyone
Twice a week I clean and massage Slims feet, It help as his feet are very tender and cold since treatment .I use Cocoa Butter Formula. While I was applying lotion,he was reading the container,recommended for stretch marks. With a dry sense of humour he wants to know if it,s possible .:-P
Tom tell him.eve
eve replied to the topic Wife's life on hold? in the forum General 11 years, 7 months ago
Hi Terry
You are in the shock stage,Slim only got 6 months between 100 day BMB and the next one,your life turns up side down,we thought he might get 2 years,so yes it,s a bit of a bummer,Helen says it bites you in the bum,when you do not expect it,I call it a shark attack.
Slim worries about me,why???.you cannot change the future ,I want…[Read more]
jmsmyth replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
Hi Helen
More more ups than downs pleaseA :-D. Hey why did they take your spot of you damn cheek !! Hope all comes right
love Jean x
BADGER replied to the topic Lightly chained to the Roller Coaster Ride in the forum General 11 years, 7 months ago
HI Helen
i hope you start to get more ups than downs i hope you get your parking space back it must be difficult to work as it is with a bad back hope you are sorted soon
love jo x
tom replied to the topic After Stem Cell in the forum General 11 years, 7 months ago
Hi Mary
No am sure you wouldn't want to "Shove" him in another room ha ha.
It will all work out am sure. give the dogs a good wipe when they come home 😀
Tom Onwards and Upwards xxx
tom replied to the topic Anti Biotics in the forum General 11 years, 7 months ago
Hi Maureen & Ian
Doing Better now been on Anti B's for 5 days now so think am ready for back to work Tem is Normal now and last nite so its gone 😀 ps its Vodka and lemonade Lol
Hi Jo
Am sure you didn't yours was bad I dint need hospital am pleased to say just a couple of extra days added to our week end and fixed.
My Tem was running…[Read more]
tom replied to the topic My Velcade Journey in the forum Treatment 11 years, 7 months ago
That's what we love to hear David "So far so good nothing out of the ordinary to report"
Lets keep it that way My Friend.Vasbyte
Tom Onwards and Upwards 😎
tom replied to the topic Starting again in the forum Newcomers 11 years, 7 months ago
Hi Joanna
Welcome
Sorry you came off CTD due to being sick, but am sure you will go back on it it, its a good treatment worked for me in 2009 and yes I was sick with it off and on two stints in hospital (Early days) but stuck with it and here I am in 2013 in remission and drug free 😀
Now how's that for "words of encouragement" Good luck…[Read more]