Hey Michele

Happy First Birthday to your Stems in case I dont get on here Tomorrow (10.2.2013)
I bet you feel 100% Better keep it going and have a Great SCT Party.

Love Tom Onwards and upwards xx8-)

Hey Dai thats no problem my Friend, your posts are an inspiration to me and am sure many others on here and those fortunate to have crossed your path (in real Time)
Stick with it My Friend as you are one helleva a Man 😎

Tom Onwards and Upwards x

Andy rad your post on F/B and pleased your results are Good 😎 , May I ask you to give…[Read more]

Hi Jean and Frank

Hey dont worry too much about Pp Levels mine were still present (cant remember what level? ) but Mine went ahead and yes i had a Long wait from harvest to SCT due to Dr missing me off the list 🙁 now that was for me scary, no date and not haveing anytreatment? I wanted them to give me smartie's in a pill box just so I…[Read more]

Hi Trish and Peter

So sorry to hear about the SCT failing after such a short time, 13 Months is not long after what Peter had to go through.

BUT as they sat SCT might be a thing of the past and MM will be treated by just drugs, I have not been on Velcad but by all accounts its pretty Good 😀

Good Luck to you both as you Turn the Corner…[Read more]

Hi Jean,

The long wait must make it more difficult, it gives you too much time to think!! I know I was the same, Phil was diagnosed in May last year and it was such a whirlwind – diagnosis and then straight into treatment and then treatment stopped to have two operations to pin both femurs and then back into treatment and then suddenly the…[Read more]

Hello Trish and Peter,

I am so sorry to hear about Peter's relapse. My husband Phil had the same treatment as Helen for his first round treatment, dex-dox-Velcade. Phil had a very good response on this treatment and had very few side effects except for the peripheral neuropathy that Helen has mentioned. Peripheral neuropathy is a known side…[Read more]

Hi Megan thank you for that. It has eased me a bit. I will definitely get unto Maggie / ellen. I am so worried – frank seems to be so laid back about the whole thing. I'm not sure what is going on his mind. It's because of the long wait – he has had time to think and he's getting info from a registrar instead of from the boss (consultant).

I…[Read more]

Hi Jean and Frank,

I had the same concern before Phil's transplant so I called the infoline and although I didn't completely understand Maggie explained that the stem cells are treated so there is almost no Myeloma left and with the strong chemo before the transplant when the cells are returned they start fresh and new. Phil's paraprotein was…[Read more]

Hi Jet

I thought I'd add another one to the list while at the same time bumping this thread up for those new to the site.

http://mymyelomajourney.wordpress.com/ Written by "debontheweb" Another Deborah who was initially a smoulderer before starting treatment January this year.

Lorna A.

Dai The "Family Ramble" was great to read 😀 and I know what you mean re the "New Baby Smell"

The Young Bride and i are pretty fortunate all our Kids live within walking distance 30 mins is furthest away 😀 That said I Face time them Most nights to say Hi and or Good nite even when i have just dropped them at home Ha ha

You all enjoy the…[Read more]

Hi Vanessa and Stewart

Am sorry Stewart has been told about the Jaw problem, I was told to keep my eye on my Jaw when I was on Zometa, you two have had a busy few days reading your post.

The Dr will or should be able to put both your minds at rest and give you advice as to the best way to go.

Good Luck with it all.

Love Tom "Onwards…[Read more]

BUMP

Ps Vikki good luck with BM assessment 🙂 hope it is great news
Jean. Xx

Hey Janet
That's great news, am sure it will give hope to those due or just starting treatment .

Keep well and stay strong.

Love Tom Onwards and Upwards xxx

Hi Emma

Sorry the hospital are trying to throw your Mum out. But am sure they can't just throw your Mum out, they must have a duty of care as your Mum is in their care it should be their duty and am sure the wouldn't want the press to know that they are throwing a Terminally Ill Lady out of her bed when she has all these problems.

It must…[Read more]

Thanks Vikki and Ann for your good thoughts. The forum will be third to know when frank gets a date, us, our sons and the friends on the forum. Best wishes to you all
Love Jean x:-D

Dear Ann

Great to hear from you and what fabulous news 4.6 million. Good on you Pete. Everything crossed for 18th. Frank has been waiting since December for a date and nothing. I'm a bit scared that he might relapse before he gets a date

My best wishes to you both
Take care
Love Jean xx

Hi Janet

It so so good to read of yourt journey. Well done you 😀 my husband is waiting for date for SCT so it is great reading positive things. Long may it continue

Love Jean x

hi DIA

Who knows its all a mistery to me when i was admitted with temp of 39 my white cells were 12 Hb9.5 only had a cold to start with liquid paras and Iv ANTIb,S soon bought it down why it had not happened before when I have had a cold didnt happen on CDT so perhaps its the Velcade no explaination It happens was the reply no real clue as to…[Read more]