Myeloma Forum | KP | Activity https://forum.myeloma.org.uk/members/kp/activity/ Activity feed for KP. Wed, 15 Apr 2026 20:03:51 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 16073611efc0c8d7e2449119b157b22e KP replied to the topic Osteonecrosis in the forum Related conditions https://www.myeloma.org.uk/forums/topic/osteonecrosis/#post-131575 Tue, 17 Jan 2017 19:14:26 +0000 Hi Michael,

I have heard of necrosis of the jaw as a complication of Zometa. I do hope this isn’t the case for you.

I have been in cr since August 2015 following a SCT and have Zometa every month. I wondered what symptoms you experienced.

I know that Myeloma doesn’t like Zometa but having been on it for two years I wonder about whether to carry…[Read more]

]]> 6bb5f8bcd84d6e50c49d08b2df59ea0d KP replied to the topic First treatment day in the forum Newcomers https://www.myeloma.org.uk/forums/topic/first-treatment-day/#post-128033 Sat, 21 May 2016 20:47:17 +0100 Hi dazz, I found the effects of the chemotherapy were cumulative. It is true that everyone reacts differently so hard to predict effects for you. I guess just being diagnosed with MM was a life changer for me; I had always been fit, well and active and adjustment to a new way of being has taken time. Be kind to yourself, ask lots of questions…[Read more]

]]> b378161cd8e035dc331df124b7bfc8bf KP replied to the topic Travel Insurance after Myeloma in the forum General http://www.myeloma.org.uk/forums/topic/travel-insurance-after-myeloma/#post-127504 Mon, 04 Apr 2016 15:20:56 +0100 I haven’t had a holiday abroad so can’t advise re travel insurers but will ask the specialist nurse who told me she had a few who had been recommended by other patients.
I wanted to book China now I am in remission (SCT end August 15) but Consultant said not to go anywhere there wasn’t a really good health care system and ideally stay in Europe. I…[Read more]

]]> 2c43bf5df0379fc74964e78d24c02b8a KP replied to the topic just diagnoised with Myeloma. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-diagnoised-with-myeloma/#post-127451 Tue, 29 Mar 2016 15:21:38 +0100 Sorry to hear that you have joined us Bridget, but this is such a good place to come to for support and empathy. There is also a Facebook support group “UK Myeloma Support Group”.

The Myeloma UK helpline is really good, give them a ring if you feel you need to clarify anything you have been told.

Good luck with the Chemo and let us know how you…[Read more]

]]> 4457fd920675f08f09352773393d10c9 KP replied to the topic Sct in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-7/#post-127449 Tue, 29 Mar 2016 15:15:24 +0100 They didn’t talk to me about percentages, just said when I had completed 6 -8 cycles of chemo.

If you have a Nurse Specialist perhaps ask them although the previous answer is very clear.

Kind regards

Karen

]]> be597a644c5c213bd3398ceade249372 KP replied to the topic Help & Advice Please!!! in the forum General http://www.myeloma.org.uk/forums/topic/help-advice-please/#post-127448 Tue, 29 Mar 2016 15:11:00 +0100 Hi, I do hope you went straight back to the hospital for advice, particularly with a spiking temp. I haven’t been on for a few days so know this reply is a bit late.

When I was 6 weeks post SCT I got a  cold sore which prompted them into action, bloods checked, acyclovir prescribed etc. So I guess act quickly on any concerns re health is…[Read more]

]]> 7d95c15cf02e59b7a735b35347325f5a KP replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/6/#post-127447 Tue, 29 Mar 2016 14:59:03 +0100 Well, I am now 6 months  post SCT, no meds, monthly appts for Zometa and 3 monthly appts for monitoring. Feels very strange not to have two or three appts a week but good to feel well. I still have days when I feel very fatigued if I have overdone it the day before but this gets less as time goes on. I am finding it hard to lose the post SCT…[Read more]

]]> 31173b915b159c187d928022d33ed09e KP replied to the topic Myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/myeloma-3/#post-127374 Tue, 22 Mar 2016 00:50:12 +0000 I would have thought blood tests for paraprotien and free light chain levels and a urine test for Bence Jones protiens too.

