Hi all
Just an update, second week of round 2 of DVTD although hubby is feeling grotty and I’m still getting some backlash, things have improved. He’s much more accepting of the situation having had consultation with his specialist nurse and the super helpful booklets from Myeloma UK (he prefers printed to online he doesn’t do tech) we’re both more positive and trying to look to the future and remission at the end which will hopefully mean we can pick up our lives again.
One of the annoying things I’ve come across is that when people know about our situation they ask if I’m going to give up my horses (they take up a big part of my time along with the garden) and it’s starting to pee me off, just a reminder folks it’s my husband whose ill, lost enough of my life already do you begrudge me the very few pleasures I have left? My horses and my garden are my coping mechanism they allow me to recharge my batteries and for a while get away from the never ending hospital hours, meds juggling and mood managing role that caring is. I think people forget you as an individual and just see the ill person and everything evolves around them and whilst it’s true getting them well is most important without a mentally well carer (YOU) that won’t happen.
Take care all, big hugs, hang on in there xx
