Myeloma Forum | KH0305 | Activity https://forum.myeloma.org.uk/members/kh0305/activity/ Activity feed for KH0305. Thu, 16 Apr 2026 06:20:41 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 018191bc914485ff4aea8ad414bfe8f9 kh0305 posted a new activity comment https://forum.myeloma.org.uk/activity/p/145098/#acomment-145102 Fri, 17 Mar 2023 21:17:48 +0000 So many gloomy statistics šŸ™ I know everyoneā€™s experiences are different and who knows how long heā€™d have had in relapse without the revlimid but it was definitely a good length and quality he had so we are grateful for that! I donā€™t think thereā€™s a wrong decision- you just have to do what feels right for you xx

In reply to - jdisoddyahoo-com posted an update @kh0305 hi i saw your answer about your dad and im trying to work out whether to start lenalidomide or not as a first line maintenance therapy. i hope hes found an effective […] ]]> b5e1b7a051b1c66752b8d5161c6c8f35 kh0305 posted a new activity comment https://forum.myeloma.org.uk/activity/p/145098/#acomment-145100 Fri, 17 Mar 2023 19:42:52 +0000 And yes- sorry forgot to say- it was his first maintenance treatment xx

In reply to - jdisoddyahoo-com posted an update @kh0305 hi i saw your answer about your dad and im trying to work out whether to start lenalidomide or not as a first line maintenance therapy. i hope hes found an effective […] ]]> 84cf956ad9ca075539d8b30e64314e8f kh0305 posted a new activity comment https://forum.myeloma.org.uk/activity/p/145098/#acomment-145099 Fri, 17 Mar 2023 19:41:49 +0000 Hi
Dads maintenance treatment was a trial at the time. He had very few issues and lived a very normal life with it for 7 years until his relapse with very few side effects.
I hope that if you go down this route you also have a similar experience xx

In reply to - jdisoddyahoo-com posted an update @kh0305 hi i saw your answer about your dad and im trying to work out whether to start lenalidomide or not as a first line maintenance therapy. i hope hes found an effective […] ]]> 142a780f1eaa9f735874415b401148f8 kh0305 changed their profile picture https://forum.myeloma.org.uk/activity/p/142425/ Wed, 27 Jul 2022 13:01:51 +0100 0 5de7e7eb294a557e40a020934aec94c9 kh0305 changed their profile picture https://forum.myeloma.org.uk/activity/p/141088/ Wed, 06 Apr 2022 13:07:27 +0100 0 15129a8e44af08def410e3e492a1d8e4 kh0305 became a registered member https://forum.myeloma.org.uk/activity/p/140674/ Wed, 23 Feb 2022 13:58:25 +0000 0