Kind regards Karen

]]> dda886ed5ec81c8fb3b43a977e53765c KP replied to the topic GP letters in the forum General http://www.myeloma.org.uk/forums/topic/gp-letters-2/#post-127252 Sat, 19 Mar 2016 15:45:48 +0000 I would like copies of my Bone Marrow Biopsy reports. Some time ago now I asked what the results were and the Doctor looked at me like “Duh” and said “you have Myeloma”. Well I knew that!!!! I was already on VTD chemo but I know the BMB tells them a lot more. Perhaps I should ask for copies of the reports. I have had two BMB’s, one when the…[Read more]

]]> b44a9a87f0cbd56e0762cd300ec587a5 KP replied to the topic GP letters in the forum General http://www.myeloma.org.uk/forums/topic/gp-letters-2/#post-127248 Fri, 18 Mar 2016 19:27:00 +0000 I think you are supposed to get copies of letter if you want them. The hospital I attend always sends me a copy and I don’t have to ask. Mind you sometimes they arrive three months after the clinic date.

Kind regards

Karen

]]> 9fd6b94df3a86a35c39d5b0b23619ccd KP replied to the topic Chest Infection in the forum Newcomers http://www.myeloma.org.uk/forums/topic/chest-infection-3/#post-127247 Fri, 18 Mar 2016 19:24:00 +0000 I agree with above advice to avoid anyone with a known infection. Even in remission your immune system does not get back to full strength. I also find it takes me weeks to get over a simple cold. Don’t risk it.

Kind regards

Karen

 

]]> c74ba73f34b98d2c424db19fe3c871fe KP replied to the topic heart and skin complications with Autologous SCT in the forum Side-effects http://www.myeloma.org.uk/forums/topic/heart-and-skin-complications-with-autologous-sct/#post-126943 Fri, 19 Feb 2016 17:59:14 +0000 Hi Mike, the main problem I had after the administration of high dose Melphalan was low blood pressure. I hadn’t realised there was a risk of ongoing cardiac problems and don’t recall it being discussed. Mind you there was so much to take in at the time it is quite possible/probable it was as I have been very well looked after throughout this…[Read more]

]]> b1f6c60273ef7413afe3a8a00e3a4d6a KP replied to the topic heart and skin complications with Autologous SCT in the forum Side-effects http://www.myeloma.org.uk/forums/topic/heart-and-skin-complications-with-autologous-sct/#post-126943 Fri, 19 Feb 2016 17:59:14 +0000 <p style=”text-align: center;”>Hi Mike, the main problem I had after the administration of high dose Melphalan was low blood pressure. I hadn’t realised there was a risk of ongoing cardiac problems and don’t recall it being discussed. Mind you there was so much to take in at the time it is quite possible/probable it was as I have been very well…[Read more]

]]> a83de33434f93052a9601340beb8659f KP replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS https://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/5/#post-126893 Sun, 14 Feb 2016 13:27:09 +0000 Hi Mike, so glad you are starting to feel better but sorry to read you have only achieved a partial response. I hope you will find that involvement in the trial does increase chance of keeping the MM under control.
Very best wishes

Karen

]]> 3257e65ff7f095535b423eacc2359a5c KP replied to the topic Tiredness in the forum Newcomers http://www.myeloma.org.uk/forums/topic/tiredness-2/#post-125550 Sun, 27 Dec 2015 17:35:46 +0000 Hi Julie,

Feeling tired and the weariness of fatigue are common problems during treatment phases for MM. Thankfully it passes although 4 months after SCT I have seriously tired days, usually after I have inadvertently over done it the day before. Listen to your body and adjust your activity accordingly is good advice.

Best wishes Karen

]]> 05b8213417aff4d925bca440723ace8e KP replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/6/#post-125366 Sat, 12 Dec 2015 11:41:34 +0000 Hi All, I am now 107 days post SCT. You are so right Bernard, it was an ordeal but is so worth it. The care I have received has been first class from everyone I came into contact with as an in patient and an out patient.
I was told this week “no free light chains, complete remission” so I am hopeful of a decent period MM free.

