Hi again Tony, I am on the trial too, and go up to the Hope clinic, I agree it is much better, and seem to get seen to much quicker! One day we may bump into each other again. I know what you mean about getting tired. Keep well.

Karen x

ps, sorry I typed in the tag box, hope I have no mucked up your thread! K x

Hi Tony, I am 19 months post SCT, I had my last baby injections at begining of July, and I am on 3 monthly clinic visits, mine is 14th August. So we are pretty much the same stage. I still have morphine for back, and 6 weekly Zometta. But I drove for the first time since diagnosis the other day! There are more positives than negatives post SCT…[Read more]

Hi All, not been on for a while and have only just stumbled on this. Very interesting! I live in Oakham, 9 miles (ish) from Melton Mowbray. We live a 2 minute walk from a plastic engineering factory. Twenty years ago I worked for 5 years (North West of England) for Nuclear Electric, catering for workers, labs etc. So I could take my pick from a…[Read more]

Hiya mike! I come from Burnley Lancashire .. I had broken bones without knowing wen I got diagnosed (ribs, collar bone,) also the top of my spine fused together , so I’ve lost an inch in height . I was only 5 ft anyway lol. I’m 4 /11 now.. My kidneys were tht bad I couldn’t have my sisters stems even tho she was a match for me.. I was really…[Read more]

Hi mike ! After reading all your post on MM u were diagnosed, the same month,the same year the same age as me. My kidneys and renal , and bones were damaged. I ad my own stems cells put bk. And I to am in complete remission since I ad transplant sept 2007. I take 1 day at a time now. Gud luck to you for the future..

Hi all! I was diagnosed 7 yrs ago with active MM. I had it 1 yr b4 they found it. Unfortunately it damaged my bones and kidneys. I went on the trial treatment for 6 months then had my own stem cells put bk in. I’m plz’d to say I’ve been in Complete remission for 6.5 yrs now and still doin brilliantly. I jst take 1 day at a time. I never read…[Read more]

Hi thts excellent news

Hi Richard, thanks for your reply. Another couple of tips in your reply about attitude and there being no point in feeling guilty. Your are right, but easier said than done sometimes eh?

Also rereading your earlier post, I must also make a point of remaining anonymous.

Regards
Karen

Hi LoisLobann and all. I have not been on for a while so I have only just noticed this. I totally identify with Alpenator’s words about realising this is it, never going to get the old me back. And of feeling guilty, I too feel very very guilty I have inflicted this on my husband, and daughters, they do not deserve it. I am also on a lot of…[Read more]