kh0305 posted a new activity comment 1 year, 1 month ago
So many gloomy statistics š I know everyoneās experiences are different and who knows how long heād have had in relapse without the revlimid but it was definitely a good length and quality he had so we are grateful for that! I donāt think thereās a wrong decision- you just have to do what feels right for you xx
kh0305 posted a new activity comment 1 year, 1 month ago
And yes- sorry forgot to say- it was his first maintenance treatment xx
kh0305 posted a new activity comment 1 year, 1 month ago
Hi
Dads maintenance treatment was a trial at the time. He had very few issues and lived a very normal life with it for 7 years until his relapse with very few side effects.
I hope that if you go down this route you also have a similar experience xx
kh0305 changed their profile picture 1 year, 9 months ago
kh0305 changed their profile picture 2 years ago
kh0305 became a registered member 2 years, 2 months ago
And yes- sorry forgot to say- it was his first maintenance treatment xx
thanks, thats quite reassuring. im trying to match up the many positive posts from people post SCT before maintenance, the doomsday statistics that give you 20 months before relapse on the median , the 40 months with lenalidomide which doesnt reflect dvtd new treatment and compromises the best part of your relapse period.
I’ve been able to stick…[Read more]
So many gloomy statistics š I know everyoneās experiences are different and who knows how long heād have had in relapse without the revlimid but it was definitely a good length and quality he had so we are grateful for that! I donāt think thereās a wrong decision- you just have to do what feels right for you xx