konrad01 replied to the topic New and need advice on Myeloma XI in the forum Newcomers 12 years, 10 months ago
Dear All,
Thanks for all your postings.
I'm starting on XI on 15 June at Southampton General after my MRI scan and Bone Marrow data indicated that treatment was needed. It's taken 18 months to get to this point.
Just waiting to find out which pathway I will be starting on. Will try and post my experiences.
A good weekend to…[Read more]
konrad01 replied to the topic Related Conditions. in the forum Related conditions 13 years, 2 months ago
I've been reading up on treatments and diagnosis over the break and it seems to me that there are multiple drug therapies that work with older people. See, for example, http://bloodjournal.hematologylibrary.org/content/117/11/3025.full.pdf
I find it frustrating that there seems to be little alternative to "watch and wait" – am I missing…[Read more]
konrad01 replied to the topic asymptomatic melanoma in the forum Treatment 13 years, 8 months ago
Min,
Many thanks for this posting.
Much appreciated,
John
konrad01 replied to the topic asymptomatic melanoma in the forum Treatment 13 years, 8 months ago
Jean,
Thanks for this kind posting. Gives me hope.
All the best to you and your husband.
John
konrad01 replied to the topic asymptomatic melanoma in the forum Treatment 13 years, 8 months ago
Mavis,
Thanks for this thoughtful contribution. At the last test, my PP was 20. I've been taking iron tablets for most of the last year which is keeping anaemia at bay. Interestingly, the occurrence of anaemia was the first sign that something was amiss after my excellent GP sent me in for a whole range of blood tests.
Coming up for…[Read more]
konrad01 started the topic asymptomatic melanoma. in the forum Treatment 13 years, 8 months ago
Having been diagnosed with Myeloma a year ago, which is still in the asymptomatic stage, I am still healthy. The current strategy is to ?watch and wait? ? I will review this when I see the consultant in August.
At the age of 68, I think that I should pursue the possibility of intensive treatment.
Would be interested to hear of others'…[Read more]
konrad01 replied to the topic Paraprotiens after SCT in the forum General 14 years, 2 months ago
David,
Thanks for this thread – is it possible to get SCT if one is still on the borderline (23/24)?
John
konrad01 replied to the topic Introduction in the forum Newcomers 14 years, 2 months ago
Thanks Jo and everyone,
I really appreciate your kindnesses.
Let's move on …
John
konrad01 started the topic What is "individual fitness"?. in the forum Treatment 14 years, 3 months ago
Hi everyone,
In my initial research into the possibilities facing me in 2011, I found the following material (see page 4 of the attachment):
Initial treatment for the majority of newly diagnosed myeloma patients involves
combinations of chemotherapy and chemotherapy-like drugs. These combinations,
which are given in relatively low doses,…[Read more]
konrad01 replied to the topic Introduction in the forum Newcomers 14 years, 3 months ago
Thanks David,
It's good to feel welcome! Having engaged in these communities professionally for over 10 years, it's an interesting experience to participate in a learning and supportive environment.
As people may have noticed, my original post was early in the morning. I've had a tendency for many years to wake in the small hours when my…[Read more]
konrad01 started the topic Introduction. in the forum Newcomers 14 years, 3 months ago
Hi Everyone,
I've just found my way to this excellent site and am looking forward to participating in this discussion board.
I was diagnosed with Beginning Myeloma in December 2010 after my alert GP spotted an anomalous anaemia value in a battery of blood tests that were primarily concerned with a review of my Irritable Bowel Syndrome [IBS].…[Read more]