[labladyParticipant]

I only wish I could get my DH to eat healthy, living on fish fingers, chicken soup, toast, steak and pasta, chocolate mousse and ice cream at moment. Anything healthy suggested gets a look like I’m trying to poison him lol 😆 I wouldn’t care but before myeloma we ate a very healthy varied diet but he just can’t tolerate so many foods especially veg of any description, tomatoes are a huge no no, any meat other than steak or chicken are just a few examples. He’s never been a fussy eater in his life oh and he’s gone off coffee and is drinking tea which he’s hated all his life, really strange. These chemo drugs are sure playing havoc with his appetite and digestion.

[labladyParticipant]

We have had major issues with our GP practice full stop since ny DH was diagnosed at end of March. They are supposed to supply any none cancer meds eg pain relief, anti sickness etc. When DH came out of hospital we contacted the practice and were informed curtly, don’t know anything about it phone down!! Same response a call a few days later and it took a very snotty letter to the practice head honcho to get the prescriptions sorted. I am dreading getting them organised for vaccinations,after SCT. Every interaction with them is beyond painful, they are supposed to be monitoring my DH pain relief and we haven’t spoken to the GP since he came out of hospital apart from getting a sick note which despite his diagnosis they insisted on a telephone interview but never asked about his condition, pain or circumstances. Thank the lord the hospital performs much better.

[labladyParticipant]

Hi all
Just an update, second week of round 2 of DVTD although hubby is feeling grotty and I’m still getting some backlash, things have improved. He’s much more accepting of the situation having had consultation with his specialist nurse and the super helpful booklets from Myeloma UK (he prefers printed to online he doesn’t do tech) we’re both more positive and trying to look to the future and remission at the end which will hopefully mean we can pick up our lives again.
One of the annoying things I’ve come across is that when people know about our situation they ask if I’m going to give up my horses (they take up a big part of my time along with the garden) and it’s starting to pee me off, just a reminder folks it’s my husband whose ill, lost enough of my life already do you begrudge me the very few pleasures I have left? My horses and my garden are my coping mechanism they allow me to recharge my batteries and for a while get away from the never ending hospital hours, meds juggling and mood managing role that caring is. I think people forget you as an individual and just see the ill person and everything evolves around them and whilst it’s true getting them well is most important without a mentally well carer (YOU) that won’t happen.
Take care all, big hugs, hang on in there xx

[labladyParticipant]

Hi EMF
My husband newly diagnosed too and have to say it’s been a roller coaster and like you felt our lives have been ripped apart. We on week 6 of DVTD too and hubby is really feeling grotty and it’s not easy to see him suffering but even harder when it’s me getting the backlash from it. Finding a coping mechanism is the only way for me it’s my garden. I go Potter in the greenhouse, cut the grass and do some therapeutic weed riping out lol 😆 you’ll find you’re not alone so feel free to come here have a moan, a rant, a weep or just to air feelings you can’t anywhere else. Big hug x

[labladyParticipant]

Thank you Teresa and Elaine for your replies they gave me heart that its not just me, I think both of you have similar husbands to me, mine wouldn’t look at any of the literature the hospital gave us and I mentioned the stem cell op and he said don’t want to know so I suspect that will be all on me too, it’s certainly going to be a marathon not a sprint. Take care both of you and feel free to vent here, I think we all understand and can help each other xx💕

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