Thank you, annlynn, jess1965, & Maureen,

Been at kevs bedside all day he’s had his Stemcells today, melphalin has upset his stomach and he’s not eaten since yesterday morning but other than that he’s coping well.
I’m now home knackered on the settee chilling! Might even have a glass of wine?

Early night I think and try to sleep?

Thank you all Liz xx

Hi Rebecca

I have just looked into your profile as no picture! And see how much you are now helping other people, I know I was too blunt at times! But you seemed to be able to get the message across very well, this is the way it should be,helping each other on this journey,then leaving that road and going on a different one.

It makes all of us…[Read more]

Vicky
It goes without saying how sorry I am to hear your news.
i know the auto pilots switch is on for you now,it takes awhile to realise how exhausted you have become,it’s very hard to cry and mourn.
Just try to cope the best way you can,these last few years you have held everything together,being strong for everyone,I can only say,be proud of…[Read more]

Thank you Ann

I have come along way in the last 5 years, 4 years of Slims illness and 1 year on my own,it’s a big learning curve,and I still look in on cyber friends,see how Tom or Andy plus a few others if they don,t post on the Facebook site UK Myeloma ,I worry. So Myeloma never really leaves my world although Slim has gone.

I just wanted to…[Read more]

Well where do I start! Kev had his second DTPACE which hit him a bit harder than the first cycle most of August was spent in the hospital trying to get his neutrophils back up and low HB, infection in his blood, then finally home to some normality what ever that is? Kevs appt to get his FLC results 27th August was overtaken with kev taking ill and…[Read more]

Morning Andy,

Sorry to hear you’ve been unwell and hospitalised, as for keeping vigilant on temperatures I was doing the same thing last Thursday with kev prior to his clinic appt: that afternoon he suddenly felt unwell with temp: rising by the min, we got to clinic and was seen straight away! And kev was admitted with infection in his pic line,…[Read more]

After 2 injections of velcade M protein fell from 19 to 17 so hopefuly thing are going in the right direction again,slowly as anticopated with velcade ?
Mike

Dear Vicky

I haven’t been on forum for some time. I am devastated to hear of the passing of Colin. My thoughts and love are with you at this very sad time.

Love jean xxxxxxxx

Dear Vicki

So sorry to hear the sad news, thinking of you Andrea xxxxxx

Hi All

Dawn, I hope you managed to complete your stem cell harvest. I deferred my transplant till after my sons wedding after my harvest which I am very grateful for. At my last appointments my pp was 11.7 and 10.2. It was 12.8 before transplant so doesn’t seemed to have budged much! I seem to be around the same level as you Peter. My white cell…[Read more]

Dear Simon

I can feel your frustration with you. As Andy has said this is a complex disease and each one of us is very different. I can say though, having read posts on here for five years, that having “only” a partial remission doesn’t seem to determine the progress of the disease. Some people don’t seem to achieve full remission even after a…[Read more]

Dear Vicky

So sorry to hear Colin has passed away, my sincere condolences to you and the family
Thinking of you.

Love Liz & kev xx

Dear Vicki

So very sorry to hear your news of Collins passing my heartfelt thoughts go out to you and your family at this very sad time.

Polly xxx

Dearest Vicki,

My thoughts are with you and your family.

Megan

Dear Dawn,
I am pleased you are doing well and hope all goes well in the future .Do you visit O2 day ward ? I visit mondays and thursdays for my velcade 2 weeks out of three (VCD off trial ) . CTD was stopped working halfway (at PR just ) after 4 cycles .I was offered to come off trial and get VCD for certain which I chose.
I am better…[Read more]

Hi Andy
Glad to hear your doing so well. Pleased to hear that you are coping so well with Pomalidomide – I am now on cycle 24 and just can’t believe where the time has gone. I too get the dreaded cramps – even in my hands if I grip something every now and again and a few other side effects that you know about well enough. My only real downside…[Read more]

Update on kev,

In clinic seeing the consultant with blood results HB up to 9.0 from the previous week 7.5 so a little better, FLC went down from 1400 to 1150 they were hoping at least half! So not as much has they’d liked so kev was admitted last night to begin cycle 2 of DTPACE, hoping it gives MM a good kick up the backside! In readiness for…[Read more]

Update on kev,

In clinic seeing the consultant with blood results HB up to 9.0 from the previous week 7.5 so a little better, FLC went down from 1400 to 1150 they were hoping at least half! So not as much has they’d liked so kev was admitted last night to begin cycle 2 of DTPACE, hoping it gives MM a good kick up the backside! In readiness for…[Read more]

Hi Andy,

I agree definitely a bit of a contrast! 😀 are you attending the Nottingham beer fes? Or has it already happened?

Liz & Kev xx