I guess the effects…[Read more]

]]> 909e17b4c06f0cc25b68fa91a31541f0 KP replied to the topic Home after STC in the forum Treatment http://www.myeloma.org.uk/forums/topic/home-after-stc/#post-125365 Sat, 12 Dec 2015 11:21:25 +0000 I am over 107 post SCT, I continue to use hand gel all the time. Carry it in my handbag and apply after Supermarket etc. Nurses said to take temperature at least twice a day. The dietary info I was given was quite comprehensive, no mayonnaise, runny eggs, reheated food, shellfish etc. A bit like the diet for pregnancy I thought.
Other advice was…[Read more]

]]> 98bc2073c110268b76938350badae4f4 KP replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/4/#post-124741 Tue, 27 Oct 2015 21:01:09 +0000 Glad to hear you have a date for admission.  Good luck with the SCT. I did the sucking of ice cubes etc whilst Melphalan was administered. The nurse told me that you have to keep mucus membranes cold to reduce blood flow not just during administration but for 6 hours afterwards.

Best wishes Karen

]]> 27f7a7f41833118b3707799b96dbf6a0 KP replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/4/#post-124523 Tue, 06 Oct 2015 07:13:27 +0100 Hi Mike, I am 39 days post stem cell transplant.  I am doing well I think from the feedback at transplant clinic but I guess the BMB after 100 days will tell more.

I just wanted to say sorry to hear that your protien rising but although SCT is challenging,  particularly on the GI tract,  it is very doable. I found the time in isolation was ok be…[Read more]

]]> ec73bb75b2d2e268fff2fefaae470bae KP replied to the topic Rumbling stomach noises in the forum Side-effects http://www.myeloma.org.uk/forums/topic/rumbling-stomach-noises/#post-124496 Fri, 02 Oct 2015 16:36:04 +0100 Thanks for this post Graeme, I am also experiencing a very noisy GI tract post SCT (I suffered severe mucositis) and Jill’s reply is really helpful.

Hope you are OK now.

Best wishes

Karen

]]> 0fba97211462ba55a73e35d674b0b8b9 KP replied to the topic Thalidomide side effects - how long do they last? in the forum Side-effects http://www.myeloma.org.uk/forums/topic/thalidomide-side-effects-how-long-do-they-last/#post-124495 Fri, 02 Oct 2015 16:26:52 +0100 Hi, I was on the VTD (Velcade, Thalidomide and Dex) and I think it was by the third cycle I was experiencing symptoms of peripheral neuropathy, particularly in my legs and feet. The Consultant reduced the dose of Thalidomide by 50% for the last three cycles so the symptoms did not get any worse.

I completed the six cycles in June and although I…[Read more]

]]> bb5a2bf3d723c22e559f74106472547d KP replied to the topic Stem Cell treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-treatment-2/page/3/#post-124279 Sun, 20 Sep 2015 14:28:32 +0100 Hi All,

I was discharged on Friday (three days short of a month in hospital) because just as they were saying I could go home I got a chest infection which was treated with IV antibiotics and added a week to my stay.

It was difficult at times, particularly because I got severe mucositis despite sucking ice pops and ice lollies before, during and…[Read more]

]]> b46a5b63f19af06764dfbe3f7f814dee KP replied to the topic Relapse in the forum Treatment http://www.myeloma.org.uk/forums/topic/relapse-3/#post-124278 Sun, 20 Sep 2015 14:05:00 +0100 Hi Susie,

I have just come out of hospital after a stem cell transplant. was a tough month but doable and now I have a couple of months recovery to get through. can’t believe how tired I am.

I am sorry to hear that your PP’s are slowly rising after 6 months remission. I agree with the previous poster, rant and rave as much as you need to and I…[Read more]

]]> d90e7300652ca3508e8da2d24b82f735 KP replied to the topic Pessimistic Consultant ? in the forum Treatment http://www.myeloma.org.uk/forums/topic/pessimistic-consultant/#post-123711 Sun, 23 Aug 2015 08:15:36 +0100 Hi Peter,

So much good advice and helpful information in the previous posts.
I am going in this week for a Stem Cell Transplant and hoping for a longer and deeper remission as a result. The Doctors do have to explain in great depth the potential outcomes for each step of this unwelcome journey we all have to take with a MM diagnosis. Which I have…[Read more]

]]> 3b038d2c1dc19d9763fcd1861721ced8 KP replied to the topic Stem Cell treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-treatment-2/page/2/#post-123499 Wed, 05 Aug 2015 19:57:43 +0100 Hi Mervyn, thanks for the link, I have had stem cells harvested, have a wig ready and waiting, and am waiting for a date to go in for transplant so am absorbing information from as many sources as possible. I feel anxious and apprehensive but I know I will get through it. The carrot is a deeper and longer lasting remission.

