Hi,
I hope you remain as SMM and that the Zometa has positive impact going forward.
I was diagnosed with Stage 1 Asymptomatic MM (SMM) 2 years ago at age 44 after being monitored for MGUS since 2017. Being monitored for MGUS got easier as each 6 months passed in that I barely thought about it. I will not be offered any treatment unless I have a myeloma defining event or my ratio drops to 0.01 (currently at 0.03). After seeing your post, I will ask my consultant about Zometa. Maybe my other lab results or type of Myeloma wouldn’t benefit from it? I am classed as ultra high-risk with t(14;16) and Del17p but still on watch and wait or ‘active monitoring’. My consultant is really nice and was honest by saying for me it is not if I progress, but when!
I am similar in that any new pain or discomfort makes me wonder if related but as classed as asymptomatic, however I don’t know what could be relevant or not. I have only started taking notes this month so I don’t forget to mention.
Thanks
