Hi Rebecca

Are you on dialysis ?..,

I can only tell you about my husband he was admitted with AKF,as he progressed his kidneys regenerated,never went on dialysis!!!!!when it came to his SCT they took on board the knowledge of his kidneys,and he had a lower dose of chemo,but enough to do the job.

There are people on here who have had SCT…[Read more]

Hi Ann and pete
I have never been on "Morphine" but i know folk who have and still are 🙁 and the morphine itself gives problems but its needed, Pete will get better soon use Ice cream and Yogurt (i coudn't do the latter 🙁 ) it will soon get better 😎

Jean and Frank

Well I know how Frank feels re the food 🙁 I also stuggled to eat…[Read more]

Hey Ted
My you are avin a two and fro arn't you :-/
As for the chest problem I think all us MM folk have that I do ?:-/
I wonder what they mea about "The Immune system" being effected?? are they saying that us MM'ers cant have an operation as we might have a comprimised Immune system??
Dont let them shrug you off ted get in and ask away…[Read more]

Hi Dan

Well you are doing a great Job for such a Young man and am sure evry one is proud of the way you cope, but as others have said ask for help and use it you need space and time away from all of this MM stuff every now and then.

Such a lot to do and sitting exams also wow I am proud of you as well 😎 but ask and take the help as much…[Read more]

Hi Dai

Am pleased to read your Temp is dropping, I think its a MM thing ?? I get hot high ish temp every now and again but feel well in myself 😀 and am on Nothing and all bloods are good he tells me Lol.

Stay fit and be Cool Dai 😎
Tom Onwards and upwards x

Hey Jean

Frank sounds like me (but not the footy lol) I never used to ask I just let them get on with it 🙂 if My Mans Happy am Happy

Let frank sleep its going good Honest.

Love to you both

Tom an Elaine Onwards and Upwards xxx

Brilliant news Jean

keep us posted with Franks progress
Love and a Hug
From Jo x

Hi Jean,

If you are anything like I was I worried when I was at the hospital and I worried when I was at home!:-D

I'm glad you found Phil's journey post useful, it does help show that things will get better, it just takes time. I remember when I wrote some of the posts thinking that the stay in hospital would never end and that I just…[Read more]

Hi Daniel

You have been doing all this while sitting exams!!, Dan you are taking on to much do you intend to do uni???,you do have to gather you're family round and make desist ions ,I am surprised they let your dad out of hospital,without more surpport .

Although you dad is cheerful he must be worried, this problem is not going to go…[Read more]

Hi Dan,

Good luck with your exam results today!

Your Dad will be entitled to some benefits so please ask the MacMillan people for advise on this. I think you are doing an amazing job coping with your Dad's illness while also going to school and taking exams. You could also call the Myeloma infoline (the number is at the top of this page) to…[Read more]

Hi Jean

Do not worry about him not phoneing,he will feel all his energy has been zapped out of him,sounds if things are going as planned,Slim use to sleep,on waking he was so apologetic ,I arrived he slept then just as I was leaving he woke,get a good book,they still want you there when they wake up. Love Eve

Hi Megan

I have just finished reading again Phil's journey. These posts are really great as you can follow a journey and see that there is light at the end of the tunnel. 🙂 frank is still on a drip. When I ask him what is happening he shrugs – he's not like me I want to know everything. They put the 7.6 million back and I asked Frank to ask…[Read more]

Hi Ann

I know how you feel watching Pete in pain and not been able to help him. I do hope he starts to feel better soon. It is good that his levels are up. Ann exactly what type of isolation was Pete in ? Thank you for thinking of Frank with all that is on your mind. Frank in a room of his own – has been since he went in. You go into a little…[Read more]

Hi Ann,

It is good news that Pete is out of isolation (is he still in a private room?) but terrible that he still can't swallow, I hope that side effect does not last too much longer. It is about you as well Ann, you and Pete are a team and I know how hard it is when you feel helpless because you can't do anything to make it better for Pete.…[Read more]

Hi Jean,

I hope Frank was doing well today when you went in to visit him. I remember worrying if I did not get a call from Phil first thing in the morning or before I went to bed but most of the time it was because he was sleeping 😀 I learnt not to call too often as I kept waking him up! It is hard not to worry when you are not there but…[Read more]

Hi Jackie

Sorry that your mum has MM but welcome to the forum. They are a great bunch on here for Info, advice and friendship. My husband is in hospital at moment as he had a SCT yesterday. Sorry I can't give you any info on kidney failure bit I know there are quite a few people here that have had kidney problems. I sure someone will be along…[Read more]

Hi Helen and Garry

Your both welcome, the sickness and trots was with me for a couple of months post SCT so not too much of a problem as long as you drink plenty Garry ???????????????????????? it will work out .

Stay well not be long now ????

Tom Onwards and Upwards x

Hi Daniel

Yes you are going to need a lot of surpport ,you are a bit young to be taking all this and even with the best will in the world, it is to much,have you a social worker??? Are you claiming the maximin allowances?… If not see a mac millan nurse,if you ring them up they will visit at home,she should be able to help with forms,it…[Read more]

Hi Everybody

It is interesting how people differ when given. Zometa Slim started on it 2 years ago the same time he started treatment ,but now because we see consultant every. 2 months the Zometa is now given every 2 months,we were told as time goes by it is less effective . He has never had any flu symptoms, to make things easier we have…[Read more]

Hi Dai

Good Luck with this one 😀 and am plesed the net found you albeit Late :-S , I went on Zometa in 2010 after my 100 day BMB after Sct and had them for two years.

As for the Fatigue well I have sort of starting to put mine down::

1) being less active since diagnosis

2) Just plain old getting Older :-S Lol

Dai its Ok to…[Read more]