Keep well

Karen

]]> 50eb4449f20a0a231e5fbc23841aff2f KP replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/4/#post-123155 Mon, 20 Jul 2015 23:12:22 +0100 Hi Mike, sorry to hear that Thalidomide stopped working and hope VCD working for you.  The steroids do cause so many problems.  Hoping next blood results are positive for you.
You have been an inspiration and your helpful, informative posts gave me, and I suspect many others, invaluable support at a time when I felt overwhelmed by the enormity o…[Read more]

]]> 6200931d12875dd8a88d288b85e0e2a4 KP replied to the topic Zometa side effect ? in the forum Treatment http://www.myeloma.org.uk/forums/topic/zometa-side-effect/#post-122679 Wed, 17 Jun 2015 16:49:27 +0100 Hi Susie,

I find I feel generally unwell after the Zometa infusion for a few days and it also upsets my digestive tract. This last cycle the Nurse let it run through in five minutes and two weeks later I am still not right. Makes me wonder if it is worth it?
Cheers

Karen

]]> 88968016f0516d6c67a00fc12652df10 KP replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/6/#post-122248 Sun, 24 May 2015 16:39:12 +0100 Hi All,
Just about to start 6th cycle of VTD and have tolerated treatment reasonably well although the side effects create their own challenges. I have had a good response and have been referred for consideration for a SCT.
So next big hurdle we have to face is the decision on next steps for treatment. Other people posting on the forum seem to…[Read more]

]]> d5a3d84fd52f7b10c6dc09386df5d847 KP replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/6/#post-120887 Tue, 17 Feb 2015 16:15:39 +0000 Well folks, I am in the middle of the second cycle of VTD as the MM went active just before Christmas. Coping with the treatment fairly well although it has been an anxious couple of months. I have a new full time job waiting in NHS clinics!!!

I don’t visit the site often at the moment but do hope everyone is doing OK.

Best wishes

Karen

]]> 62e744368b10652e0a29c42675ee0ea3 KP replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/4/#post-119654 Mon, 24 Nov 2014 09:49:24 +0000 Oh dear Mike, the most likely explanation is my misunderstanding and misinterpretation of what was actually said to me…I still feel like a rabbit in the headlights and so dis-empowered when I go in for a monitoring appt so probably mis heard.

Thanks for your response, it is much appreciated.

Kind regards

Karen

]]> b76f8202bbc5be4be9f139cf87317535 KP replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/4/#post-119646 Sun, 23 Nov 2014 11:02:07 +0000 “so who’s to say you won’t grow old and penniless because you spent all your pension money having holidays and enjoying life thinking you wouldn’t need it for later?”

This is very true Rebecca, thank you for a smile moment on a damp and dreary morning.

I think we should all live our lives to the full and enjoy every day.

I try to ignore the w…[Read more]

]]> d019db8aae54ba5cfa36f7c901505ae6 KP replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/4/#post-119646 Sun, 23 Nov 2014 11:02:07 +0000 “so who’s to say you won’t grow old and penniless because you spent all your pension money having holidays and enjoying life thinking you wouldn’t need it for later?”

This is very true Rebecca, thank you for a smile moment on a damp and dreary morning.

I think we should all live our lives to the full and enjoy every day. There are medical advan…[Read more]

]]> deac4c86bb015b802a96633b72ffb907 KP replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/4/#post-119646 Sun, 23 Nov 2014 11:02:07 +0000 “so who’s to say you won’t grow old and penniless because you spent all your pension money having holidays and enjoying life thinking you wouldn’t need it for later?”</span>

This is very true Rebecca, thank you for a smile moment on a damp and dreary morning.

