jmsmyth replied to the topic Full Remission in the forum Treatment 11 years, 8 months ago
Peter congratulations. That's brilliant news
Love jean x
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
What a day. Day 13. Frank has been feeling terrible all day. Neutrofills – with the help of an injection – are 1.2. Platelets are 8. Decided to give him another platelet transfusion. No sooner in when he came out in the most horrendous itch rash all over his body. The worse is in his groin. Gave him – I think peredon which did nothing and now the…[Read more]
jmsmyth replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
Tom you old charmer 😛
Love Jean x
tom replied to the topic Struggling to cope in the forum General 11 years, 8 months ago
Aww Tanya Gi Ower or yel mek me blush 😉
Well we are through the upbringing stage and have moved on broke the chain am pleased to say.
I do hope your dad sorts himself out for him as well as the family.
Your dad is in for a rough ride with the mix that he is in so you must brace yourself as you know you will be the whipping girl to shout at…[Read more]
tom replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
Hi Pat
Aww am pleased Beatrix is home I bet you are all over the moon.
Face time is great but getting some of the grandkids to sit back a little is bloomin hard work ha ha, lets get thos other 5 out of the way and get yesen off to canada.
And Jean am sure you could never look like you have been dragged through a hedge 😀
Love to you and…[Read more]
jmsmyth replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
Pat that is great news. I'm sure you are over the moon and of course the proud parents 🙂 Face time is brilliant we do it all the time with grand children in Kent. Only thing is – they face time me at times when I have just finished the house work and look like I have been dragged through a hedge 😀
Cyber hugs and kisses to wee Beatrix.…[Read more]
jmsmyth replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and Pete
Great news that Pete is home and having lager no less 🙂 well done you. Am sure you are both over the moon to escape. Frank is forming an escape committee of one 🙁 he can't find anyone else to,join!!! He said earlier that he would give anything for an ice cold Miller. He tells me he will be out of here next week but I dont…[Read more]
tom replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 8 months ago
Hi nerys and Mum
A warm welcome to the site, as you know its got great people on here.
You have had your Q answered by those great folk, your Mum's Journey like most here has been a difficult one, most Dr's dont know what and how to tell its MM.
I went in December 2008 with a problem on ribcage and was told it was a "Pulled Muscle or a…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi David
What a great post 😀 yes my family and friends (not all though) cope with my MM in a good bantered way and throw the jokes in 😀
am sure am due an update of photo's David? and the pillow looks great your young lady wife did a top job on it.
Am pleased you say you are not rushing into useing the coffin for many a year to come but…[Read more]
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Dear Nola
I am sorry to hear about your Loss in Jan.
Stay strong and think of the good times you had before MM came into the scene.
Love and Hugs Tom xxx
tom replied to the topic New on here in the forum Newcomers 11 years, 8 months ago
Hi Rob
Yes sometimes when i am sat down for anylenth of time i find myself "Stiff" and difficult to get of the chair some days, but hey that could just be my old age hitting me sooner than most Ha ha.
I still work (light duties) company gave me a portakabin with everything in it and stuck it near the gate and said just book lorrie's in and…[Read more]
tom replied to the topic Struggling to cope in the forum General 11 years, 8 months ago
Hi Tanya
I can honestly feel for you as I also was brought up in a household that revolved around drink as a child, Both my parents have now passed away Dad first then Mum, I never used to take my Sons (all grown up now) to "Scot Nanna's" due to her drinking habit.
That said to show you you aint on your own 🙂 xx
That said I wish you…[Read more]
tom replied to the topic Shaving head in the forum General 11 years, 8 months ago
Hi Jean and Frank
I had mine cut in Hospital by a kind nurse and when I got home i shaved it to the bone with my Electric razor and kept it like that for some time, just used to swith electric razor on and sit wathcing telly and running it over my bald head, did same with eyebrows when they started to have bald bits in them.
Tell Frank to…[Read more]
tom replied to the topic First post! in the forum Newcomers 11 years, 8 months ago
Hi Norma
A warm welcome to you 😀 this group is a great one as and when you need it to ask or even rant and rave.
I had a SCT in December 2009 and am now Drug free and in remission, its a bit of a haul am afraid but a Doable.
Good Luck for Monday and you know now we are here for and with you all the way.
Tom Onwards and upwards xx
eve replied to the topic Shaving head in the forum General 11 years, 8 months ago
Hi Jean
I did not need to shaves Slims head,but he did look funny with tiffs string out,in the end just cut them down to nothing,then it just went by itself down the plug hole.if you have the nerve you could do it yourself .Slim would not let me near him with a razor for his head or face.
Even in ITU a nurse offered to shave him,but would not…[Read more]
jmsmyth started the topic Shaving head. in the forum General 11 years, 8 months ago
Hi everyone
Just had a call from Frank and he has asked me to ask my friends on forum for tips about shaving his head. His hair is starting to fall out – does he continue to let it or does he attempt to shave it. I'm a little concerned as his hands shake quite a bit and scared he will hurt himself. Do hospitals have a procedure for this -…[Read more]
mhnevill replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 8 months ago
Hi Ner
So sorry that you Mum has such a bad introduction to MM. Has anyone said anything about an operation to remove the tumour, or are they just relying on the radiotherapy? I had an operation and then racking put in to support my spine. in my case this was followed by the radiotherapy. I didn't start any more treatment for another…[Read more]
mhnevill replied to the topic First post! in the forum Newcomers 11 years, 8 months ago
Hi Norma
Just wanted to say all the best for Monday. I do hope you don't get the news you fear, but, if you do, we are all here to support you.
Very best wishes.
Mavis x
Debs replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Oh Jean
I'm a rubbish friend! I didn't even realise that Frank had gone in as I've hardly looked at the site recently.
It sounds like he's on his way up though and you'll be surprised how it will change now….probably not too long before he'll reach that magic number.
How are you doing with it all? I always felt for Nick….he'd travel 3…[Read more]
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Vikki and Colin
Day 11 and the keep changing antibiotic. Diarrhoea and still not eating. Neutrophils today 0.26. Suppose it's better than 0. He woke up to watch rugby – Vikki he loves rugby and soooooo sorry but he's with Dai 🙂 Hoping for some improvement within the next few days. Thanks for asking. Hope all is still good with…[Read more]