Myeloma Forum | JohnKonrad | Activity https://forum.myeloma.org.uk/members/konrad01/activity/ Activity feed for JohnKonrad. Thu, 23 Apr 2026 02:24:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 227360bf80c7bfb0921c7d60d3744484 JohnKonrad replied to the topic New and need advice on Myeloma XI in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-and-need-advice-on-myeloma-xi/page/3/#post-85257 Fri, 01 Jun 2012 16:11:38 +0100 Dear All,

Thanks for all your postings.

I'm starting on XI on 15 June at Southampton General after my MRI scan and Bone Marrow data indicated that treatment was needed. It's taken 18 months to get to this point.

Just waiting to find out which pathway I will be starting on. Will try and post my experiences.

A good weekend to…[Read more]

]]> 381e93310e1c7347834b7ca6001940d8 JohnKonrad replied to the topic Related Conditions. in the forum Related conditions http://www.myeloma.org.uk/forums/topic/related-conditions/page/2/#post-105519 Mon, 09 Jan 2012 06:06:43 +0000 I've been reading up on treatments and diagnosis over the break and it seems to me that there are multiple drug therapies that work with older people. See, for example, http://bloodjournal.hematologylibrary.org/content/117/11/3025.full.pdf

I find it frustrating that there seems to be little alternative to "watch and wait" – am I missing…[Read more]

]]> e7603a7f01cf94e91d8aaf2f696ad168 JohnKonrad replied to the topic asymptomatic melanoma in the forum Treatment http://www.myeloma.org.uk/forums/topic/asymptomatic-melanoma#post-97819 Sun, 17 Jul 2011 09:06:29 +0100 Min,

Many thanks for this posting.

Much appreciated,

John

]]> f43326b8888e706cfe4b3fa3bd725800 JohnKonrad replied to the topic asymptomatic melanoma in the forum Treatment http://www.myeloma.org.uk/forums/topic/asymptomatic-melanoma#post-97818 Sun, 17 Jul 2011 09:05:26 +0100 Jean,

Thanks for this kind posting. Gives me hope.

All the best to you and your husband.

John

]]> 6aa935c87c2413004e7d21143c360d68 JohnKonrad replied to the topic asymptomatic melanoma in the forum Treatment http://www.myeloma.org.uk/forums/topic/asymptomatic-melanoma#post-97817 Sun, 17 Jul 2011 09:04:29 +0100 Mavis,

Thanks for this thoughtful contribution. At the last test, my PP was 20. I've been taking iron tablets for most of the last year which is keeping anaemia at bay. Interestingly, the occurrence of anaemia was the first sign that something was amiss after my excellent GP sent me in for a whole range of blood tests.

Coming up for…[Read more]

]]> 4c976340ecba22d0831a1078c338219a JohnKonrad started the topic asymptomatic melanoma. in the forum Treatment http://www.myeloma.org.uk/forums/topic/asymptomatic-melanoma Sat, 16 Jul 2011 15:54:01 +0100 Having been diagnosed with Myeloma a year ago, which is still in the asymptomatic stage, I am still healthy. The current strategy is to ?watch and wait? ? I will review this when I see the consultant in August.

At the age of 68, I think that I should pursue the possibility of intensive treatment.

Would be interested to hear of others'…[Read more]

]]> 155ed56f93fa0b6f53a31f5aa7cd76b7 JohnKonrad replied to the topic Paraprotiens after SCT in the forum General http://www.myeloma.org.uk/forums/topic/paraprotiens-after-sct#post-89775 Wed, 02 Feb 2011 17:06:47 +0000 David,

Thanks for this thread – is it possible to get SCT if one is still on the borderline (23/24)?

John

]]> 36ff4b9351a2a63a26715b52b3775b22 JohnKonrad replied to the topic Introduction in the forum Newcomers http://www.myeloma.org.uk/forums/topic/introduction#post-84127 Mon, 24 Jan 2011 17:25:36 +0000 Thanks Jo and everyone,

I really appreciate your kindnesses.

Let's move on …

John

]]> b27374405e3ee77aeabbbed6ed73dd5c JohnKonrad started the topic What is "individual fitness"?. in the forum Treatment http://www.myeloma.org.uk/forums/topic/what-is-individual-fitness Sun, 02 Jan 2011 18:22:27 +0000 Hi everyone,

In my initial research into the possibilities facing me in 2011, I found the following material (see page 4 of the attachment):

Initial treatment for the majority of newly diagnosed myeloma patients involves
combinations of chemotherapy and chemotherapy-like drugs. These combinations,
which are given in relatively low doses,…[Read more]

]]> 9c8aabdb0810ea975fe1bed145f32d81 JohnKonrad replied to the topic Introduction in the forum Newcomers http://www.myeloma.org.uk/forums/topic/introduction#post-84117 Sun, 02 Jan 2011 08:55:29 +0000 Thanks David,

It's good to feel welcome! Having engaged in these communities professionally for over 10 years, it's an interesting experience to participate in a learning and supportive environment.

As people may have noticed, my original post was early in the morning. I've had a tendency for many years to wake in the small hours when my…[Read more]

]]> f134a32ad0c668c1d7dc4ec64ed1d790 JohnKonrad started the topic Introduction. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/introduction Sun, 02 Jan 2011 03:18:30 +0000 Hi Everyone,

I've just found my way to this excellent site and am looking forward to participating in this discussion board.

I was diagnosed with Beginning Myeloma in December 2010 after my alert GP spotted an anomalous anaemia value in a battery of blood tests that were primarily concerned with a review of my Irritable Bowel Syndrome [IBS].…[Read more]

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