Hi Babs what great news. 🙂 It's always so uplifting to read. Hope cold clears up quickly and have a fantastice holiday

Best wishes
Love Jean x

Hi Maureen and Ian

Just wanted to give you some encouragement about the mobility bit!!! I have had two occasions when I "crashed out" and became completely immobile. First time was because of a tumour on my spine and I was having to be hoisted everywhere till I had it removed. They warned me I might not walk again, but due to marvellous…[Read more]

Hi Sandie

Sorry your Mum has had to start treatment. I just wanted to give you some positive feedback about lessions. When I had to start treatment last year my Consultant said my body was full of lessions. So much so she had me have an electric bed at home to help me out of bed. However, none of my bones did break, and although my spine…[Read more]

Hi Pat

I really do agree with you, little things do mean a lot. We have so enjoyed two days of sunshine and being able to sit in our conservatory for the first time this year!

Hope you continue to have lots of "little things!"

Love Mavis x

Hi Gina

The choice of drugs after relapse can vary on the trials after CTD comes Velcade has your mum had it,you might be able to ask if this is available for your mum,it is having good results,but only seems available on trials.

Melphalan is given to kill the cells,people have it as part of SCT,, Chris are you on any other treatment…[Read more]

Hi Vicky and Colin

Slim was randermised for no treatment ,before he was unsure of taking it but we decided t wait and see what the computer came up with,no maintenance came up,ad at first we felt he was missing out,but it has worked out ok,we go every 2 months to see consultant mainly because the Myeoma no longer shows u n bloods or…[Read more]

Hi Maureen

I have not had an SCT I was diagnosed in jan 2009 With mm and renal failure kidneys still only working at 20% I chose not to go for SCT as the heavy chemo would have probably knocked my kidneys out completly didnt want to go on dialysis had CDT and got 3yrs 6 months remission have now started on velcade had three rounds of it so far…[Read more]

Hi Gina

I am like most I had mine prior to SCT so cant help.

Its a Shame and a disgrace that the consultant is on his own but that should not detract from the fact that without proper consultations and discussions a decision cant be made.
I would Email/Phone the Nurse on here as am sure you cant be forced into this with not knowing the…[Read more]

Hi Vicki and colin

Well as you know I cant add to this post as I have only had CDT then SCT (i say only ?? lol)
But want to wish you good luck with whatever you Both Choose, and to let you both know we are all behind you to help you get through it and achieve the Remission that we all crave.
As for the "Hangover" I honestly dont know what one…[Read more]

Hi Phil and Megan
Thank You its good all the way 😀 am pleased to say, and i washed the Car good and proper yesterday and am still fit today ha ha.

Hi Tina
Thanks it is good as you know when we get good news 😉 I have heard about long term Zometa, I came off mine after two years, but to be fair I was pleased as they found it harder to find…[Read more]

Hi Peter

Well you know you and i are 16 dayer's as i was in Castle Hill for 16 days and as they say the rest is history, Keep up the Good work and am sure your Man is gonna be happy for Many a year to come 😎

Hi Maureen
Its a great Day Today we have had three Grandchildren who after staying the nite are now out in the (cold) Sun waking…[Read more]

Hi Dai,

That is wonderful news, I hope the neutrophils behave themselves, Phil has had two short courses of GCSF injections since he has been home from his transplant and both times they sent his neutrophil levels way up (I think they went to 18 once!) and although the neutrophils dropped again once the injections were done they did not drop as…[Read more]

Hi Tom,

Phil and I were both delighted to read your news, well done!! 🙂

Megan

Hi Vicki and Colin,

I just wanted to wish you good luck for Wenesday. I can't help with the maintenance question as Phil does not have the option, it is not part of the PADIMAC trial. Phil is like Colin, fed up with all the drugs, so he is now looking forward to them slowly decreasing until, like Tom, he becomes drug free!! :-). Part of me…[Read more]

Hi Gina,

My husband Phil had Melphalan as part of his stem cell transplant but the info guide on this site about Chemotherapy does mention Melphalan as a treatment option taken as tablets.

http://www.myeloma.org.uk/files/8012/8031/0094/Chemotherapy%20Infoguide%20Dec%202009.pdf

I hope this helps. Good luck to you and your Mom.

Megan

Great news Dia

just what we all need to hear a new drug working for you long may it last
lOVE jO X

Hello Maureen

when I had CDT i HAD 100MGS THALIDOMIDE everyday 40mgs of dex 4 times a week as well as a dose of cyclophosomide 250mgs once a week had this for 4 cycles it was the dex that effected me quite badly hope this helps
Jo

hi Vicki

has colin been offered thalidomide as a maint drug I had that and was ok with it, it could suit him better than some of the others
good luck with the remission
Love Jo x

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