I think we should all live our lives to the full and enjoy every day. There are medic…[Read more]

]]> 90a4a2d805856458cbc8f6a6cd6db7f8 KP replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/4/#post-119646 Sun, 23 Nov 2014 11:02:07 +0000 <span style=”font-family: Arial, Oswald, ‘Helvetica Neue’, Helvetica, Helvetica, Arial, sans-serif; line-height: 19.5px; background-color: #fbfbfb;”>”so who’s to say you won’t grow old and penniless because you spent all your pension money having holidays and enjoying life thinking you wouldn’t need it for later?”</span>

This is very true Rebec…[Read more]

]]> 41f8ecb3c6dc99603907193b1c2811d2 KP replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/3/#post-119443 Thu, 13 Nov 2014 16:29:35 +0000 Hi All,

I too felt more settled after reading Mike’s post, particularly after appt this week when my status was described as “relatively stable”.

Just to note how difficult people find it before their appts, my husband and I (along with the rest of my family) are so anxious and twitchy and frightened. It is such a relief to be told , see you…[Read more]

]]> 327344762b7272f54a7324bc60ffd3ee KP replied to the topic smouldering myeloma;IMWG update criteria to predict CRAB features . in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myelomaimwg-update-criteria-to-predict-crab-features/#post-119322 Thu, 06 Nov 2014 14:34:26 +0000 I have to agree I would wish to smoulder forever, but don’t want to wait for treatment until there are signs/symptoms organ damage.

I have found the article online but will take a couple of read through’s to grasp the key concepts so thanks to Mike for the helpful précis of updated criteria.

I wonder what my Consultant will make of this and…[Read more]

]]> fd108cd5520452cce88f31f35e5dcea0 KP replied to the topic Following " is it progressing" in the forum Newcomers http://www.myeloma.org.uk/forums/topic/following-is-it-progressing/page/2/#post-118546 Thu, 02 Oct 2014 19:32:28 +0100 Hi Susie, I am monitored 6 weekly at present, last PP was 39. It is an awful disease and different for everyone which I think makes it challenging to manage.

I was only diagnosed in April this year so still trying to come to terms with it all.

I haven’t had a bone marrow biopsy as blood tests don’t show any end organ damage.

Hope you are t…[Read more]

]]> c1948332f63a2d39b295386f7edca35b KP replied to the topic Following " is it progressing" in the forum Newcomers http://www.myeloma.org.uk/forums/topic/following-is-it-progressing/page/2/#post-118525 Wed, 01 Oct 2014 13:29:51 +0100 Hi Susie,

Hope all goes well for you on the second cycle and not too many side effects.

I had a monitoring appt recently and numbers up again, but no signs of any end organ damage and I feel OK in myself so continuing on the wait and watch protocol for asymptomatic.

It is so hard to define ” fatigue” isn’t it as sometimes I am really tired by…[Read more]

]]> 53e665ab51183f31246e4cba1c1cec85 KP replied to the topic Following " is it progressing" in the forum Newcomers http://www.myeloma.org.uk/forums/topic/following-is-it-progressing/page/2/#post-118515 Tue, 30 Sep 2014 16:38:48 +0100 Hi Susie, hoping you are doing OK and coping with the treatment regime.

Kind regards

Karen

]]> e5a47421f7cb10b667a49ebe389811d7 KP replied to the topic Fit due to low blood pressure in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/fit-due-to-low-blood-pressure/#post-118329 Wed, 24 Sep 2014 15:38:29 +0100 Hi Jan, what an awful experience for you both, I am not surprised you have been scared and hope he is getting sorted out by the Doctors.

Do you think that you could use some counselling? it must have been so traumatic for you and might help to “talk it through”

Hope things start to improve

Kind regards

Karen

 

]]> c2ea53db5e13540b6b62777d92b8f745 KP replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/#post-118289 Tue, 23 Sep 2014 16:49:48 +0100 Hi Brian

Sorry to welcome you to the MM club. I got a lot of helpful advice on the “confusing journey” thread.

I too hope to stay asymptomatic for as long as possible. The hardest part has been getting my head around the no treatment until there are signs and symptoms that the MM is causing end organ damage. It has been described as the Sword of…[Read more]

]]> d93eb88dc78466d5a8016a558ec6aa17 KP replied to the topic Following " is it progressing" in the forum Newcomers http://www.myeloma.org.uk/forums/topic/following-is-it-progressing/page/2/#post-117959 Thu, 04 Sep 2014 19:44:34 +0100 Hi Susie,

Sorry I can’t help you with advice re the meds regime but sending you a virtual hug. Hope you are feeling a little better now. One of the posts on the “confusing journey” thread advised me to listen to my body and rest when it was telling me to.

