Hi Louise I have Lol real loud here as in one of my posts I asked your dad's name???:-S and just noticed the post is ::::Garry's SCT journey so I have now concluded your Dad's name is Garry 😛
Gosh am a silly billy lol xxx

Hi Louise

Well that smell differs with people My Eldest Son said it was a fish and chip smell and when he went home after the visit he phoned me and said he though the was still with me as he was in a Fish and Chip Shop lol.

Good Luck to your dad and remind him to mouth wash as often as he can

Tom Onwards and upwards xx

Hello Mango

arnie has also kicked in to me I also hate the moon face i am on the same regime as you about to start cycle 4 i just hope it works I was diagnosed in jan 2009 but was not well most of the year before
Good luck with the Velcade
Love Jo

Hi Jane

Welcome to the club, it's my husband with Myeloma and he is 2years down the line,nice to hear you have a sense of humour,I think it will hold you in good stead as your treatment progresses.

I have a sense of humour,sometimes near the mark,but I think if you did not laugh about something you would end up crying,as you get to know…[Read more]

Hi Louise,

That is the problem with the stem cell transplant, it has to get worse before it gets better! :-/ I hope your Dad continues to do as well as can be expected and that he turns the corner soon and starts to feel better. Hospital food isn't great when you are feeling well, so when you are feeling poorly it is the last thing you want.…[Read more]

Just bumping this one up so that new Under 50's (or thereabouts!) can get access to the Under 50's site – one bonus of the site is that you can rant and rave if you need to without worrying that the people you are ranting and raving about might read your comments – it is a private site so even those innermost feelings that you don't want your…[Read more]

Hi Helen

Thanks so much. I'm sitting here ready to go to hospital but the are strict – visiting only between 1-9. How are you Helen. Aren't you off to the canaries soon Lanzarote? Hope you are feeling good

Love Jean x

Thanks David sounds fun 🙂 Must be an English tradition – never heard of it before. If I tried it in Frank he will think that I have eventually flipped

Best wishes Jean x

Lots of love Sue

Will keep you in my thoughts and prayers. You must have been very proud of Charlotte. Aren't we lucky to have a daughter. I love mine to bits, even if she and the family are about to go and live in Luxembourg.

Take care, be patient with yourself, you are on a long, sad journey.

Mavis xxxx

Hi Sandra

I'd forgotten that I had shingles while on CDT and it was very painful – round my middle. Still get a tightness, but nothing to worry about.

Take care.

Mavis x

Hi Paul

Sorry to hear your news. Keep fighting.

Best wishes.

Mavis

Hi Jane

Sorry to have to welcome you. How wakeful for your daughter to be having to cope with the dreaded MM twice – unbelievable.

No one has said much about the side effects of CDT so I thought I.'d add a bit.

I had six rounds. I had no side effects from Dex, but did find food tasted really strange. I found I preferred things with…[Read more]

Hi Jane
Sorry you are having a "Downer" you will have a few of those am sure :-S I do and i find (even as a mere male) that its better to cry in the shower :-0 , Yes i cry and yes i do it in shower its good for me so it might be good for you??
Its a rough rough road you are going down I have done that road and had a few bumpy bits but it has…[Read more]

Hi Sue

I know a number of people who are at different stages of mourning,this also includes my daughter and myself,for my first grandchild Matty who was 16.

There is no right or wrong way,just take it a day at a time,you will go through every emotion,but in the end you have to do it your way .No one can really help you,Ruth and I find…[Read more]

Hi Tom

Well I think you should try again,and if you are refused appeal,you are supposed to fill the form in and put you worse day down!!!

Tom what can they only NO so you have nothing to loose,all this money you are paying for a pension you might not see.as for the small private pension,if you explain the circumstances and the fact you will…[Read more]

Hi Ann and Pete
Awww Pete you are having it a bit rough I hope you soon turn the corner and feel better, it wont be long now am sure keep the fluids flowing and I asked to have the drip put back in when i was too ill to drink/eat at least i was getting something in and just ate Jelly and ice cream for days.
As you say Bloods are looking Good so…[Read more]

Hi Sarah
No I go on now and again and Twitter lol, but most of my posts are on Face Book 🙂
Yes Sarah I looked at it in 2009 just after I had my SCT Done and was still going to see Consultant every week and being segregated in a room of my own, had some one help me fill it all in and got nowt 🙁 so av given up the ghost re claiming it as to…[Read more]

Morning Nicki and Sam

Yes we had same at ours when I was Dexed hoover out and doing it at strange times of the day, but to be fair i had days when I came off the dex and had to do the living/dinning room in two sittings lol, I was just too shattered to be pushing the darn hoover he he.
You could tell your workmates and Sam can make extra money…[Read more]

Hi Paul

Sorry to hear "Arnie" Kicked the doors in and moved in ? but am sure he will be kicked out again, Hey I remember that MoonFace it aint a good look is it ha ha but it soon goes take it from me.

I am in remission and Drug Free and I hope you are sonn the same.
Stay Well and Good Luck

Tom Onwards and Upwards