Seems good advice particularly as you adjust to the effects the drugs are having upon you.…[Read more]

]]> fd1fe73595aec0268877ea86093123e2 KP replied to the topic Mum considering refusing Myeloma treatment - what can I tell her? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-considering-refusing-myeloma-treatment-what-can-i-tell-her/#post-117860 Sun, 31 Aug 2014 11:30:09 +0100 Hi Nick, all good advice from previous posts. This is a fabulous place to get the advice and support you need.

I can’t offer any additional advice except maybe to reinforce the fact that Myeloma is treatable ( if not curable) and she has the same chance as the rest of us of achieving remission and a good quality of life for many years.

I wish…[Read more]

]]> 3b48660354bd874993fec6373a4d64df KP replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/6/#post-117858 Sun, 31 Aug 2014 09:53:54 +0100 Well folks, I have not been on the site for a few weeks, I had asked for a second opinion as I was told that I would definitely be on treatment within 18 months and couldn’t understand how that could be predicted in MM. Sooooo upset by the news. I had really thought that I might stay Asymptomatic for some years yet.

Anyway, still definitely…[Read more]

]]> ab4a3088fe139e5aa8823861ed432145 KP replied to the topic Following " is it progressing" in the forum Newcomers http://www.myeloma.org.uk/forums/topic/following-is-it-progressing/#post-117855 Sun, 31 Aug 2014 09:38:55 +0100 Hi Susie,

I haven’t been on for a while, it looks like I too will be joining the ranks of MM on treatment shortly as all the numbers going (quite quickly) upwards.  Now on six weekly monitoring and feeling a little sorry for myself, so like a little turtle popped my head back into my shell.

I can understand why you would not wish to join the…[Read more]

]]> 718e4b6bae296bc82594bd3aa7efe12b KP replied to the topic The story so far.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/the-story-so-far-2/#post-117260 Sun, 27 Jul 2014 12:38:43 +0100 It is good to hear from you Don, glad all went well and hope you feeling stronger every day.
Best wishes Karen

]]> 1b51feed0e3deb5ff8a155c452a320a4 KP replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/6/#post-117003 Thu, 24 Jul 2014 09:20:03 +0100 Hi Susie

Glad to hear all went OK, although I am sure you will be waiting to hear back from the Consultant.
It  is such a waiting game this MM isn’t it.

Sorry you are still in pain with sciatica.  Hope all is well when he rings you back.

I have a small heat cushion which I warm in the microwave and put in the small of my back when sciatica k…[Read more]

]]> ea981f91dc7b392699dcc4a6f1740a39 KP replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/6/#post-116917 Sun, 20 Jul 2014 18:57:30 +0100 Hi Susie,

Definitely wishing you luck for tomorrow. I am sure you are feeling worried about what they have to say. I suppose the “but” is that it is oddly reassuring that behind the scenes the Doctors are working to keep you as well as possible.

I am sorry to hear you have been in pain, sometimes physio seems to make it worse before it gets…[Read more]

]]> 67d880a46fb1972b1a81cf4423cfc497 KP replied to the topic The story so far.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/the-story-so-far-2/#post-116910 Sun, 20 Jul 2014 12:36:46 +0100 Dear Don,

Best of luck for your operation tomorrow. I am sure you are in good hands.

I look forward to hearing how you got on and also how the nurses cope with your irrepressible humour. I expect you will be like a breath of fresh air as you recover from the surgery.

Best wishes to you and your social secretary, financial controller and life…[Read more]

]]> 936a7c6788ebb9d09c060f8f4498c628 KP replied to the topic The story so far.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/the-story-so-far-2/#post-116647 Tue, 15 Jul 2014 18:45:57 +0100 Hi Don,

Crumbs, what a time you have been having, hope all goes well with your keyhole surgery on Monday.  You must be feeling quite battered by everything that has been happening to you.

I too love the humour, keep positive, medical science is amazing these days.

Best wishes

Karen

 

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